The Concept of Quality of Life of Dying Persons in the Context of Health Care
Tóm tắt
Từ khóa
Tài liệu tham khảo
Donaldson, 1998, Measuring quality of care at the end of life, Arch Intern Med, 158, 121, 10.1001/archinte.158.2.121
Lynn, 1997, Perceptions by family members of the dying experience of older and seriously ill patients. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments, Ann Intern Med, 126, 97, 10.7326/0003-4819-126-2-199701150-00001
Field, 1997
Lohr, 1990
Donabedian, 1966, Evaluating the quality of medical care, Milbank Memorial Fund Quart, 44, 166, 10.2307/3348969
McGlynn, 1996, Ensuring quality of care, 142
Campbell, 1976
Patrick, 1993
Wilson, 1995, Linking clinical variables with health-related quality of life, JAMA, 273, 59, 10.1001/jama.1995.03520250075037
Ethics, 1996, AGS asks groups to sign on to “measuring quality of care at the end of life, Am Geriatr Soc Newsletter, 25, 1
Patrick, 1997, Finding health-related quality of life outcomes sensitive to health care organization and delivery, Med Care, 35, NS49, 10.1097/00005650-199711001-00006
National Hospice Association, 1997
Ferris, 1995
Butler, 1996, A peaceful death, Geriatrics, 51, 32
Donabedian, 1992, The role of outcomes in quality assessment and assurance, QRB, Nov, 356
Adler, 1993, Socioeconomic inequalities in health, JAMA, 269, 3140, 10.1001/jama.1993.03500240084031
World Health Organization, 1989
Rudberg, 1997, Developing and implementing measures of quality of care at the end of life, J Am Geriatr Soc, 45, 528, 10.1111/j.1532-5415.1997.tb05185.x
Lynn, 1997, Hospitalization of nursing home residents, J Am Geriatr Soc, 45, 378, 10.1111/j.1532-5415.1997.tb00958.x
Hanson, 1997, What is wrong with end-of-life care? Opinions of bereaved family members, J Am Geriatr Soc, 45, 1339, 10.1111/j.1532-5415.1997.tb02933.x
Lawton, 1983, Environment and other determinants of well-being in older people, Gerontologist, 23, 349, 10.1093/geront/23.4.349
Lawton, 1989, Environmental approaches to research and treatment of Alzheimers disease, 340
Franey, 1996, Three factors critical for end-of-life care, Health Progress, 77, 30
Council on Scientific Affairs, 1996, Good care of the dying patient. Council on Scientific Affairs, American Medical Association, JAMA, 275, 474, 10.1001/jama.1996.03530300058041
Desbiens, 1996, Pain and satisfaction with pain control in seriously ill hospitalized adults, Crit Care Med, 24, 1953, 10.1097/00003246-199612000-00005
Patrick, 1994, Measuring preferences for health states worse than death, Med Decis Making, 14, 9, 10.1177/0272989X9401400102
Pearlman, 1993, Insights pertaining to patient assessments of states worse than death, J Clin Ethics, 4, 33, 10.1086/JCE199304106
Patrick, 1995, Validation of preferences for life-sustaining treatment, Ann Intern Med, 127, 502
The SUPPORT Principal Investigators. A controlled trial to improve care for seriously ill hospitalized patients: The Study to Understand Prognoses and Preferences for Outcomes and Treatments (SUPPORT). JAMA 1995;274:1591–1598.
Byock, 1998, Measuring quality of life for patients with terminal illness, Palliat Med, 12, 231, 10.1191/026921698670234618
Byock, 1997
Ferrell, 1994, Pain management for elderly patients with cancer at home, Cancer, 74, 2139, 10.1002/1097-0142(19941001)74:7+<2139::AID-CNCR2820741722>3.0.CO;2-C
Portenoy, 1994, The Memorial Symptom Assessment Scale, Eur J Cancer, 30A, 1326, 10.1016/0959-8049(94)90182-1
deHaes, 1990, Measuring psychological and physical distress in cancer patients, British Journal of Cancer, 62, 1034, 10.1038/bjc.1990.434
Mor, 1992, The changing needs of patients with cancer at home, Cancer, 69, 829, 10.1002/1097-0142(19920201)69:3<829::AID-CNCR2820690335>3.0.CO;2-I
Cella, 1993, The Functional Assessment of Cancer Therapy Scale, J Clin Oncol, 11, 570, 10.1200/JCO.1993.11.3.570
Schwartz, 1995, Measuring patient-centered outcomes in neurologic disease, Arch Neurol, 52, 754, 10.1001/archneur.1995.00540320026010
Stewart, 1988, The MOS Short-form General Health Survey, Med Care, 26, 724, 10.1097/00005650-198807000-00007
Stewart, 1992, Health perceptions, energy/fatigue, and health distress measures, 143
Ware, 1992, Developing and testing the MOS 20-item Short-Form Health Survey, 277
Bradburn, 1969
Lawton, 1990, The quality of the last year of life of older persons, Milbank Quart, 68, 1, 10.2307/3350075
Wallston, 1988, Comparing the quality of death for hospice and non-hospice cancer patients, Med Care, 26, 177, 10.1097/00005650-198802000-00008
Patrick, 1990, Measurement of health status in the 1990s, Ann Rev Public Health, 11, 165, 10.1146/annurev.pu.11.050190.001121
Kane, 1984, A randomised controlled trial of hospice care, Lancet, 1, 890, 10.1016/S0140-6736(84)91349-7
Kane, 1985, Hospice role in alleviating the emotional stress of terminal patients and their families, Med Care, 23, 189, 10.1097/00005650-198503000-00001
Beck-Friis, 1993, The family in hospital-based home care with special reference to terminally ill cancer patients, J Palliat Care, 9, 5, 10.1177/082585979300900102
McDowell, 1996
Byock, 1996, The nature of suffering and the nature of opportunity at the end of life, Clin Geriatr Med, 12, 237, 10.1016/S0749-0690(18)30224-6
Stein, 1989, Life threatening illness and hospice care, Arch Dis Child, 64, 697, 10.1136/adc.64.5.697
Blazer, 1991, Spirituality and aging well, Generations, XV, 61
Reed, 1987, Spirituality and well-being in terminally ill hospitalized adults, Res Nursing Health, 10, 335, 10.1002/nur.4770100507
Cassell, 1982, The nature of suffering and the goals of medicine, N Engl J Med, 306, 639, 10.1056/NEJM198203183061104
Cassell, 1991
Cohen, 1995, The McGill Quality of Life Questionnaire, Palliat Med, 9, 207, 10.1177/026921639500900306
Dawson, 1991, Need satisfaction in terminal care settings, Soc Sci Med, 32, 83, 10.1016/0277-9536(91)90131-U
Cheng, 1994, Psychosocial needs of family caregivers of terminally ill patients, Psychol Rep, 75, 1243, 10.2466/pr0.1994.75.3.1243
Kristjanson, 1986, Indicators of quality of palliative care from a family perspective, J Palliat Care, 1, 8, 10.1177/082585978500100203
Hinds, 1985, The needs of families who care for patients with cancer at home, J Adv Nurs, 10, 575, 10.1111/j.1365-2648.1985.tb00550.x
Martikainen, 1996, Mortality after the death of a spouse, Am J Public Health, 86, 1087, 10.2105/AJPH.86.8_Pt_1.1087
Cohen, 1995, Dialysis discontinuation. A ‘good’ death?, Arch Intern Med, 155, 42, 10.1001/archinte.1995.00430010046006
The Center to Improve Care of the Dying. (George Washington University). Toolkit of Instruments to Measure End of Life Care. 1996.