From Admission to Death: Prevalence and Course of Pain, Agitation, and Shortness of Breath, and Treatment of These Symptoms in Nursing Home Residents With Dementia

van der Steen, 2014, White paper defining optimal palliative care in older people with dementia: A Delphi study and recommendations from the European Association for Palliative Care, Palliat Med, 28, 197, 10.1177/0269216313493685 Houttekier, 2010, Place of death of older persons with dementia. A study in five European countries, J Am Geriatr Soc, 58, 751, 10.1111/j.1532-5415.2010.02771.x Mitchell, 2005, A national study of the location of death for older persons with dementia, J Am Geriatr Soc, 53, 299, 10.1111/j.1532-5415.2005.53118.x van der Steen, 2010, Dying with dementia: What we know after more than a decade of research, J Alzheimers Dis, 22, 37, 10.3233/JAD-2010-100744 Mitchell, 2009, The clinical course of advanced dementia, N Engl J Med, 361, 1529, 10.1056/NEJMoa0902234 Zuidema, 2007, Prevalence of neuropsychiatric symptoms in a large sample of Dutch nursing home patients with dementia, Int J Geriatr Psychiatry, 22, 632, 10.1002/gps.1722 Selbaek, 2007, The prevalence of psychiatric symptoms and behavioural disturbances and the use of psychotropic drugs in Norwegian nursing homes, Int J Geriatr Psychiatry, 22, 843, 10.1002/gps.1749 Corbett, 2012, Assessment and treatment of pain in people with dementia, Nat Rev Neurol, 8, 264, 10.1038/nrneurol.2012.53 Achterberg, 2013, Pain management in patients with dementia, Clin Interv Aging, 8, 1471, 10.2147/CIA.S36739 Selbaek, 2014, The course of neuropsychiatric symptoms in nursing-home patients with dementia over a 53-month follow-up period, Int Psychogeriatr, 26, 81, 10.1017/S1041610213001609 Zuidema, 2009, Predictors of neuropsychiatric symptoms in nursing home patients: Influence of gender and dementia severity, Int J Geriatr Psychiatry, 24, 1079, 10.1002/gps.2225 Pieper, 2013, Interventions targeting pain or behaviour in dementia: A systematic review, Ageing Res Rev, 12, 1042, 10.1016/j.arr.2013.05.002 Husebo, 2014, The response of agitated behavior to pain management in persons with dementia, Am J Geriatr Psychiatry, 22, 708, 10.1016/j.jagp.2012.12.006 Ahn, 2013, The relationship between pain and disruptive behaviors in nursing home residents with dementia, BMC Geriatr, 13, 14, 10.1186/1471-2318-13-14 Husebo, 2011, Pain treatment of agitation in patients with dementia: A systematic review, Int J Geriatr Psychiatry, 26, 1012, 10.1002/gps.2649 van der Steen, 2014, Retrospective and prospective data collection compared in the Dutch End of Life in Dementia (DEOLD) study, Alzheimer Dis Assoc Disord, 28, 88, 10.1097/WAD.0b013e318293b380 Hendriks, 2014, Dying with dementia: Symptoms, treatment, and quality of life in the last week of life, J Pain Symptom Manage, 47, 710, 10.1016/j.jpainsymman.2013.05.015 Wetzels, 2010, Course of neuropsychiatric symptoms in residents with dementia in long-term care institutions: A systematic review, Int Psychogeriatr, 22, 1040, 10.1017/S1041610210000918 McKhann, 1984, Clinical diagnosis of Alzheimer's disease: Report of the NINCDS-ADRDA Work Group under the auspices of Department of Health and Human Services Task Force on Alzheimer's Disease, Neurology, 34, 939, 10.1212/WNL.34.7.939 Roman, 1993, Vascular dementia: Diagnostic criteria for research studies. Report of the NINDS-AIREN International Workshop, Neurology, 43, 250, 10.1212/WNL.43.2.250 McKeith, 1996, Consensus guidelines for the clinical and pathologic diagnosis of dementia with Lewy bodies (DLB): Report of the consortium on DLB international workshop, Neurology, 47, 1113, 10.1212/WNL.47.5.1113 Dutch Geriatrics Society. CBO: [in Dutch] Guideline diagnostics and pharmacological treatment of dementia. 2012. Available at: http://www.platformouderenzorg.nl/uploads/files/guidelines/dementie1.pdf. Accessed January 29, 2015. Reisberg, 1982, The Global Deterioration Scale for assessment of primary degenerative dementia, Am J Psychiatry, 139, 1136, 10.1176/ajp.139.9.1136 Morris, 1994, MDS cognitive performance scale, J Gerontol, 49, M174, 10.1093/geronj/49.4.M174 Scherder, 2003, Pain processing in dementia and its relation to neuropathology, Lancet Neurol, 2, 677, 10.1016/S1474-4422(03)00556-8 Husebo, 2008, Who suffers most? dementia and pain in nursing home patients: A cross-sectional study, J Am Med Dir Assoc, 9, 427, 10.1016/j.jamda.2008.03.001 Verenso, the Dutch Association of Elderly Care Physicians and Social Geriatricians. Guideline: pain [in Dutch]. 2008. Available at: http://www.verenso.nl/assets/Uploads/Downloads/Richtlijnen/VERRichtlijnPijnDeel1web.pdf. Accessed October 20, 2014. Ballard, 2013, Agitation and aggression in people with Alzheimer's disease, Curr Opin Psychiatry, 26, 252, 10.1097/YCO.0b013e32835f414b Verenso, the Dutch Association of Elderly Care Physicians and Social Geriatricians. Guideline: behaviour problems [in Dutch]. 2008. Available at: http://www.verenso.nl/wat-doen-wij/vakinhoudelijke-producten/richtlijnen/probleemgedrag. Accessed October 20, 2014. Ballard, 2009, Management of agitation and aggression associated with Alzheimer disease, Nat Rev Neurol, 5, 245, 10.1038/nrneurol.2009.39 Schneider, 2006, Effectiveness of atypical antipsychotic drugs in patients with Alzheimer's disease, N Engl J Med, 355, 1525, 10.1056/NEJMoa061240 van Soest-Poortvliet, 2015, Comfort goal of care and end-of-life outcomes in dementia: a prospective study, Palliat Med, 10.1177/0269216315570409 Koopmans, 2010, Dutch elderly care physician: a new generation of nursing home physician specialists, J Am Geriatr Soc, 58, 1807, 10.1111/j.1532-5415.2010.03043.x Helton, 2006, A cross-cultural study of physician treatment decisions for demented nursing home patients who develop pneumonia, Ann Fam Med, 4, 221, 10.1370/afm.536