The value of the PedsQLTM in assessing quality of life in survivors of childhood cancer

Child: Care, Health and Development - Tập 29 Số 2 - Trang 95-102 - 2003
Christine Eiser1, Yvonne H. Vance1, B. Horne2, Adam Glaser2, H. Galvin1,2
1Cancer Research UK Child and Family Research Group, University of Sheffield, Sheffield, and
2Yorkshire Regional Centre for Paediatric Oncology and Haematology, Leeds Teaching Hospitals, UK.

Tóm tắt

AbstractAims  To determine differences in ratings of quality of life (QOL) depending on respondent (mother or child) and implications for the validity of measures of QOL, and interpretation of scores.Method  Forty‐five survivors of acute lymphoblastic leukaemia (ALL) and 23 survivors of central nervous system (CNS) tumours and their mothers completed a generic measure of QOL: the Pediatric Quality of Life Inventory TM Version 4.0 (PedsQLTM4.0; Varni et al., 2001).Results  Although correlations between mother and survivor ratings were largely moderate to good, further analyses showed that mothers reported QOL to be worse than survivors. Both mothers and survivors rated physical health worse than psychological health, and survivors of a CNS tumour had poorer QOL than survivors of ALL. Although survivors of ALL reported reasonably good physical health, their psychosocial health was more adversely affected.Conclusions  Implications for further use of the PedsQLTM 4.0 in the clinical or research context are discussed. Incidental findings highlight some limitations of the PedsQLTM4.0 for work with this population.

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Tài liệu tham khảo

Bruil J., 1999, Development of a Quality of Life Instrument for Children with Chronic Illness

Cohen L., 1982, Statistics for Social Scientists.

Davies H.A., 1993, Late problems faced by childhood cancer survivors, British Journal of Hospital Medicine, 50, 137

Department of Health(2000) Health secretary announces membership of modernisation action teams to draw up national plans for health. London:Department of Health (Press release 2000/02081).

10.1111/1469-7610.00362

Eiser C., 2001, Quality of life measures in chronic diseases of childhood, Health Technology Assessment, 5, 1, 10.3310/hta5040

10.1093/jpepsy/16.5.557

10.1016/S0895-4356(96)00314-9

10.1093/oxfordjournals.bmb.a011590

10.1017/S0954579400005812

Nunnally J. C., 1994, Psychometric Theory

10.1038/bjc.1990.383

10.1136/adc.81.3.202

10.1023/A:1018779908502

10.1097/00005650-200108000-00006

10.1097/00005650-199902000-00003

10.1300/J077V16N02_01