European Summit on the Prevention and Self-Management of Chronic Respiratory Diseases: report of the European Union Parliament Summit (29 March 2017)

Wiley - Tập 7 - Trang 1-10 - 2017
Peter W. Hellings1,2, David Borrelli3, Sirpa Pietikainen4, Ioana Agache5, Cezmi Akdis6,7, Claus Bachert8, Michael Bewick9, Erna Botjes10, Jannis Constantinidis11, Wytske Fokkens2, Tari Haahtela12, Claire Hopkins13, Maddalena Illario14, Guy Joos15, Valerie Lund16, Antonella Muraro17, Benoit Pugin18, Sven Seys18,19, David Somekh20, Pär Stjärne21, Arunas Valiulis22,23, Erkka Valovirta24, Jean Bousquet25,26,27
1Department of Otorhinolaryngology, University Hospitals Leuven, KU Leuven, Louvain, Belgium
2Department of Otorhinolaryngology, Academic Medical Center, Amsterdam, The Netherlands
3Italian Member of the European Parliament, EFDD Group, Brussels, Belgium
4Finnish Member of the European Parliament, Brussels, Belgium
5Faculty of Medicine, Transylvania University, Brasov, Romania
6Swiss Institute of Allergy and Asthma Research (SIAF), University of Zurich, Davos, Switzerland
7Christine Kühne - Center for Allergy Research and Education (CK-CARE), Davos, Switzerland
8Upper Airways Research Laboratory, ENT Department, Ghent University Hospital, Ghent, Belgium
9Q4U Consultants Ltd, London, UK
10EFA - European Federation of Allergy and Airways Diseases Patients’ Associations, Brussels, Belgium
111st Department of ORL, Head and Neck Surgery, Aristotle University, Thessaloníki, Greece
12Skin and Allergy Hospital, Helsinki University Hospital, Helsinki, Finland
13ENT Department, Guy’s and St Thomas’ Hospitals, London, UK
14Division for Health Innovation, Campania Region and Federico II University Hospital Naples (R&D and DISMET), Naples, Italy
15Department of Respiratory Medicine, Ghent University Hospital, Ghent, Belgium
16Royal National Throat, Nose and Ear Hospital, University College London Hospitals, London, UK.
17Food Allergy Referral Centre Veneto Region, Department of Women and Child Health, Padua General University Hospital, Padua, Italy
18European Forum for Research and Education in Allergy and Airway Diseases (EUFOREA), Brussels, Belgium
19Lab of Clinical Immunology, Department of Immunology and Microbiology, KU Leuven, Brussels, Belgium
20European Health Futures Forum (EHFF), Isle of Wright, UK
21Rhinology Department of Otorhinolaryngology, Karolinska University Hospital, Stockholm, Sweden
22Vilnius University Clinic of Children’s Diseases and Public Health Institute, Vilnius, Lithuania
23European Academy of Paediatrics (EAP/UEMS-SP), Brussels, Belgium
24Department of Lung Diseases and Clinical Allergology, Univ. of Turku, and Allergy Clinic, Terveystalo, Turku, Finland
25MACVIA-France, Contre les Maladies Chroniques Pour un VIeillissement Actif en France European Innovation Partnership on Active and Healthy Ageing Reference Site, Montpellier, France
26INSERM U 1168, VIMA: Ageing and Chronic Diseases Epidemiological and Public Health Approaches, UMR-S 1168, Université Versailles St-Quentin-en-Yvelines, Villejuif, Montigny le Bretonneux, France
27EUFOREA aisbl, Brussels, Belgium

Tóm tắt

On March 29, 2017, a European Summit on the Prevention and Self-Management of Chronic Respiratory Diseases (CRD) was organized by the European Forum for Research and Education in Allergy and Airway Diseases. The event took place in the European Parliament of Brussels and was hosted by MEP David Borrelli and MEP Sirpa Pietikainen. The aim of the Summit was to correspond to the needs of the European Commission and of patients suffering from CRD to join forces in Europe for the prevention and self-management. Delegates of the European Rhinologic Society, European Respiratory Society, European Academy of Allergy and Clinical Immunology, European Academy of Paediatrics, and European Patients Organization EFA all lectured on their vision and action plan to join forces in achieving adequate prevention and self-management of CRD in the context of Precision Medicine. Recent data highlight the preventive capacity of education on optimal care pathways for CRD. Self-management and patient empowerment can be achieved by novel educational on-line materials and by novel mobile health tools enabling patients and doctors to monitor and optimally treat CRDs based on the level of control. This report summarizes the contributions of the representatives of different European academic stakeholders in the field of CRD.

