Unleashing the true potential of social networks: confirming infliximab medical trials through Facebook posts

Asteria CR, Ficari F, Bagnoli S, Milla M, Tonelli F (2006) Treatment of perianal fistulas in Crohn’s disease by local injection of antibody to TNF- $$\alpha$$ α accounts for a favourable clinical response in selected cases: a pilot study. Scand J Gastroenterol 41(9):1064–1072. doi: 10.1080/00365520600609941

Balka E, Bjorn P, Wagner I (2008) Steps toward a typology for health informatics. In: Proceedings of the ACM 2008 conference on Computer supported cooperative work—CSCW ’08, ACM Press, New York p 515. doi: 10.1145/1460563.1460645 . http://dl.acm.org/citation.cfm?id=1460563.1460645

Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J (2002) Self-management approaches for people with chronic conditions: a review. Patient Education and Counseling 48(2):177–187. doi: 10.1016/S0738-3991(02)00032-0 . http://www.sciencedirect.com/science/article/

Ben-Horin S, Chowers Y (2011) Review article: loss of response to anti-TNF treatments in Crohn’s disease. Aliment pharmacol & Ther 33(9):987–95. doi: 10.1111/j.1365-2036.2011.04612.x . http://www.ncbi.nlm.nih.gov/pubmed/21366636

Bouguen G, Siproudhis L, Gizard E, Wallenhorst T, Billioud V, Bretagne JF, Bigard MA, Peyrin-Biroulet L (2013) Long-term outcome of perianal fistulizing Crohn’s disease treated with infliximab. Clin Gastroenterol Hepatol 11(8):975–81.e1–4. doi: 10.1016/j.cgh.2012.12.042 . http://www.sciencedirect.com/science/article/pii/S1542356513001304

Burawoy M (2009) The extended case method: four countries, four decades, four great transformations, and one theoretical tradition. University of California Press. https://books.google.com/books?hl=en&lr=&id=xCA7R-o8BMIC&pgis=1

Burke M, Kraut R, Williams D (2010) Social use of computer-mediated communication by adults on the autism spectrum. In: Proceedings of the 2010 ACM conference on Computer supported cooperative work—CSCW ’10, ACM Press, New York p 425. doi: 10.1145/1718918.1718991 . http://dl.acm.org/citation.cfm?id=1718918.1718991

Caspersen S, Elkjaer M, Riis L, Pedersen N, Mortensen C, Jess T, Sarto P, Hansen TS, Wewer V, Bendtsen F, Moesgaard F, Munkholm P (2008) Infliximab for inflammatory bowel disease in Denmark 1999–2005: clinical outcome and follow-up evaluation of malignancy and mortality. Clin Gastroenterol Hepatol 6(11):1212–7; quiz 1176. doi: 10.1016/j.cgh.2008.05.010 . http://www.sciencedirect.com/science/article

Clark NM (2003) Management of chronic disease by patients. Ann Rev Public Health 24(1):289–313. doi: 10.1146/annurev.publhealth.24.100901.141021

Cline RJW (2001) Consumer health information seeking on the Internet: the state of the art. Health Edu Res 16(6):671–692. doi: 10.1093/her/16.6.671 . http://her.oxfordjournals.org/content/16/6/671.abstract

Colombel JF, Loftus EV, Tremaine WJ, Egan LJ, Harmsen W, Schleck CD, Zinsmeister AR, Sandborn WJ (2004) The safety profile of infliximab in patients with Crohns disease: The Mayo Clinic experience in 500 patients. Gastroenterology 126(1):19–31. doi: 10.1053/j.gastro.2003.10.047 . http://www.sciencedirect.com/science/article

Farnham S, Cheng L, Stone L, Zaner-Godsey M, Hibbeln C, Syrjala K, Clark AM, Abrams J (2002) HutchWorld. In: Proceedings of the SIGCHI conference on Human factors in computing systems Changing our world, changing ourselves—CHI ’02, ACM Press, New York p 375. doi: 10.1145/503376.503444 . http://dl.acm.org/citation.cfm?id=503376.503444

Ford AC, Sandborn WJ, Khan KJ, Hanauer SB, Talley NJ, Moayyedi P (2011) Efficacy of biological therapies in inflammatory bowel disease: systematic review and meta-analysis. Am J Gastroenterol 106(4):644–59, quiz 660. doi: 10.1038/ajg.2011.73

Fox S, Duggan M (2013) Health Online 2013. Tech. rep., Pew Internet and American Life Project. http://www.perinternet.org/files/old-media/Files/Reports/PIP_HealthOnline.pdf

Gisbert JP, Panés J (2009) Loss of response and requirement of infliximab dose intensification in Crohn’s disease: a review. Am J Gastroenterol 104(3):760–767. doi: 10.1038/ajg.2008.88

Granger C (1988) Causality, cointegration, and control. J Econ Dyn Control 12(2-3):551–559. doi: 10.1016/0165-1889(88)90055-3 . http://www.sciencedirect.com/science/article

Greene JA, Choudhry NK, Kilabuk E, Shrank WH (2011) Online social networking by patients with diabetes: a qualitative evaluation of communication with Facebook. J General Int Med 26(3):287–292. doi: 10.1007/s11606-010-1526-3

Gruhl D, Guha R, Kumar R, Novak J, Tomkins A (2005) The predictive power of online chatter. In: Proceeding of the eleventh ACM SIGKDD international conference on Knowledge discovery in data mining—KDD ’05, ACM Press, New York p 78. doi: 10.1145/1081870.1081883 . http://dl.acm.org/citation.cfm?id=1081870.1081883

