Young people describe their prediagnosis cancer experience

Psycho-Oncology - Tập 22 Số 11 - Trang 2585-2592 - 2013
Faith Gibson1, Susie Pearce2, Tim Eden3, Adam Glaser4, Louise Hooker5, Jeremy Whelan2, Daniel Kelly6
1Children's Nursing, Great Ormond Street Hospital for Children NHS Foundation Trust and London South Bank University, London, UK.
2Teenage and Young Adult Unit; University College London Hospitals; London UK
3Adolescent Onoclogy University of Manchester Manchester UK
4Paediatric and Adolescent Unit Leeds Teaching Hospitals Leeds UK
5Teenage and Young Adults Southampton Hospitals Southampton UK
6School of Nursing and Midwifery Studies, Cardiff University, Cardiff, UK

Tóm tắt

AbstractObjectiveYoung people often report a protracted journey to diagnosis and frequently report perceived delays. This study was undertaken to increase understanding of the self‐reported prediagnosis experiences in young people with a non‐haematological cancer, as close as possible to the time of diagnosis.MethodsNarrative interviews were conducted with 24 young people aged 16–24, 2–4 months from the diagnosis of a solid tumour. Data were analysed to identify whether prediagnosis narratives could be classified according to shared characteristics (typologies) to identify broader contextual issues concerning cancer, and cancer risk perceptions, in this age group. Case notes were also accessed to contextualize and confirm accounts.ResultsThe main themes, which included a group narrative concerning perspectives of delay, included the impact on an individual's everyday life by symptoms; the role that significant others in young peoples' lives played in the interpretation of symptom significance; the negotiation of entry into, and experiences of, generalist health care; entry into specialist care; and the threshold points that exemplified when events shifted and a diagnosis was eventually obtained.ConclusionsThe narratives reveal complex, and multidimensional explanations for delay with individual and contextual factors contributing. Insights were gained into preventable diagnostic delay; including investigations having been instigated, but not followed up. Each narrative also offered significant insights into how cancer symptoms should be considered within the context of young peoples' lives. This would help prevent signs and symptoms in this age group failing to trigger suspicion and not being treated seriously. Copyright © 2013 John Wiley & Sons, Ltd.

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Psycho-Oncology

Tập 22 Số 11

2585-2592

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