Tài liệu tham khảo

2008–2013 Action plan for the global strategy for the prevention and control of non communicable diseases. Prevent and control cardiovascular diseases, cancers, Chronic Respiratory Diseases, diabetes. 2008. http://www.who.int/nmh/Actionplan-PC-NCD-2008.pdf.

Bousquet J, Anto JM, Berkouk K, Gergen P, Antunes JP, Augé P, et al. Developmental determinants in non-communicable chronic diseases and ageing. Thorax. 2015;70(6):595–7.

Samoliński B, Fronczak A, Włodarczyk A, Bousquet J. Council of the European Union conclusions on Chronic Respiratory Diseases in children. Lancet. 2012;379(9822):e45–6.

Hastan D, Fokkens WJ, Bachert C, Newson RB, Bislimovska J, Bockelbrink A, et al. Chronic rhinosinusitis in Europe-an underestimated disease. A GA2LEN study. Allergy. 2011;66(9):1216–23.

Jarvis D, Newson R, Lotvall J, Hastan D, Tomassen P, Keil T, et al. Asthma in adults and its association with chronic rhinosinusitis: the GA2LEN survey in Europe. Allergy. 2012;67(1):91–8.

Samoliński B, Fronczak A, Kuna P, Akdis CA, Anto JM, Bialoszewski AZ, et al. Prevention and control of childhood asthma and allergy in the EU from the public health point of view: Polish Presidency of the European Union. Allergy. 2012;67(6):726–31.

Council conclusions on prevention, early diagnosis and treatment of Chronic Respiratory Diseases in children: 31st EMPLOYMENT, SOCIAL POLICY, HEALTH and CONSUMER AFFAIRS Council meeting Brussels, 1 and 2 December 2011. Council of the European Union. 2011. http://www.consilium.europa.eu/.

Bousquet J, Tanasescu CC, Camuzat T, Anto JM, Blasi F, Neou A, et al. Impact of early diagnosis and control of Chronic Respiratory Diseases on active and healthy ageing. A debate at the European Union Parliament. Allergy. 2013;68(5):555–61.

Muraro A, Fokkens WJ, Pietikainen S, Borrelli D, Agache I, Bousquet J, et al. European symposium on precision medicine in allergy and airways diseases: report of the European Union parliament symposium (October 14, 2015). Allergy. 2016;71(5):583–7.

Bousquet J, Dahl R, Khaltaev N. Global alliance against Chronic Respiratory Diseases. Allergy. 2007;62(3):216–23.

Bousquet J, Jorgensen C, Dauzat M, Cesario A, Camuzat T, Bourret R, et al. Systems medicine approaches for the definition of complex phenotypes in chronic diseases and ageing. From concept to implementation and policies. Curr Pharm Des. 2014;20(38):5928–44.

Hellings PW, Fokkens WJ, Akdis C, Bachert C, Cingi C, Dietz de Loos D, et al. Uncontrolled allergic rhinitis and chronic rhinosinusitis: where do we stand today? Allergy. 2013;68(1):1–7.

Hellings PW, Fokkens WJ, Bachert C, Akdis CA, Bieber T, Agache I, et al. Positioning the principles of precision medicine in care pathways for allergic rhinitis and chronic rhinosinusitis: an EUFOREA-ARIA-EPOS-AIRWAYS ICP statement. Allergy. 2017. https://doi.org/10.1111/all.13162.

