Journal of Genetic Counseling

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Correction to: Talking with Children about Adult-Onset Hereditary Cancer Risk: A Developmental Approach for Parents
Journal of Genetic Counseling - Tập 27 - Trang 1523-1523 - 2018
Allison Werner-Lin, Shana L. Merrill, Amanda C. Brandt, Rachel E. Barnett, Ellen T. Matloff
The original article [1] was initially published with the following list of authors: Allison Werner-Lin, Shana L. Merrill, and Amanda C. Brandt. This author list is now corrected as follows: Allison Werner-Lin, Shana L. Merrill, Amanda C. Brandt, Rachel E. Barnett, & Ellen T. Matloff.
Mothers’ Experiences of Genetic Counselling in Johannesburg, South Africa
Journal of Genetic Counseling - Tập 24 - Trang 158-168 - 2015
Megan Morris, Merlyn Glass, Tina-Marié Wessels, Jennifer G. R. Kromberg
Genetic counselling is offered in diverse settings, and patient reactions vary due to differences in personal, family and community beliefs, local healthcare settings, as well as cultural background. Together, these factors influence how individuals experience genetic counselling. This study aimed to describe and document the experiences of thirteen mothers, with children with Down syndrome, oculo... hiện toàn bộ
Iona College Community Centered Family Health History Project: Lessons Learned from Student Focus Groups
Journal of Genetic Counseling - - 2011
Penelope J. Moore, William Gratzer, Caroline Lieber, Vaughn Edelson, James O’Leary, Sharon F. Terry
The Community Centered Family Health History project was initiated to create accessible family health history tools produced by and for the community. The project goal was to promote increased community engagement in health education by encouraging conversations among family members that would translate knowledge of family health history into healthy lifestyle choices. As one of seven community pa... hiện toàn bộ
Factors Associated with Parental Adaptation to Children with an Undiagnosed Medical Condition
Journal of Genetic Counseling - Tập 26 - Trang 829-840 - 2016
Tatiane Yanes, Linda Humphreys, Aideen McInerney-Leo, Barbara Biesecker
Little is known about the adaptive process and experiences of parents raising a child with an undiagnosed medical condition. The present study aims to assess how uncertainty, hope, social support, and coping efficacy contributes to adaptation among parents of children with an undiagnosed medical condition. Sixty-two parents of child affected by an undiagnosed medical condition for at least two yea... hiện toàn bộ
Genetics Education for Health Professionals: A Context
Journal of Genetic Counseling - Tập 17 - Trang 145-151 - 2007
Joseph D. McInerney
Education of health professionals about genetics is essential to the integration of genetics into mainstream health care, but there are a number of associated challenges. By virtue of their training, genetic counselors are well suited to address many of those challenges and to assume a variety of roles related to genetics education for health professionals. This paper provides a brief overview of ... hiện toàn bộ
Defining Moments: Catalysts for Professional Development
Journal of Genetic Counseling - Tập 11 - Trang 277-280 - 2002
Patricia McCarthy Veach, Dianne M. Bartels, Bonnie S. LeRoy
In this series of papers, 17 genetic counselors describe defining moments, that is, personal experiences or events that led to a further realization of themselves as genetic counselors. These experiences, both positive and negative, describe a significant impact on the authors' professional growth and development. A call for papers was issued through the National Society of Genetic Counselors list... hiện toàn bộ
Genetics and adoption: Forming a partnership
Journal of Genetic Counseling - Tập 1 - Trang 203-209 - 1992
Kathleen J. Delp, Lisa A. Kaepernick
Genetic issues are demanding more attention in the area of public health. Adoption agencies and policymakers are beginning to address these issues where they relate to the adoption process and to the many families involved in adoption in this country. Genetic counselors need to play an active role as both educators of and consultants for adoption professionals and the families with whom they work.... hiện toàn bộ
Genetic library
Journal of Genetic Counseling - Tập 5 - Trang 239-242 - 1996
Susan Schmerler
Role of the Disease in the Psychological Impact of Pre‐Symptomatic Testing for SCA2 and FAP ATTRV30M: Experience with the Disease, Kinship and Gender of the Transmitting Parent
Journal of Genetic Counseling - Tập 18 Số 5 - Trang 483-493 - 2009
Milena Paneque, Carolina Lemos, Alda Sousa, Luís Velázquez, Manuela Fleming, Jorge Sequeiros
AbstractTo identify possible factors affecting the psychological impact of pre‐symptomatic testing for spinocerebellar ataxia type 2 (SCA2) and familial amyloid polyneuropathy (FAP ATTRV30M), we studied (1) the effect of previous experience with the disease in the family, (2) kinship with the closest affected relative and (3) gender of affected parent, when adapting to test results; as well as (4)... hiện toàn bộ
Attitudes of Potential Providers Towards Preconceptional Cystic Fibrosis Carrier Screening
Journal of Genetic Counseling - Tập 13 - Trang 31-44 - 2004
Francis A. M. Poppelaars, Herman J. Adèr, Martina C. Cornel, Lidewij Henneman, Rosella P. M. G. Hermens, Gerrit van der Wal, Leo P. ten Kate
To determine the attitudes of potential providers (general practitioners and Community Health Service workers) towards preconceptional cystic fibrosis (CF) carrier screening and to determine which factors are associated with a positive attitude. A survey was conducted among 200 general practitioners (GPs) and 134 Community Health Service (CHS) workers. Fifty-two percent of the eligible GPs partici... hiện toàn bộ
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