Health-related quality of life in adolescents at the time of diagnosis with osteosarcoma or acute myeloid leukemia

European Journal of Oncology Nursing - Tập 13 Số 3 - Trang 156-163 - 2009
Pamela S. Hinds1, Catherine A. Billups2, Xueyuan Cao3, Jami S. Gattuso2, Elizabeth Burghen2, Nancy K. West2, Jeffrey E. Rubnitz2, Najat C. Daw4
1Division of Nursing Research, St. Jude Children's Research Hospital, Memphis, TN 38105, USA.
2St. Jude Children Research Hospital
3Department of Biostatistics, St. Jude Children's Research Hospital, Memphis, TN 38105, USA
4Department of Oncology, St. Jude Children’s Research Hospital, Memphis, TN 38105, USA

Tóm tắt

Từ khóa


Tài liệu tham khảo

Bhat, 2005, Profile of daily life in children with brain tumors: an assessment of health-related quality of life, Journal of Clinical Oncology, 23, 5493, 10.1200/JCO.2005.10.190

Bhatia, 2005, Late mortality in survivors of autologous hematopoietic-cell transplantation: report from the bone marrow transplant survivor study, Blood, 105, 4215, 10.1182/blood-2005-01-0035

Bleyer, 2007, Young adult oncology: the patients and their survival challenges, CA: A Cancer Journal for Clinicians, 57, 242, 10.3322/canjclin.57.4.242

Chang, 2005, Agreement between child self-report and parent proxy-report to evaluate quality of life in children with cancer, Psycho-Oncology, 14, 125, 10.1002/pon.828

Christ, 1995, Psychosocial adaptation of long-term survivors of bone sarcoma, Journal of Psychosocial Oncology, 13, 1, 10.1300/J077V13N04_01

Earle, 2005, ‘He never liked sport anyway’ – Mother's views of young people coping with a bone tumor of the lower limb, Sarcoma, 9, 7, 10.1080/13577140500043823

Eiser, 2000, Social comparisons and quality of life among survivors of childhood cancer and their mothers, Psychology and Health, 15, 435, 10.1080/08870440008402004

Eiser, 2007, Measuring quality of life, Archives of Disease in Childhood, 92, 348, 10.1136/adc.2005.086405

Frances, 2007, What is quality of life in children with bone sarcoma?, Clinical Orthopaedics and Related Research, 10.1097/BLO.0b013e31804f545d

Gerharz, 2003, Current approaches to assessing the quality of life in children and adolescents, British Journal of Urology, 91, 150, 10.1046/j.1464-410X.2003.04001.x

Greenberg, 1994, Quality of life in osteosarcoma survivors, Oncology, 8, 19

Hinds, 1990, Quality of life in children and adolescents experiencing cancer, Seminars in Oncology Nursing, 6, 285, 10.1016/0749-2081(90)90031-Y

Hinds, 2005, Advances in defining, conceptualizing and measuring quality of life in pediatric oncology patients, Oncology Nursing Forum, 33, 23

Hinds, 2004, Quality of life as conveyed by pediatric patients with cancer, Journal of Quality of Life Research, 13, 761, 10.1023/B:QURE.0000021697.43165.87

Hinds, 2000, An evaluation of the impact of a self-care coping intervention on psychological and clinical outcomes in adolescents with newly diagnosed cancer, European Journal of Oncology of Nursing, 4, 6, 10.1054/ejon.1999.0051

Hinds, 2002, Is clinical relevance sometimes lost in summative scores?, Western Journal of Nursing Research, 24, 345, 10.1177/01945902024004004

Hutchings, 2007, Adaptation of the Manchester–Minneapolis quality of life instrument for use in the UK population, Archives of Disease in Childhood, 92, 855, 10.1136/adc.2006.098947

Koopman, 2005, Health-related quality of life and coping strategies of children after treatment of a malignant bone tumor: a 5-year follow-up study, Pediatric Blood and Cancer, 45, 694, 10.1002/pbc.20408

Marchese, 2004, An examination of outcome measures to assess functional mobility in childhood survivors of osteosarcoma, Pediatric Blood and Cancer, 42, 41, 10.1002/pbc.10462

Meeske, 2004, Parent proxy-reported health-related quality of life and fatigue in pediatric patients diagnosed with brain tumors and acute lymphoblastic leukemia, Cancer, 101, 2116, 10.1002/cncr.20609

Nagarajan, 2004, Function and quality-of-life of survivors of pelvic and lower extremity osteosarcoma and Ewing's sarcoma: the childhood cancer survivor study, British Journal of Cancer, 91, 1858, 10.1038/sj.bjc.6602220

Nathan, 2004, Challenges to the measurement of health-related quality of life in children receiving cancer therapy, Pediatric Blood and Cancer, 43, 215, 10.1002/pbc.20096

Palmer, 2007, The PedsQL brain tumor module: initial reliability and validity, Pediatric Blood and Cancer, 49, 287, 10.1002/pbc.21026

Parsons, 1999, Health-related quality of life in pediatric bone marrow transplant survivors: according to whom?, International Journal of Cancer, 12, 46, 10.1002/(SICI)1097-0215(1999)83:12+<46::AID-IJC9>3.0.CO;2-C

Perkins, 2007, Long-term follow-up of children who underwent hematopoietic cell transplant (HCT) for AML or ALL at less than 3 years of age, Pediatric Blood and Cancer, 49, 958, 10.1002/pbc.21207

Razzouk, 2006, Double-blind, placebo-controlled study of quality of life, hematologic end points, and safety of weekly epoetin alfa in children with cancer receiving myelosuppressive chemotherapy, Journal of Clinical Oncology, 24, 3583, 10.1200/JCO.2005.03.4371

Reinfjell, 2007, Health-related quality of life and intellectual functioning in children in remission from acute lymphoblastic leukemia, Acta Paediatrica, 96, 1280, 10.1111/j.1651-2227.2007.00383.x

Tabone, 2005, Quality of life of patients treated during childhood for a bone tumor: assessment by the child health questionnaire, Pediatric Blood and Cancer, 45, 207, 10.1002/pbc.20297

Varni, 2004, The PedsQL in pediatric cancer pain: a prospective longitudinal analysis of pain and emotional distress, Journal of Development and Behavioral Pediatrics, 25, 239, 10.1097/00004703-200408000-00003

Varni, 2006, The PedsQL 4.0 as a school population health measure: feasibility, reliability and validity, Quality of Life Research, 15, 203, 10.1007/s11136-005-1388-z

Varni, 2007, How young children reliably and validly self-report their health-related quality of life? An analysis of 8591 children across age subgroups with the PedsAL 4.0 generic core scales, Health and Quality of Life Outcomes

Varni, 2007, Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL 4.0 generic core scales, Health and Quality of Life Outcomes, 5

Varni, 2002, The PedsQL 4.0 generic core scales: sensitivity, responsiveness, and impact on clinical decision-making, Journal of Behavioral Medicine, 25, 175, 10.1023/A:1014836921812