Bousquet J, Van Cauwenberge P, Khaltaev N, Aria Workshop Group, World Health Organization. Allergic rhinitis and its impact on asthma. J Allergy Clin Immunol. 2001;108(5 Suppl):147–334.

Bousquet J, Khaltaev N, Cruz AA, Denburg J, Fokkens WJ, Togias A, et al. Allergic Rhinitis and its Impact on Asthma (ARIA) 2008 update (in collaboration with the World Health Organization, GA(2)LEN and AllerGen). Allergy. 2008;63(Suppl 86):8–160.

Bousquet J, Schünemann HJ, Samolinski B, Demoly P, Baena-Cagnani CE, Bachert C, et al. Allergic Rhinitis and its Impact on Asthma (ARIA): achievements in 10 years and future needs. J Allergy Clin Immunol. 2012;130(5):1049–62.

Bousquet J, Mercier J, Avignon A, Bourret R, Camuzat T. MACVIA-LR (France) case study. Report EUR 27150 EN. In: Strategic intelligence monitor on personal health systems Phase 3 (SIMPHS3) JRC94487 Luxembourg: Publications Office of the European Union: JRC (Joint Research Centre) Science and policy report. Abadie F, editor. 2015. https://ec.europa.eu/jrc.

Bousquet J, Schunemann HJ, Fonseca J, Samolinski B, Bachert C, Canonica GW, et al. MACVIA-ARIA Sentinel NetworK for allergic rhinitis (MASK-rhinitis): the new generation guideline implementation. Allergy. 2015;70(11):1372–92.

Bousquet J, Hellings PW, Agache I, Bedbrook A, Bachert C, Bergmann KC, et al. ARIA 2016: care pathways implementing emerging technologies for predictive medicine in rhinitis and asthma across the life cycle. Clin Transl Allergy. 2016;6:47.

Hellings P, Akdis C, Bachert C, Bousquet J, Pugin B. EUFOREA Rhinology Research Forum 2016: report of the brainstorming sessions on needs and priorities in rhinitis and rhinosinusitis. Rhinology. 2017;55:202.

Haahtela T, Herse F, Karjalainen J, Klaukka T, Linna M, Leskelä R-L, et al. The Finnish experience to save asthma costs by improving care in 1987–2013. J Allergy Clin Immunol. 2017;139(2):408–14.

Haahtela T, von Hertzen L, Mäkelä M, Hannuksela M, Allergy Programme Working Group. Finnish Allergy Programme 2008–2018–time to act and change the course. Allergy. 2008;63(6):634–45.

von Hertzen LC, Savolainen J, Hannuksela M, Klaukka T, Lauerma A, Mäkelä MJ, et al. Scientific rationale for the Finnish Allergy Programme 2008–2018: emphasis on prevention and endorsing tolerance. Allergy. 2009;64(5):678–701.

Haahtela T, Valovirta E, Bousquet J, Mäkelä M, Allergy Programme Steering Group. The Finnish Allergy Programme 2008–2018 works. Eur Respir J. 2017. https://doi.org/10.1183/13993003.00470-2017.

Duijts L, Reiss IK, Brusselle G, de Jongste JC. Early origins of chronic obstructive lung diseases across the life course. Eur J Epidemiol. 2014;29(12):871–85.

Bloomfield SF, Rook GA, Scott EA, Shanahan F, Stanwell-Smith R, Turner P. Time to abandon the hygiene hypothesis: new perspectives on allergic disease, the human microbiome, infectious disease prevention and the role of targeted hygiene. Perspect Public Health. 2016;136(4):213–24.

Bousquet J, Barbara C, Bateman E, Bel E, Bewick M, Chavannes NH, et al. AIRWAYS-ICPs (European Innovation Partnership on Active and Healthy Ageing) from concept to implementation. Eur Respir J. 2016;47(4):1028–33.

Kerkhof M, Boezen HM, Granell R, Wijga AH, Brunekreef B, Smit HA, et al. Transient early wheeze and lung function in early childhood associated with chronic obstructive pulmonary disease genes. J Allergy Clin Immunol. 2014;133(1):68–76.

