Disability prevalence: comparing four types of disability measures in the community

Springer Science and Business Media LLC - Tập 28 Số 1
G. Shankar Ganesh1, Garima Gedamkar2, Meet Alpeshkumar Rami2, Milan Dipakkumar Patel2, Deep Pankajbhai Patel2
1Physiotherapy, Composite Regional Center for Skill Development, Rehabilitation, and Empowerment of Persons With Disabilities (CRC), Lucknow, India
2Ashok & Rita Patel Institute of Physiotherapy, CHARUSAT, Anand, India

Tóm tắt

Abstract Background There is no general consensus on how to measure disability and disability prevalence rates. The results of previous estimates could not be compared due to the varied nature of the methodologies used and the lack of standardization in the measurement of disability. The primary objective of the study was to estimate the prevalence of disability using a population-based disability survey and questions selected by the National Center for Promotion of Employment for Disabled People (NCPEDP). The secondary objective is to determine whether there was any relationship between the severity of disability and essential sociodemographic factors. The survey was carried out in the Indian state of Gujarat’s Piplag village. Eight final-year physiotherapy students gathered sociodemographic data and answers to the four disability-related questions—disability question asked in India census 2011, Washington Group (WG)-suggested question, United Nations Convention on the Rights of Persons with Disabilities (UNCRPD)-based question, and National Sample Survey Organization (NSSO)-based question. Results A greater percentage of the population was classified as having a functional limitation in the questions based on the UNCRPD (28.29%) (95% CI 25.1–31.3%) and the WG (29.69%) (95% CI 26.0–34.4%). Our findings demonstrated that there were significant relationships between the questions in different questionnaires (p < 0.01). Female gender strongly influences how people self-identify as having a disability (by 5.7 to 12.07 times), and the predictor variables based on the Indian census 2011 questions explained 61.7% of the variation in prevalence of disability. Conclusions The prevalence statistics may vary based on the questions used to gather information about disabilities. As gender and socioeconomic status can impact the prevalence of disabilities, it is important to focus on ways to improve economic growth, especially for women.

Từ khóa


Tài liệu tham khảo

Scheer J, Groce N. Impairment as a human constant: cross-cultural and historical perspectives on variation. J Soc Issues. 1988;44:23–37. https://doi.org/10.1111/j.1540-4560.1988.tb02046.x.

Bingham C, Clarke L, Michielsens E, Van De Meer M. Towards a social model approach? British and Dutch disability policies in the health sector compared. Pers Psychol. 2013;42(5):613–37. https://doi.org/10.1108/PR-08-2011-0120.

Barney KW. Disability simulations: using the social model of disability to update an experiential educational practice. SCHOLE. 2012;27:1, 1–11. https://doi.org/10.1080/1937156X.2012.11949361.

Le Boutillier C, Croucher A. Social inclusion and mental health. Br J Occup Ther. 2010;73(3):136–9. https://doi.org/10.4276/030802210X12682330090578.

Peterson DB. International classification of functioning, disability and health: an introduction for rehabilitation psychologists. Rehab Psychol. 2005;50(2):105–12. https://doi.org/10.1037/0090-5550.50.2.105.

World Health Organization. World report on disability 2011. Geneva: World Health Organization; 2011. ISBN 9241564180.

Hosseinpoor AR, Stewart Williams JA, Gautam J, Posarac A, Officer A, Verdes E, Kostanjsek N, Chatterji S. Socioeconomic inequality in disability among adults: a multicountry study using the World Health Survey. Am J Public Health. 2013;103(7):1278–86. https://doi.org/10.2105/AJPH.2012.301115.

Palmer M, Harley D. Models and measurement in disability: an international review. Health Policy Plan. 2012;27(5):357–64. https://doi.org/10.1093/heapol/czr047.

