BMC Medical Ethics
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Introduction to the article collection ‘Translation in healthcare: ethical, legal, and social implications’
BMC Medical Ethics - Tập 17 - Trang 1-6 - 2016
New technologies are transforming and reconfiguring the boundaries between
patients, research participants and consumers, between research and clinical
practice, and between public and private domains. From personalised medicine to
big data and social media, these platforms facilitate new kinds of interactions,
challenge longstanding understandings of privacy and consent, and raise
fundamental que...
Systematic review: bioethical implications for COVID-19 research in low prevalence countries, a distinctly different set of problems
BMC Medical Ethics - Tập 22 - Trang 1-8 - 2021
The COVID-19 pandemic has presented extraordinary challenges to worldwide
healthcare systems, however, prevalence remains low in some countries. While the
challenges of conducting research in high-prevalence countries are well
published, there is a paucity from low COVID-19 countries. A PRISMA guided
systematic review was conducted using the databases Ovid-Medline, Embase, Scopus
and Web of Scienc...
International variation in ethics committee requirements: comparisons across five Westernised nations
BMC Medical Ethics - Tập 3 - Trang 1-8 - 2002
Ethics committees typically apply the common principles of autonomy,
nonmaleficence, beneficence and justice to research proposals but with variable
weighting and interpretation. This paper reports a comparison of ethical
requirements in an international cross-cultural study and discusses their
implications. The study was run concurrently in New Zealand, UK, Israel, Canada
and USA and involved tes...
Digital tools in the informed consent process: a systematic review
BMC Medical Ethics - Tập 22 - Trang 1-10 - 2021
Providing understandable information to patients is necessary to achieve the
aims of the Informed Consent process: respecting and promoting patients’
autonomy and protecting patients from harm. In recent decades, new, primarily
digital technologies have been used to apply and test innovative formats of
Informed Consent. We conducted a systematic review to explore the impact of
using digital tools ...
Perceptions of the general public and physicians regarding open disclosure in Korea: a qualitative study
BMC Medical Ethics - Tập 17 - Trang 1-13 - 2016
Experience with open disclosure and its study are restricted to certain western
countries. In addition, there are concerns that open disclosure may be less
suitable in non-western countries. The present study explored and compared the
in-depth perceptions of the general public and physicians regarding open
disclosure in Korea. We applied the COREQ (Consolidated Criteria for Reporting
Qualitative R...
Postal recruitment and consent obtainment from index cases of narcolepsy
BMC Medical Ethics - Tập 17 - Trang 1-6 - 2016
Access to research volunteers may be hampered by low numbers of cases and few
eligible participants for rare diseases in clinical settings. We recruited
volunteers and obtained informed consent by mail from narcolepsy cases in a
case-control study, and here in we report feasibility, response rate, timeliness
and cost. We invited index cases into the study by mail through their
care-giving physicia...
Is Off-label repeat prescription of ketamine as a rapid antidepressant safe? Controversies, ethical concerns, and legal implications
BMC Medical Ethics - Tập 17 - Trang 1-8 - 2016
Depressive disorders are a common form of psychiatric illness and cause
significant disability. Regulation authorities, the medical profession and the
public require high safety standards for antidepressants to protect vulnerable
psychiatric patients. Ketamine is a dissociative anaesthetic and a derivative of
a hallucinogen (phencyclidine). Its abuse is a major worldwide public health
problem. Ket...
Participatory development of CURA, a clinical ethics support instrument for palliative care
BMC Medical Ethics - Tập 23 - Trang 1-12 - 2022
Existing clinical ethics support (CES) instruments are considered useful.
However, users report obstacles in using them in daily practice. Including end
users and other stakeholders in developing CES instruments might help to
overcome these limitations. This study describes the development process of a
new ethics support instrument called CURA, a low-threshold four-step instrument
focused on nurse...
Child’s assent in research: Age threshold or personalisation?
BMC Medical Ethics - Tập 15 - Trang 1-7 - 2014
Assent is an important ethical and legal requirement of paediatric research.
Unfortunately, there are significant differences between the guidelines on the
details of assent. What often remains unclear is the scope of the assent, the
procedure for acquiring it, and the way in which children’s capacity to assent
is determined. There is a general growing tendency that suggests that the
process of as...
Trust and digital privacy in healthcare: a cross-sectional descriptive study of trust and attitudes towards uses of electronic health data among the general public in Sweden
BMC Medical Ethics - - 2022
Abstract Background The ability of healthcare to protect sensitive personal data
in medical records and registers might influence public trust, which in turn
might influence willingness to allow healthcare to use such data. The aim of
this study was to examine how the general public’s trust relates to their
attitudes towards uses of health data. Methods A stratified sample from the
general Swedish...
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