Willingness to participate in weight-related research as reported by patients in PCORnet clinical data research networks
Tóm tắt
Từ khóa
Tài liệu tham khảo
Harvey JR, Ogden DE. Obesity treatment in disadvantaged population groups: where do we stand and what can we do? Prev Med. 2014;68:71–5.
Allmark P. Should research samples reflect the diversity of the population? J Med Ethics. 2004;30(2):185–9.
Britton A, McKee M, Black N, McPherson K, Sanderson C, Bain C. Threats to applicability of randomised trials: exclusions and selective participation. J Health Serv Res Policy. 1999;4(2):112–21.
Ogden CL, Carroll MD, Fryar CD, Flegal KM. Prevalence of obesity among adults and young: United States, 2011-2014. In: NCHS Data Brief, no 219. Hyattsville: MD: National Center for Health Statistics; 2015.
Hussain-Gambles M, Atkin K, Leese B. Why ethnic minority groups are under-represented in clinical trials: a review of the literature. Health Soc Care Community. 2004;12(5):382–8.
Svensson K, Ramirez OF, Peres F, Barnett M, Claudio L. Socioeconomic determinants associated with willingness to participate in medical research among a diverse population. Contemporary clinical trials. 2012;33(6):1197–205.
Wendler D, Kington R, Madans J, Van Wye G, Christ-Schmidt H, Pratt LA, Brawley OW, Gross CP, Emanuel E. Are racial and ethnic minorities less willing to participate in health research? PLoS Med. 2006;3(2):e19.
Fleurence RL, Curtis LH, Califf RM, Platt R, Selby JV, Brown JS. Launching PCORnet, a national patient-centered clinical research network. J Am Med Inform Assoc. 2014;21(4):578–82.
Taveras EM, Hohman KH, Price SN, Rifas-Shiman SL, Mitchell K, Gortmaker SL, Gillman MW. Correlates of participation in a pediatric primary care-based obesity prevention intervention. Obesity (Silver Spring). 2011;19(2):449–52.
Warner ET, Glasgow RE, Emmons KM, Bennett GG, Askew S, Rosner B, Colditz GA. Recruitment and retention of participants in a pragmatic randomized intervention trial at three community health clinics: results and lessons learned. BMC Public Health. 2013;13:192.
Rosenbloom ST, Harris P, Pulley J, Basford M, Grant J, DuBuisson A, Rothman RL. The mid-south clinical data research network. J Am Med Inform Assoc. 2014;21(4):627–32.
Wallston KA, Cawthon C, McNaughton CD, Rothman RL, Osborn CY, Kripalani S. Psychometric properties of the brief health literacy screen in clinical practice. J Gen Intern Med. 2014;29(1):119–26.
Littman AJ, Koepsell TD, Forsberg CW, Boyko EJ, Yancy WS Jr. Preventive care in relation to obesity: An analysis of a large, national survey. Am J Prev Med. 2011;41(5):465–72.
Wee CC, McCarthy EP, Davis RB, Phillips RS. Screening for cervical and breast cancer: is obesity an unrecognized barrier to preventive care? Ann Intern Med. 2000;132(9):697–704.
Harrell FE. Regression modeling strategies : with applications to linear models, logistic regression, and survival analysis. New York: Springer; 2001.
Trauth JM, Musa D, Siminoff L, Jewell IK, Ricci E. Public attitudes regarding willingness to participate in medical research studies. J Health Soc Policy. 2000;12(2):23–43.
Goff SL, Youssef Y, Pekow PS, White KO, Guhn-Knight H, Lagu T, Mazor KM, Lindenauer PK. Successful strategies for practice-based recruitment of racial and ethnic minority pregnant women in a randomized controlled trial: the IDEAS for a healthy baby study. J Racial Ethn Health Disparities. 2016;3(4):731–7.
Haley SJ, Southwick LE, Parikh NS, Rivera J, Farrar-Edwards D, Boden-Albala B. Barriers and strategies for recruitment of racial and ethnic minorities: perspectives from neurological clinical research coordinators. J Racial Ethn Health Disparities. 2017;
Erves JC, Mayo-Gamble TL, Malin-Fair A, Boyer A, Joosten Y, Vaughn YC, Sherden L, Luther P, Miller S, Wilkins CH. Needs, priorities, and recommendations for engaging underrepresented populations in clinical research: a community perspective. J Community Health. 2016;
Kaiser BL, Thomas GR, Bowers BJ, Case Study A. Of engaging hard-to-reach participants in the research process: community advisors on research design and strategies (CARDS)(R). Res Nurs Health. 2017;40(1):70–9.
Clinical Trials Shed Light on Minority Health. [ https://www.fda.gov/ForConsumers/ConsumerUpdates/ucm349063.htm ]. Accessed 27 Feb 2018.