Palliative Medicine

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Identifying the concerns of informal carers in palliative care
Palliative Medicine - Tập 13 Số 1 - Trang 37-44 - 1999
Sheila Payne, P. Smith, S. Dean
Variation in the use of palliative radiotherapy at end of life: Examining demographic, clinical, health service, and geographic factors in a population-based study
Palliative Medicine - Tập 25 Số 2 - Trang 101-110 - 2011
M. Ruth Lavergne, Grace Johnston, Jun Gao, Trevor Dummer, D. Rheaume
Palliative radiotherapy (PRT) can improve quality of life for people dying of cancer. Variation in the delivery of PRT by factors unrelated to need may indicate that not all patients who may benefit from PRT receive it. In this study, 13,494 adults who died of cancer between 2000 and 2005 in Nova Scotia, Canada, were linked to radiotherapy records. Multivariate logistic regression was use...... hiện toàn bộ
Disconnect between emergency contacts and surrogate decision-makers in the absence of advance directives
Palliative Medicine - Tập 27 Số 8 - Trang 789-792 - 2013
Mi‐Kyung Song, Sandra E. Ward
Background: The role played by emergency contacts can be extensive particularly for chronically seriously ill patients. If the patient’s condition suddenly deteriorates, the emergency contact may be asked to make decisions that should instead fall to a designated surrogate decision-maker. Aims:... hiện toàn bộ
Intensity cut-points for the Respiratory Distress Observation Scale
Palliative Medicine - Tập 29 Số 5 - Trang 436-442 - 2015
Margaret Campbell, Thomas Templin
Background: The Respiratory Distress Observation Scale© is an innovative solution to assessment when a dyspnea report cannot be elicited. The Respiratory Distress Observation Scale has acceptable reliability and validity psychometrics. Aim: To identify distress-intensity c...... hiện toàn bộ
Burden of care in amyotrophic lateral sclerosis
Palliative Medicine - Tập 17 Số 4 - Trang 327-333 - 2003
Martin Hecht, Elmar Graesel, Sebastian Tigges, Thomas Hillemacher, Martin Winterholler, Max J. Hilz, Dieter Heuß, B. Neundörfer
Objectives: Amyotrophic lateral sclerosis (ALS) is a fatal disease with unique demands on patients and carers. Patients and methods: The total burden of care and burden components in 37 ALS carers were measured using validated questionnaires. Furthermore, influencing factors (functional impairment of the patient, additional carers, participation in support groups) were assessed. Results: ...... hiện toàn bộ
Individual breathlessness trajectories do not match summary trajectories in advanced cancer and chronic obstructive pulmonary disease: results from a longitudinal study
Palliative Medicine - Tập 24 Số 8 - Trang 777-786 - 2010
Claudia Bausewein, Sara Booth, Marjolein Gysels, Robert Kühnbach, B Haberland, Irene J Higginson
Breathlessness is a distressing symptom in advanced disease. Little is known about the trajectories of this symptom over time and towards death. This study aimed to describe and compare the summary and individual trajectories of breathlessness and overall symptom burden over time and towards the end of life following patients with advanced cancer or severe chronic obstructive pulmonary di...... hiện toàn bộ
Evaluation of a novel individualised communication-skills training intervention to improve doctors’ confidence and skills in end-of-life communication
Palliative Medicine - Tập 27 Số 3 - Trang 236-243 - 2013
Josephine M. Clayton, Phyllis Butow, Amy Waters, Rebekah Laidsaar‐Powell, Angela O’Brien, Frances Boyle, Anthony L. Back, Robert M. Arnold, James A. Tulsky, Martin H. N. Tattersall
Background: We developed a novel individualised training program regarding end-of-life communication, designed to be time effective for busy junior-doctors working in hospital settings. Aim: We aimed to pilot this brief individualised training program with junior-doctors to explore its accepta...... hiện toàn bộ
A longitudinal evaluation of a communication skills programme
Palliative Medicine - Tập 13 Số 4 - Trang 341-348 - 1999
Susie Wilkinson, Koren Bailey, Judith Aldridge, Anita Roberts
Communication is an essential component of palliative care, but patients and their families are often dissatisfied with their interactions with health professionals. Communication difficulties are also a recognized stress factor among health professionals. Education and training, however, are said to improve communication skills. A communication skills training programme for 110 nurses ha...... hiện toàn bộ
Nurse–patient communication in palliative care: an evaluation of a communication skills programme
Palliative Medicine - Tập 12 Số 1 - Trang 13-22 - 1998
Susie Wilkinson, Anita Roberts, Judith Aldridge
Good communication between nurses and patients is a central aspect of palliative care. However, evaluation of courses designed to improve nurses' communication skills has been inconclusive. Most courses have concentrated on skills training, although communication training programmes which have been integrated into clinical practice over time and have also focused on attitudes and used a r...... hiện toàn bộ
Using videotelephony to support paediatric oncology-related palliative care in the home: from abandoned RCT to acceptability study
Palliative Medicine - Tập 23 Số 3 - Trang 228-237 - 2009
Mark Bensink, Nigel R Armfield, Ross Pinkerton, Helen Irving, Andrew R. Hallahan, Deborah Theodoros, Trevor Russell, Adrian Barnett, Paul Cashin, Richard Wootton
Videotelephony (real-time audio-visual communication) has been used successfully in adult palliative home care. This paper describes two attempts to complete an RCT (both of which were abandoned following difficulties with family recruitment), designed to investigate the use of videotelephony with families receiving palliative care from a tertiary paediatric oncology service in Brisbane, ...... hiện toàn bộ
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