He Z, Maekawa K (2001) On spurious Granger causality. Econ Lett 73(3):307–313. doi: 10.1016/S0165-1765(01)00498-0 . http://www.sciencedirect.com/science/article

Huh J, Liu LS, Neogi T, Inkpen K, Pratt W (2014) Health Vlogs as Social Support for Chronic Illness Management. ACM transactions on computer-human interaction : a publication of the Association for Computing Machinery 21(4):23. doi: 10.1145/2630067 . http://dl.acm.org/citation.cfm?id=2633907.2630067

Liao QV, Fu WT (2013) Beyond the filter bubble. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems—CHI ’13, ACM Press, New York p 2359. doi: 10.1145/2470654.2481326 . http://dl.acm.org/citation.cfm?id=2470654.2481326

Likert R (1932) A technique for the measurement of attitudes. Arch Psychol 22(140):55

Mankoff J, Kuksenok K, Kiesler S, Rode JA, Waldman K (2011) Competing online viewpoints and models of chronic illness. In: Proceedings of the 2011 annual conference on Human factors in computing systems—CHI ’11, ACM Press, New York p 589. doi: 10.1145/1978942.1979027 . http://dl.acm.org/citation.cfm?id=1978942.1979027

Ohno-Machado L (2012) Informatics 2.0: implications of social media, mobile health, and patient-reported outcomes for healthcare and individual privacy. J Am Med Inf Assoc JAMIA 19(5):683. doi: 10.1136/amiajnl-2012-001224 . http://jamia.oxfordjournals.org/content/19/5/683.abstract

Poggioli G, Laureti S, Pierangeli F, Rizzello F, Ugolini F, Gionchetti P, Campieri M (2005) Local injection of Infliximab for the treatment of perianal Crohn’s disease. Dis Colon Rectum 48(4):768–74. doi: 10.1007/s10350-004-0832-4 . http://www.ncbi.nlm.nih.gov/pubmed/15768185

Present DH, Rutgeerts P, Targan S, Hanauer SB, Mayer L, van Hogezand RA, Podolsky DK, Sands BE, Braakman T, DeWoody KL, Schaible TF, van Deventer SJ (1999) Infliximab for the treatment of fistulas in patients with Crohn’s disease. N Engl J Med 340(18):1398–405. doi: 10.1056/NEJM199905063401804 . http://www.ncbi.nlm.nih.gov/pubmed/10228190

Roccetti M, Casari A, Marfia G (2015) Inside Chronic Autoimmune Disease Communities. In: Proceedings of the 2015 IEEE/ACM International Conference on Advances in Social Networks Analysis and Mining 2015—ASONAM ’15, ACM Press, New York pp 1089–1096. doi: 10.1145/2808797.2808813 . http://dl.acm.org/citation.cfm? id=2808797.2808813

Scanfeld D, Scanfeld V, Larson EL (2010) Dissemination of health information through social networks: twitter and antibiotics. Am J Infect Control 38(3):182–8. doi: 10.1016/j.ajic.2009.11.004 . http://www.sciencedirect.com/science/article

Stellefson M, Chaney B, Barry AE, Chavarria E, Tennant B, Walsh-Childers K, Sriram PS, Zagora J (2013) Web 2.0 chronic disease self-management for older adults: a systematic review. J Med Internet Res 15(2):e35. doi: 10.2196/jmir.2439

Toda HY, Yamamoto T (1995) Statistical inference in vector autoregressions with possibly integrated processes. J Econ 66(1–2):225–250. doi: 10.1016/0304-4076(94)01616-8 . http://www.sciencedirect.com/science/article

van der Eijk M, Faber M (2013) Using online health communities to deliver patient-centered care to people with chronic conditions. J Med Internet Res 15(6):e115. doi: 10.2196/jmir.2476

Velayos FS, Kahn JG, Sandborn WJ, Feagan BG (2013) A test-based strategy is more cost effective than empiric dose escalation for patients with Crohn’s disease who lose responsiveness to infliximab. Clin Gastroenterol Hepatol 11(6):654–66. doi: 10.1016/j.cgh.2012.12.035 . http://www.sciencedirect.com/science/article

Wagner EH, Austin BT, Davis C, Hindmarsh M, Schaefer J, Bonomi A (2001) Improving Chronic Illness Care: translating evidence into action. Health Affairs 20(6):64–78. doi: 10.1377/hlthaff.20.6.64 . http://content.healthaffairs.org/content/20/6/64.abstract

Weitzman ER, Cole E, Kaci L, Mandl KD (2011) Social but safe? Quality and safety of diabetes-related online social networks. J Am Med Inf Assoc JAMIA 18(3):292–7. doi: 10.1136/jamia.2010.009712 . http://jamia.oxfordjournals.org/content/18/3/292.abstract

Wilson T, Hoffmann P, Somasundaran S, Kessler J, Wiebe J, Choi Y, Cardie C, Riloff E, Patwardhan S (2005) OpinionFinder. In: Proceedings of HLT/EMNLP on Interactive Demonstrations, Association for Computational Linguistics, Morristown pp 34–35. doi: 10.3115/1225733.1225751 . http://dl.acm.org/citation.cfm?id=1225733.1225751

Ziebland S, Wyke S (2012) Health and illness in a connected world: how might sharing experiences on the internet affect people’s health? Milbank Q 90(2):219–249. doi: 10.1111/j.1468-0009.2012.00662.x