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Biobanking and risk assessment: a comprehensive typology of risks for an adaptive risk governance
Springer Science and Business Media LLC - Tập 17 - Trang 1-28 - 2021
Biobanks act as the custodians for the access to and responsible use of human
biological samples and related data that have been generously donated by
individuals to serve the public interest and scientific advances in the health
research realm. Risk assessment has become a daily practice for biobanks and has
been discussed from different perspectives. This paper aims to provide a
literature revi...
Review of “Reframing Rights: Bioconstitutionalism in the Genetic Age” byS. Jasanoff (ed.)
Springer Science and Business Media LLC - Tập 9 - Trang 1-8 - 2013
Perceptions of nature, nurture and behaviour
Springer Science and Business Media LLC - Tập 9 - Trang 1-11 - 2013
Trying to separate out nature and nurture as explanations for behaviour, as in
classic genetic studies of twins and families, is now said to be both impossible
and unproductive. In practice the nature-nurture model persists as a way of
framing discussion on the causes of behaviour in genetic research papers, as
well as in the media and lay debate. Social and environmental theories of crime
have be...
How to do things with metaphors: engineering life as hodgepodge
Springer Science and Business Media LLC - Tập 14 - Trang 1-17 - 2018
This paper presents a collaboration between social scientists and a chemist
exploring the promises for new therapy development at the intersection between
synthetic biology and nanotechnology. Drawing from ethnographic studies of
laboratories and a recorded discussion between the three authors, we interrogate
the metaphors that underpin what Mackenzie (Futures 48:5-12 2013) has identified
as a rec...
CRISPR as agent: a metaphor that rhetorically inhibits the prospects for responsible research
Springer Science and Business Media LLC - Tập 14 - Trang 1-13 - 2018
In 2015, a group of 18 scientists and bioethicists published an editorial in
Science calling for “open discourse on the use of CRISPR-Cas9 technology to
manipulate the human genome” and recommending that steps be taken to strongly
discourage “any attempts at germline genome modification” in humans with this
powerful new technology. Press reports compared the essay to a letter written by
Paul Berg ...
Creating life and the media: translations and echoes
Springer Science and Business Media LLC - Tập 14 - Trang 1-14 - 2018
Synthetic biology is the engineering view on biotechnology that ultimately aims
at fulfilling the quest of building an artificial cell. From the very first
attempts of synthesizing life, this subject has made an impact on the media
through, very often, misleading headlines and news. We review here the
historical journalistic approach on synthetic biology and related disciplines,
from the early twe...
Genomics? That is probably GM! The impact a name can have on the interpretation of a technology
Springer Science and Business Media LLC - Tập 14 - Trang 1-15 - 2018
We investigate how people form attitudes and make decisions without having
extensive knowledge about a technology. We argue that it is impossible for
people to carefully study all technologies they encounter and that they are
forced to use inferences to make decisions. When people are confronted with an
intangible abstract technology, the only visible attribute is the name. This
name can determine...
The oblique perspective: philosophical diagnostics of contemporary life sciences research
Springer Science and Business Media LLC - Tập 13 - Trang 1-20 - 2017
This paper indicates how continental philosophy may contribute to a diagnostics
of contemporary life sciences research, as part of a “diagnostics of the
present” (envisioned by continental thinkers, from Hegel up to Foucault). First,
I describe (as a “practicing” philosopher) various options for an oblique (or
symptomatic) reading of emerging scientific discourse, bent on uncovering the
basic “phi...
How should researchers cope with the ethical demands of discovering research misconduct? Going beyond reporting and whistleblowing
Springer Science and Business Media LLC - Tập 16 - Trang 1-18 - 2020
In this paper, I will argue that making it mandatory to report research
misconduct is too demanding, as this kind of intervention can at times be
self-destructive for the researcher reporting the misconduct. I will also argue
that posing the question as a binary dilemma masks important ethical aspects of
such situations. In situations that are too demanding for individual researchers
to rectify th...
Adapt or perish? Assessing the recent shift in the European research funding arena from ‘ELSA’ to ‘RRI’
Springer Science and Business Media LLC - - 2014
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