Randomized controlled trial of SPIRIT: An effective approach to preparing African‐American dialysis patients and families for end of life

Research in Nursing and Health - Tập 32 Số 3 - Trang 260-273 - 2009
Mi‐Kyung Song1, Sandra E. Ward2, Mary Beth Happ3, Beth Piraino3, Heidi S. Donovan3, Anne‐Marie Shields3, Mary Coerver- Connolly3
1School of Nursing, University of North Carolina at Chapel Hill, Chapel Hill, NC 27599-7460, USA
2University of Wisconsin Madison, Madison, WI
3University of Pittsburgh, Pittsburgh, PA

Tóm tắt

AbstractThis randomized controlled trial tested an intervention, Sharing Patients' Illness Representations to Increase Trust (SPIRIT), designed to enhance communication regarding end‐of‐life care between African Americans with end‐stage renal disease (ESRD) and their chosen surrogate decision makers (N = 58 dyads). We used surveys and semi‐structured interviews to determine the feasibility, acceptability, and preliminary effects of SPIRIT on patient and surrogate outcomes at 1 week and 3 months post‐intervention. We also evaluated patients' deaths and surrogates' end‐of‐life decision making to assess surrogates' perceptions of benefits and limitations of the SPIRIT while facing end‐of‐life decisions. We found that SPIRIT promoted communication between patients and their surrogates and was effective and well received by the participants. © 2009 Wiley Periodicals, Inc. Res Nurs Health 32:260–273, 2009

Từ khóa


Tài liệu tham khảo

10.1186/1477-7525-2-36

10.1016/j.drugalcdep.2006.08.028

Blank R.H., 2005, End‐of‐life decision making: A cross‐national study

10.1007/s11606-007-0487-7

10.1093/geronb/62.2.S135

10.1177/002214650704800206

10.1016/S0376-8716(99)00049-6

10.1089/jpm.2005.8.1176

10.1053/j.ajkd.2004.09.014

10.1089/jpm.2006.9.977

10.1111/j.1532-5415.2000.tb03131.x

10.1097/00002030-199906180-00017

10.7326/0003-4819-120-7-199404010-00006

10.1001/archinte.161.3.421

10.1037/0278-6133.22.6.605

10.1111/j.1547-5069.2001.00211.x

10.1111/j.1547-5069.2007.00178.x

10.1016/S0749-3797(00)00272-5

10.1016/S0277-9536(03)00205-3

10.2307/3527683

10.1053/ajkd.2001.21300

10.1016/j.jpainsymman.2007.09.008

Hammes B.J., 2000, Respecting choices: Advance care planning facilitator manual

10.1016/j.jpainsymman.2007.12.010

10.1007/BF02600081

10.1111/j.1748-720X.2008.00242.x

10.7326/0003-4819-130-10-199905180-00016

10.1093/geront/40.4.449

10.1111/j.1532-5415.2000.tb04724.x

10.1177/02729890222062900

Leventhal H., 1991, Mental representation in health and illness, 245

Leventhal H., 1984, Handbook of psychology and health, 221

10.1007/BF02600155

10.15288/jsas.2005.s15.188

Morrison R.S., 1998, Barriers to completion of healthcare proxy forms: A qualitative analysis of ethnic differences, Journal of Clinical Ethics, 9, 118, 10.1086/JCE199809203

10.1016/S0272-6386(98)70061-7

10.4135/9781452243238.n14

10.1111/j.1547-5069.2001.00021.x

10.7326/0003-4819-147-1-200707030-00008

10.1053/j.ajkd.2005.03.018

10.1111/j.1532-5415.1975.tb00927.x

10.2307/2529944

10.1093/geront/45.6.812

10.1177/0272989X06286482

10.1093/geronb/63.2.S81

Renal Physicians Association and American Society of Nephrology, 2000, Shared decision‐making in the appropriate initiation of and withdrawal from dialysis: Clinical practice guideline No. 2

10.1097/00006199-199309000-00008

Sackett D.L., 1997, Evidence‐based medicine, 10.1016/S0146-0005(97)80013-4

10.2105/AJPH.93.10.1713

10.1002/nur.1025

Song M., Effects of an intervention to improve communication about end‐of‐life care among African Americans with chronic kidney disease: A pilot study, Applied Nursing Research.

10.1097/01.mlr.0000178192.10283.b4

10.1016/j.pec.2005.05.003

10.1093/sw/46.2.125

10.1016/0002-9343(94)90170-8

10.1016/S0885-3924(01)00331-1

10.1001/jama.294.3.359

10.1007/BF02599915

U.S. Renal Data System, 2007, USRDS 2007 Annual data report: Atlas of end‐stage renal disease in the United States

10.1093/geronj/43.5.M115

Ware J., 2002, How to score version 2 of the SF‐12 Health Survey (with a supplement documenting version 1)

10.1016/j.jpainsymman.2003.07.004

10.1001/archinte.168.19.2125