Springer Science and Business Media LLC
Công bố khoa học tiêu biểu
* Dữ liệu chỉ mang tính chất tham khảo
Sắp xếp:
A protocol for co-creating research project lay summaries with stakeholders: guideline development for Canada’s AGE-WELL network
Springer Science and Business Media LLC - Tập 6 - Trang 1-8 - 2020
Funding bodies increasingly require researchers to write lay summaries to communicate projects’ real-world relevance to the public in an accessible way. However, research proposals and findings are generally not easily readable or understandable by non-specialist readers. Many researchers find writing lay summaries difficult because they typically write for fellow subject specialists or academics ......
How should multiple myeloma research change in a patient-oriented world? Findings and lessons from the pan-Canadian myeloma priority setting partnership
Springer Science and Business Media LLC - Tập 9 - Trang 1-15 - 2023
Over the last decade there has been considerable research into the treatment, management, and quality of life of people living with multiple myeloma. However, there has been limited investigation into topics deemed important to patients and caregivers within this community. We conducted a James Lind Alliance Priority Setting Partnership to establish the ‘Top 10 Priorities for Myeloma Research’, in......
Recruitment of caregivers into health services research: lessons from a user-centred design study
Springer Science and Business Media LLC - Tập 5 - Trang 1-9 - 2019
With patient and public engagement in many aspects of the healthcare system becoming an imperative, the recruitment of patients and members of the public into service and research roles has emerged as a challenge. The existing literature carries few reports of the methods – successful and unsuccessful – that researchers engaged in user-centred design (UCD) projects are using to recruit participant......
“Why involve older people in research?” Revisiting Alan Walker’s earlier editorial based on recent experiences from the UserAge research programme
Springer Science and Business Media LLC - Tập 9 - Trang 1-6 - 2023
Posed 16 years ago in a much-cited editorial by gerontologist, Alan Walker, “Why involve older people in research?” is a question that has since inspired researchers in many countries and from diverse disciplines. In Sweden, researchers and older people have been collaborating in the 6-year UserAge research programme, focusing on user involvement in research on ageing and health, UserAge aims at c......
Response to “comments on: involving service users in the qualitative analysis of patient narratives to support healthcare quality improvement
Springer Science and Business Media LLC - - 2019
Embedding formal and experiential public and patient involvement training in a structured PhD programme: process and impact evaluation
Springer Science and Business Media LLC - Tập 9 - Trang 1-22 - 2023
Incorporating Public and Patient Involvement (PPI) into doctoral research is valued by PhD funders and scholars. Providing early career researchers with appropriate training to develop skills to conduct meaningful PPI involvement is important. The Health Research Board (HRB) Collaborative Doctoral Award in MultiMorbidity programme (CDA-MM) embedded formal PPI training in its structured education. ......
Equity and inclusivity in research: co-creation of a digital platform with representatives of marginalized populations to enhance the involvement in research of people with limited literacy skills
Springer Science and Business Media LLC - Tập 7 - Trang 1-6 - 2021
To improve health equity, as well as equity in research, community-engaged research and participatory research needs to be inclusive. Equity in health research refers to the principle that anyone affected by research or who can benefit from its outcomes should have equal opportunities to contribute to it. Many researchers advocate the importance of promoting equity in research and engage in proces......
Stakeholder engagement in the development of an upper extremity outcome measure for children with rare musculoskeletal conditions
Springer Science and Business Media LLC - Tập 9 - Trang 1-11 - 2023
Upper extremity (UE) involvement is prevalent in 73% of individuals with arthrogryposis multiplex congenita (AMC), yet no AMC-specific outcome measure exists. When developing a measure specific to a population with a rare musculoskeletal condition, clinicians’ and patients’ perspectives and involvement is a crucial and necessary step. This study sought to determine the most clinically useful items......
What does patient engagement mean for Canadian National Transplant Research Program Researchers?
Springer Science and Business Media LLC - Tập 4 Số 1 - Trang 1-10 - 2018
In recent years, the importance of involving patients in research has been increasingly recognized because it increases the relevance and quality of research, facilitates recruitment, enhances public trust and allows for more effective dissemination of results. The Canadian National Transplant Research Program (CNTRP) is an interdisciplinary research team looking at a variety of issues related to ......
Evaluation of the quality of patient involvement in a patient-led analysis of the lived experience of a rare disease
Springer Science and Business Media LLC - Tập 9 - Trang 1-10 - 2023
Patients themselves are best placed to provide insights on the lived experience and to lead the analysis of such insights to bring the patient voice into peer-reviewed literature. In doing so, they can meet the authorship criteria for subsequent research publications. It is important to evaluate patient engagement to identify ways to improve future collaborations. Here, we describe the approach ta......
Tổng số: 382
- 1
- 2
- 3
- 4
- 5
- 6
- 10