Sustainable development goals (SDGs) and disability | United Nations enable. (n.d.). Welcome to the United Nations; https://www.un.org/development/desa/disabilities/about-us/sustainable.development-goals-sdgs-and-disability.html. Accessed 30/09/2022.

National Sample Survey Organization. Disabled persons in India: NSS 58th Round. Report No. 485. New Delhi: Ministry of Statistics and Program Implementation, Government of India. 2002.

Census of India website: Office of the Registrar General & Census Commissioner, India. (2001). Census of India Website : Office of the Registrar General & Census Commissioner, India. https://censusindia.gov.in/2011census/C-series/c-20.html. Accessed 27/09/2022.

Ramadass S, Rai SK, Gupta SK, Kant S, Wadhwa S, Sood M, Sreenivas V. Prevalence of disability and its association with sociodemographic factors and quality of life in India: a systematic review. J Family Med Prim Care. 2018;7(6):1177–84. https://doi.org/10.4103/jfmpc.jfmpc_10_18.

Saikia N, Bora JK, Jasilionis D, Shkolnikov VM. Disability divides in India: evidence from the 2011 census. PLoS One. 2016;11(8):e0159809. https://doi.org/10.1371/journal.pone.0159809. Erratum in: PLoS One. 2017 Feb 15;12 (2):e0172596.

Simo Fotso A, Duthé G, Odimegwu C. A comparative analysis of disability measures in Cameroonian surveys. Popul Health Metrics. 2019;17:16. https://doi.org/10.1186/s12963-019-0198-4.

Van Brakel WH, Officer A. Approaches and tools for measuring disability in low and middle-income countries. Lepr Rev. 2008;79(Suppl 1):50–64.

Office of Registrar General & Census Commissioner of India. Census 2011 New Delhi: Ministry of Home Affairs; 2013. [cited 2022 September 01]. http://censusindia.gov.in/.

Kuppuswami B. Manual of Socio Economic Scale (urban) Delhi: Mansayan 32, Netaji Subhash Marg; 1981.

CSO (Central Statistical Office of Zambia), Census of population and housing. 2000. http://www.zamstats.gov.zm/dload/cen.asp. Accessed 29/03/2019.

Dupré D, Karjalainen A. Employment of disabled people in Europe in 2002. Eurostat, Statistics in Focus. Population and Social Conditions, Theme 3–26/2003. 2003.

M. Blekesaune. Have some European countries been more successful at employing disabled people than others? ISER Working paper 2007–23. University of Essex, Colchester. 2007.

Bourke JA, Nichols-Dunsmuir A, Begg A, Dong H, Schluter PJ. Measuring disability: an agreement study between two disability measures. Disabil Health J. 2021;14(2): 100995. https://doi.org/10.1016/j.dhjo.2020.100995.

Amilon A, Hansen KM, Kjær AA, Steffensen T. Estimating disability prevalence and disability-related inequalities: does the choice of measure matter? Soc Sci Med. 2021;272: 113740. https://doi.org/10.1016/j.socscimed.2021.113740.

Zambia National Data Archive Central Statistical Office. ZambiaÐ Census of population, housing and agriculture. 1990. http://www.zamstats.gov.zm/nada/index.php/catalog/30. Accessed 19/04/2019.

Von Korff M, Crane PK, Alonso J, Vilagut G, Angermeyer MC, Bruffaerts R, de Girolamo G, Gureje O, de Graaf R, Huang Y, Iwata N, Karam EG, Kovess V, Lara C, Levinson D, Posada-Villa J, Scott KM, Ormel J. Modified WHODAS-II provides valid measure of global disability but filter items increased skewness. J Clin Epidemiol. 2008;61(11):1132–43. https://doi.org/10.1016/j.jclinepi.2007.12.009.

Madans JH, Loeb ME, Altman BM. Measuring disability and monitoring the UN Convention on the Rights of Persons with Disabilities: the work of the Washington Group on Disability Statistics. BMC Public Health. 2011;S4. https://doi.org/10.1186/1471-2458-11-S4-S4.