Hadjipanayis A, Stiris T, Del Torso S, Mercier J-C, Valiulis A, Ludvigsson J. Europe needs to protect children and youths against secondhand smoke. Eur J Pediatr. 2017;176(1):145–6.

Blumenthal D. Stimulating the adoption of health information technology. N Engl J Med. 2009;360(15):1477–9.

Agache I, Akdis CA. Endotypes of allergic diseases and asthma: An important step in building blocks for the future of precision medicine. Allergol Int. 2016;65(3):243–52.

Guilleminault L, Ouksel H, Belleguic C, Le Guen Y, Germaud P, Desfleurs E, et al. Personalised medicine in asthma: from curative to preventive medicine. Eur Respir Rev. 2017;26(143):160010.

Hox V, Steelant B, Fokkens W, Nemery B, Hellings PW. Occupational upper airway disease: how work affects the nose. Allergy. 2014;69(3):282–91.

Hox V, Delrue S, Scheers H, Adams E, Keirsbilck S, Jorissen M, et al. Negative impact of occupational exposure on surgical outcome in patients with rhinosinusitis. Allergy. 2012;67(4):560–5.

European Academy of Allergy and Clinical Immunology. Global atlas of asthma. Zurich: European Academy of Allergy and Clinical Immunology; 2013.

European Academy of Allergy and Clinical Immunology. Global atlas of allergic rhinitis and chronic rhinosinusitis. Zurich: European Academy of Allergy and Clinical Immunology; 2014.

Steelant B, Farré R, Wawrzyniak P, Belmans J, Dekimpe E, Vanheel H, et al. Impaired barrier function in patients with house dust mite–induced allergic rhinitis is accompanied by decreased occludin and zonula occludens-1 expression. J Allergy Clin Immunol. 2016;137(4):1043–53.

Soyka MB, Wawrzyniak P, Eiwegger T, Holzmann D, Treis A, Wanke K, et al. Defective epithelial barrier in chronic rhinosinusitis: the regulation of tight junctions by IFN-γ and IL-4. J Allergy Clin Immunol. 2012;130(5):1087–96.

Muraro A, Lemanske RF, Hellings PW, Akdis CA, Bieber T, Casale TB, et al. Precision medicine in patients with allergic diseases: Airway diseases and atopic dermatitis-PRACTALL document of the European Academy of Allergy and Clinical Immunology and the American Academy of Allergy, Asthma and Immunology. J Allergy Clin Immunol. 2016;137(5):1347–58.

Canonica GW, Bachert C, Hellings P, Ryan D, Valovirta E, Wickman M, et al. Allergen Immunotherapy (AIT): a prototype of precision medicine. World Allergy Organ J. 2015;8(1):31.

Galli SJ. Toward precision medicine and health: opportunities and challenges in allergic diseases. J Allergy Clin Immunol. 2016;137(5):1289–300.

Browne JP, Hopkins C, Slack R, Topham J, Reeves B, Lund V, et al. Health-related quality of life after polypectomy with and without additional surgery. Laryngoscope. 2006;116(2):297–302.

Hopkins C, Rimmer J, Lund VJ. Does time to endoscopic sinus surgery impact outcomes in chronic rhinosinusitis? Prospective findings from the National Comparative Audit of Surgery for Nasal Polyposis and Chronic Rhinosinusitis. Rhinology. 2015;53(1):10–7.

Bousquet J, Farrell J, Crooks G, Hellings P, Bel EH, Bewick M, et al. Scaling up strategies of the chronic respiratory disease programme of the European Innovation Partnership on Active and Healthy Ageing (Action Plan B3: Area 5). Clin Transl Allergy. 2016;6:29.

Fonseca JA, Nogueira-Silva L, Morais-Almeida M, Azevedo L, Sa-Sousa A, Branco-Ferreira M, et al. Validation of a questionnaire (CARAT10) to assess rhinitis and asthma in patients with asthma. Allergy. 2010;65(8):1042–8.

Thông tin
Thông tin xuất bản

Wiley

Tập 7

1-10

Thông tin tác giả