BMC Palliative Care

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Views of patients with advanced disease and their relatives on participation in palliative care research
BMC Palliative Care - Tập 20 Số 1 - 2021
Karolína Vlčková, Kristýna Poláková, Anna Tučková, Adam Houska, Martin Loučka
Abstract Background Patients with advanced disease may not be invited to participate in research based on the assumption that participation would be too burdensome for them. The aim of this study was to explore how patients with advanced disease and their relatives evaluate their experience with res...... hiện toàn bộ
Benefits and resource implications of family meetings for hospitalized palliative care patients: research protocol
BMC Palliative Care - Tập 14 - Trang 1-9 - 2015
Peter L. Hudson, Afaf Girgis, Geoffrey K. Mitchell, Jenny Philip, Deborah Parker, David Currow, Danny Liew, Kristina Thomas, Brian Le, Juli Moran, Caroline Brand
Palliative care focuses on supporting patients diagnosed with advanced, incurable disease; it is ‘family centered’, with the patient and their family (the unit of care) being core to all its endeavours. However, approximately 30–50 % of carers experience psychological distress which is typically under recognised and consequently not addressed. Family meetings (FM) are recommended as a means whereb...... hiện toàn bộ
Completion rate of physician orders for life-sustaining treatment for patients with metastatic or recurrent cancer: a preliminary, cross-sectional study
BMC Palliative Care - Tập 18 Số 1 - 2019
Ju Won Kim, Jung Yoon Choi, Won Jin Jang, Yoon Ji Choi, Youn Seon Choi, Sang Won Shin, Yeul Hong Kim, Kyong Hwa Park
Abstract Background “End of life” is a difficult topic of conversation in East Asian cultures, even among patients and doctors who share a good rapport. In 2016, the Hospice, Palliative Care, and Life-Sustaining Treatment Decision-Making Act, which took the form of “Physician Orders f...... hiện toàn bộ
Xạ trị hỗ trợ tại ngực phân đoạn trong ung thư phổi không tế bào nhỏ - Vô nghĩa hay đáng giá? Dịch bởi AI
BMC Palliative Care - Tập 17 - Trang 1-7 - 2018
Malene Støchkel Frank, Dorte Schou Nørøxe, Lotte Nygård, Gitte Fredberg Persson
Xạ trị hỗ trợ tại ngực (PTR) có thể giảm triệu chứng phát sinh từ bệnh lý trong lồng ngực. Thời điểm và phân đoạn tối ưu của PTR vẫn chưa được xác định. Thời gian để có tác dụng là 2 tháng. Mục tiêu chính của nghiên cứu hồi cứu này là điều tra khả năng sống sót sau PTR, với giả thuyết rằng một số lượng đáng kể bệnh nhân nhận được PTR phân đoạn không có hiệu quả. Mục tiêu phụ là tìm các yếu tố tiên...... hiện toàn bộ
#xạ trị hỗ trợ; ung thư phổi không tế bào nhỏ; yếu tố tiên lượng; sức khỏe; chất lượng cuộc sống.
Family caregivers’ preferences for support when caring for a family member with cancer in late palliative phase who wish to die at home – a grounded theory study
BMC Palliative Care - Tập 23 - Trang 1-11 - 2024
Toril Merete Nysaeter, Cecilia Olsson, Tuva Sandsdalen, Reidun Hov, Maria Larsson
Family caregivers are essential in end-of-life care for cancer patients who wish to die at home. The knowledge is still limited regarding family caregivers needs and preferences for support and whether the preferences change during the patient’s illness trajectory. Therefore, the aim was to explore family caregivers’ preferences for support from home care services over time when caring for a famil...... hiện toàn bộ
Palliative care provider attitudes toward existential distress and treatment with psychedelic-assisted therapies
BMC Palliative Care - Tập 20 - Trang 1-14 - 2021
Halsey Niles, Colleen Fogg, Ben Kelmendi, Mark Lazenby
Existential distress is a significant source of suffering for patients facing life-threatening illness. Psychedelic-Assisted Therapies (PAT) are novel treatments that have shown promise in treating existential distress, but openness to providing PAT may be limited by stigma surrounding psychedelics and the paucity of education regarding their medical use. How PAT might be integrated into existing ...... hiện toàn bộ
How to conserve dignity in palliative care: suggestions from older patients, significant others, and healthcare professionals in Swedish municipal care
BMC Palliative Care - Tập 18 - Trang 1-12 - 2019
Ulrika Östlund, Karin Blomberg, Annika Söderman, Carina Werkander Harstäde
An essential aspect of palliative care nursing is to conserve the dignity of the patient. A Dignity Care Intervention (DCI) has been developed in Scotland to facilitate this role for nurses. The DCI is now being adapted to a Swedish context (DCI-SWE) and a central step is to identify culturally relevant, dignity-conserving care actions. These care actions will be incorporated into the DCI-SWE. The...... hiện toàn bộ
Current status of intensive end-of-life care in children with hematologic malignancy: a population-based study
BMC Palliative Care - Tập 20 - Trang 1-7 - 2021
Nobuyuki Yotani, Daisuke Shinjo, Motohiro Kato, Kimikazu Matsumoto, Kiyohide Fushimi, Yoshiyuki Kizawa
Adult patients with hematologic malignancies are less likely to receive palliative care and more likely to accept intensive anti-cancer treatments until end-of-life than those with solid tumors, but limited data are available regarding the quality of end-of-life care (EOLC) for children with hematologic malignancies. To improve the quality of EOLC for children with hematologic malignancies, the ai...... hiện toàn bộ
Exploration of the acceptability and usability of advance care planning tools in long term care homes
BMC Palliative Care - - 2020
Tamara Sussman, Sharon Kaasalainen, Rennie Bimman, Harveer Punia, Nathaniel Edsell, Jess Sussman
Despite known benefits, advance care planning (ACP) is rarely a component of usual practice in long-term care (LTC). A series of tools and workbooks have been developed to support ACP uptake amongst the generable population. Yet, their potential for improving ACP uptake in LTC has yet to be examined. This study explored if available ACP tools are acceptable for use in LTC by (a) eliciting staff vi...... hiện toàn bộ
Palliative home parenteral nutrition in patients with ovarian cancer and malignant bowel obstruction: experiences of women and family caregivers
BMC Palliative Care - Tập 18 - Trang 1-10 - 2019
Anne Marie Sowerbutts, Simon Lal, Jana Sremanakova, Andrew R. Clamp, Gordon C. Jayson, Antje Teubner, Lisa Hardy, Chris Todd, Anne-Marie Raftery, Eileen Sutton, Robert D. Morgan, Alexander J. Vickers, Sorrel Burden
Malnutrition is a problem in advanced cancer, particularly ovarian cancer where malignant bowel obstruction (MBO) is a frequent complication. Parenteral nutrition is the only way these patients can received adequate nutrition and is a principal indication for palliative home parenteral nutrition (HPN). Giving HPN is contentious as it may increase the burden on patients. This study investigates pat...... hiện toàn bộ
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