Dynamic Consent: a potential solution to some of the challenges of modern biomedical research - 2017
Isabelle Budin‐Ljøsne, Harriet Teare, Jane Kaye, Stephan Beck, Heidi Beate Bentzen, Luciana Caenazzo, Clive Collett, Flavio D’Abramo, Heike Felzmann, Teresa Finlay, M K Javaid, Erica Jones, Višnja Katić, Andrew Simpson, Deborah Mascalzoni
Community engagement strategies for genomic studies in Africa: a review of the literature Tập 16 - Trang 1-12 - 2015
Paulina Tindana, Jantina de Vries, Megan Campbell, Katherine Littler, Janet Seeley, Patricia Marshall, Jennifer Troyer, Morisola Ogundipe, Vincent Pius Alibu, Aminu Yakubu, Michael Parker
Community engagement has been recognised as an important aspect of the ethical conduct of biomedical research, especially when research is focused on ethnically or culturally distinct populations. While this is a generally accepted tenet of biomedical research, it is unclear what components are necessary for effective community engagement, particularly in the context of genomic research in Africa....... hiện toàn bộ
Taking tissue seriously means taking communities seriously Tập 8 - Trang 1-6 - 2007
Ross EG Upshur, James V Lavery, Paulina O Tindana
Health research is increasingly being conducted on a global scale, particularly in the developing world to address leading causes of morbidity and mortality. While research interest has increased, building scientific capacity in the developing world has not kept pace. This often leads to the export of human tissue (defined broadly) from the developing to the developed world for analysis. These pra...... hiện toàn bộ
Standards of practice in empirical bioethics research: towards a consensus Tập 19 Số 1 - 2018
Jonathan Ives, Michael Dunn, Bert Molewijk, Jan Schildmann, Kristine Bærøe, Lucy Frith, Richard Huxtable, Elleke Landeweer, Marcel Mertz, Veerle Provoost, Annette Rid, Sabine Salloch, Mark Sheehan, Daniel Strech, Martine C. de Vries, Guy Widdershoven