Examining the caregiver burden of parents whose children have type 1 diabetes

Barnard K, Thomas S, Royle P, Noyes K, Waugh N (2010) Fear of hypoglycemia of the parents whose children diagnosed with type 1 diabetes: a systematic review. BMC Pediatrics 10(1):1–8. http://www.biomedcentral.com/1471-2431/10/50. Accessed 20 Aug 2021

Bowes S, Lowes L, Warner J, Gregory JW (2009) Chronic sorrow in parents of children with type 1 diabetes. J Adv Nurs 65(5):992–1000. https://doi.org/10.1111/j.1365-2648.2009.04963.x

Commissariat PV, Harrington KR, Whitehouse AL, Miller KM, Hilliard ME, Van Name M, Laffel LM (2020) “I'm essentially his pancreas”: parent perceptions of diabetes burden and opportunities to reduce burden in the care of children < 8 years old with type 1 diabetes. Pediatr Diabetes 21(2):377–383. https://doi.org/10.1111/pedi.12956

Di Meglio LA, Evans-Molina C, Oram RA (2018) Type 1 diabetes. Lancet 391(10138):2449–2462. https://doi.org/10.1016/S0140-6736(18)31320-5

Er M (2006) Child, disease, parents and siblings. J Child Healthcare Diseases 49(2):155–168. https://www.cshd.org.tr/uploads/pdf_CSH_206.pdf. Accessed 12 Jul 2021

Erdem E, Korkmaz Z, Tosun Ö, Özlem A, Nevin U, Bayat M (2013) Caregiver’s burden of mothers whose children have chronic disease. J Health Sci 22(2):150–157 (In Turkish with English abstract). https://dergipark.org.tr/en/download/article-file/693537

Fındıkkıran G, Cigdem Z (2020) Assessing parents who have type 1 Diabetes from the perspective of vulnerable child syndrome, Unpublished postgraduate thesis, Hasan Kalyoncu University, Faculty of Health Sciences. https://tez.yok.gov.tr/UlusalTezMerkezi/tezDetay.jsp?id=5q_wE_l2M_pE29WWyw3PQ&no=plv9yJptDXNTYwcf3PK3hQ. Accessed 11 Aug 2021

Ginsburg KR, Howe CJ, Jawad AF, Buzby M, Ayala JM, Tuttle A, Murphy K (2005) Parents’ perceptions of factors that affect successful diabetes management for their children. Pediatrics 116(5):1095–1104. https://doi.org/10.1542/peds.2004-1981

Harrington KR, Boyle CT, Miller KM, Hilliard ME, Anderson BJ, Van Name M, Laffel LM (2017) Management and family burdens endorsed by parents of youth < 7 years old with type 1 diabetes. J Diabetes Sci Technol 11(5):980–987. https://doi.org/10.1177/19322968177219

Haugstvedt A, Wentzel-Larsen T, Rokne B, Graue M (2011) Perceived family burden and emotional distress: similarities and differences between mothers and fathers of children with type 1 diabetes in a population-based study. Pediatr Diabetes 12(2):107–114. https://doi.org/10.1111/j.1399-5448.2010.00661.x

Herbert LJ, Clary L, Owen V, Monaghan M, Alvarez V, Streisand R (2015a) Relations among school/daycare functioning, fear of hypoglycemia and quality of life in parents of young children with type 1 diabetes. J Clin Nurs 24(9–10):1199–1209. https://doi.org/10.1111/jocn.12658

Herbert LJ, Monaghan M, Cogen F, Streisand R (2015b) The impact of parents' sleep quality and hypoglycemia worry on diabetes self-efficacy. Behav Sleep Med 13(4):308–323. https://doi.org/10.1080/15402002.2014.898303

İnci FH, Erdem M (2008) Adaptation of Caregiver Burden Scale to Turkish

validity and reliability. Atatürk Univ J Nurs College 11(4):85-95. https://dergipark.org.tr/en/download/article-file/29438. Accessed 10 Aug 2021

Keklik D, Bayat M, Başdaş Ö (2020) Care burden and quality of life in mothers of children with type 1 diabetes mellitus. Int J Diabetes Developing Countries 1-5. https://doi.org/10.1007/s13410-020-00799-3

Kobos E, Imiela J (2015) Factors affecting the level of burden of caregivers of children with type 1 diabetes. Appl Nurs Res 28(2):142–149. https://doi.org/10.1016/j.apnr.2014.09.008

Lindley LC, Mark BA (2010) Children with special health care needs: impact of health care expenditures on family financial burden. J Child Fam Stud 19(1):79–89. https://doi.org/10.1007/s10826-009-9286-6

Malerbi FEK, Negrato CA, Gomes MB (2012) Assessment of psychosocial variables by parents of youth with type 1 diabetes mellitus. Diabetol Metab Syndrome 4(1):1–10. http://www.dmsjournal.com/content/4/1/48. Accessed 12 Aug 2021

Moreira H, Frontini R, Bullinger M, Canavarro MC (2013) Caring for a child with type 1 diabetes: links between family cohesion, perceived impact, and parental adjustment. J Fam Psychol 27(5):731. https://doi.org/10.1037/a0034198

Müller-Godeffroy E, Treichel S, Wagner VM, German Working Group for Paediatric Pump Therapy (2009) Investigation of quality of life and family burden issues during insulin pump therapy in children with type 1 diabetes mellitus—a large-scale multicentre pilot study. Diabet Med 26(5):493–501. https://doi.org/10.1111/j.1464-5491.2009.02707.x

Patton SR, Dolan LM, Smith LB, Thomas IH, Powers SW (2011) Pediatric parenting stress and its relation to depressive symptoms and fear of hypoglycemia in parents of young children with type 1 diabetes mellitus. J Clin Psychol Med Settings 18(4):345–352. https://doi.org/10.1007/s10880-011-9256-1

Piazza-Waggoner C, Modi AC, Powers SW, Williams LB, Dolan LM, Patton SR (2008) Observational assessment of family functioning in families with children who have type 1 diabetes mellitus. J Dev Behav Pediatr 29(2):101–105. https://doi.org/10.1097/DBP.0b013e31815f24ce

Smaldone A, Ritholz MD (2011) Perceptions of parenting children with type 1 diabetes diagnosed in early childhood. J Pediatr Health Care 25(2):87–95. https://doi.org/10.1016/j.pedhc.2009.09.003

Whittemore R, Jaser S, Chao A, Jang M, Grey M (2012) Psychological experienceof parents of children with type 1 diabetes: a systematic mixed-studies review. Diab Educ 38:562–579. https://doi.org/10.1177/0145721712445216

Zarit SH, Reever KE, Bach-Peterson J (1980) Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist 20:649–655. https://doi.org/10.1093/geront/20.6.649