Mont D. Measuring health and disability. Lancet. 2007;369(9573):1658–63. https://doi.org/10.1016/S0140-6736(07)60752-1.

Altman BM. Definitions, concepts, and measures of disability. Ann Epidemiol. 2014;24(1):2–7. https://doi.org/10.1016/j.annepidem.2013.05.018.

Ustun TB, Kostanjsek N, Chatterji S, Rehm J. Measuring health and disability: manual for WHO Disability Assessment Schedule (WHODAS 2.0). Geneva: World Health Organization. 2010.

Sabariego C, Oberhauser C, Posarac A, Bickenbach J, Kostanjsek N, Chatterji S, Officer A, Coenen M, Chhan L, Cieza A. Measuring disability: comparing the impact of two data collection approaches on disability rates. Int J Environ Res Public Health. 2015;12(9):10329–51. https://doi.org/10.3390/ijerph120910329.

Leonardi M, Bickenbach J, Ustun TB, Kostanjsek N, Chatterji S, MHADIE Consortium. The definition of disability: what is in a name? Lancet. 2006;368(9543):1219–21. https://doi.org/10.1016/S0140-6736(06)69498-1.

Loidl V, Oberhauser C, Ballert C, Coenen M, Cieza A, Sabariego C. Which environmental factors have the highest impact on the performance of people experiencing difficulties in capacity?. Int J Environ Res Public Health. 2016;13(4):416. Published 2016 Apr 12. https://doi.org/10.3390/ijerph13040416.

Barbotte E, Guillemin F, Chau N, Lorhandicap Group. Prevalence of impairments, disabilities, handicaps and quality of life in the general population: a review of recent literature. Bull World Health Organ. 2001;79(11):1047–55.

Murtagh KN, Hubert HB. Gender differences in physical disability among an elderly cohort. Am J Public Health. 2004;94(8):1406–11. https://doi.org/10.2105/ajph.94.8.1406.

Wray LA, Blaum CS. Explaining the role of sex on disability a population-based study. Gerontologist. 2001;41(Suppl 4):499–510.

Bora JK, Saikia N. Gender differentials in self-rated health and self-reported disability among adults in India. PLoS ONE. 2015;10(11): e0141953. https://doi.org/10.1371/journal.pone.0141953.

Candace W, Donh Z. Doing gender. Gend Soc. 1987;1(Suppl 2):125–51.

Glover-Graf NM. Sexuality and disability in psychosocial aspects of disability: insider perspectives and strategies for counsellors, Irmo Marini, D., Noreen M. Graf, R., & Michael J. Millington, C. Springer; New York. 2012.

Ganesh GS, Marwah D, Punyal S, Gupta S. Physical activity and quality of life predictors among university students with polio in India: a cross-sectional study. J Clin Transl Res. 2020;6(Suppl 3):71–80.

StatSA. Census 2001: prevalence of disability in South Africa. Pretoria; 2005. http://www.statssa.gov.za/census/census_2001/disability/Disability.pdf.

Bajekal M, Harries T, Breman R, Woodfield K. Review of disability estimates and definitions. UK: Department for Work and Pensions; 2004. http://www.eurohex.eu/bibliography/pdf/Bajekal_reportDWP_2004-0697451521/Bajekal_reportDWP_2004.pdf. Accessed 24 Oct 2022.

UNSD. Disability Statistics Compendium. Statistics on Special Population Groups. New York: UNSD Department of International Economic and Social Affairs Statistical Office; 1990. https://unstats.un.org/unsd/publication/seriesy/seriesy 4e.pdf. Accessed 24 Oct 2022.

Mitra S, Posarac A, Vick B. Disability and poverty in developing countries: a multidimensional study. World Dev. 2013;41:1–18.

Thông tin
Thông tin xuất bản

Springer Science and Business Media LLC

Tập 28 Số 1

Thông tin tác giả