What a wish to die can mean: reasons, meanings and functions of wishes to die, reported from 30 qualitative case studies of terminally ill cancer patients in palliative care
Tóm tắt
Từ khóa
Tài liệu tham khảo
Monforte-Royo C, Villavicencio-Chávez C, Tomás-Sábado J, Balaguer A: The wish to hasten death: a review of clinical studies. Psychooncology. 2011, 20: 795-804.
Brown JH, Henteleff P, Barakat S, Rowe CJ: Is it normal for terminally ill patients to desire death?. Am J Psychiatry. 1986, 143: 208-211.
Breitbart W, Rosenfeld B, Passik S: Interest in physician assisted suicide among ambulatory HIV-infected patients. Am J Psychiatry. 1996, 153: 238-242.
Chochinov HM, Wilson KG, Enns M, Mowchun N, Lander S, Levitt M, Clinch JJ: Desire for death in the terminally Ill. Am J Psychiatry. 1995, 152: 1185-1191.
Chochinov HM, Wilson KG, Enns M, Lander S: Depression, hopelessness, and suicidal ideation in the terminally ill. Psychosomatics. 1998, 39: 366-370.
Ganzini L, Johnston WS, McFarland BH, Tolle SW, Lee MA: Attitudes of patients with amyotrophic lateral sclerosis and their caregivers toward assisted suicide. N Engl J Med. 1998, 339: 967-973.
Wilson KG, Scott JF, Graham ID, Kozak JF, Chater S, Viola RA, de Faye BJ, Weaver LA, Curran D: Attitudes of terminally ill patients toward euthanasia and physician-assisted suicide. Arch Intern Med. 2000, 160: 2452-2460.
Lavery JV, Boyle J, Dickens BM, Maclean H, Singer PA: Origins of the desire for euthanasia and assisted suicide in people with HIV-1 or AIDS: a qualitative study. Lancet. 2001, 358: 362-367.
Suarez-Almazor M, Newman C, Hanson J, Bruera E: Attitudes of terminally ill cancer patients about euthanasia and assisted suicide: predominance of psychosocial determinants and beliefs over symptom distress and subsequent survival. J Clin Oncol. 2002, 20: 2134-2141.
Kelly B, Burnett P, Pelusi D, Badger S, Varghese F, Robertson M: Terminally ill cancer patients’ wish to hasten death. Palliat Med. 2002, 16: 339-345.
Coyle N, Sculco L: Expressed desire for hastened death in seven patients living with advanced cancer: a phenomenologic inquiry. Oncol Nurs Forum. 2004, 31: 699-706.
Mak YY, Elwyn G: Voices of the terminally ill: uncovering the meaning of desire for euthanasia. J Palliat Med. 2005, 19: 343-350.
Pearlman RA, Hsu C, Starks H, Back AL, Gordon JR, Bharucha AJ, Koenig BA, Battin MP: Motivations for physician-assisted suicide. J Gen Intern Med. 2005, 20: 234-239.
Johansen S, Holen JC, Kaasa S: Attitudes towards, and wishes for euthanasia in advanced cancer patients at a palliative medicine unit. J Palliat Med. 2005, 19: 454-460.
Schroepfer TA: Mind frames towards dying and factors motivating their adoption by terminally ill elders. J Gerontol B Psychol Sci Soc Sci. 2006, 61: 129-139.
Hudson PL, Kristjanson LJ, Ashby M, Kelly B, Schofield P, Hudson R, Aranda S, O’Connor M, Street A: Responding to desire to die statements from patients with advanced disease: recommendations for health professionals. J Palliat Med. 2006, 20: 703-710.
Hudson PL, Kristjanson LJ, Ashby M, Kelly B, Schofield P, Hudson R, Aranda S, O’Connor M, Street A: Desire for hastened death in patients with advanced disease and the evidence base of clinical guidelines: a systematic review. J Palliat Med. 2006, 20: 693-701.
Stiel S, Elsner F, Pestinger M, Radbruch L: Wunsch nach vorzeitigem Lebensende. Was steht dahinter [a wish to hasten death: what is behind it]. Schmerz. 2010, 24: 177-189.
Montforte-Royo C, Villavicencio-Chavez C, Tomas-Sabado J, Mahatani-Chugani V, Balaguer A: What lies behind the wish to hasten death? A systematic review and meta-ethnography from the perspective of patients. PLoS One. 2012, 7 (5): e37117-doi: 10.1371/journal.pone.0037117
Kelly B, Burnett P, Pelusi D, Badger S, Varghese F, Robertson M: Factors associated with the wish to hasten death: a study of patients with terminal illness. Psychol Med. 2003, 33 (1): 75-81.
Morita T, Kawa M, Honke Y, Kohara H, Maeyama E, Kizawa Y, Akechi T, Uchitomi Y: Existential concerns of terminally ill cancer patients receiving specialized palliative care in Japan. Support Care Cancer. 2004, 12: 137-140.
McClain CS, Rosenfeld B, Breitbart W: Effect of spiritual well-being on end-of-life despair in terminally-ill cancer patients. Lancet. 2003, 361: 1603-1607.
Chochinov HM, Hack T, Hassard T, Kristjanson LJ, McClement S, Harlos M: Understanding the will to live in patients nearing death. Psychosomatics. 2005, 46: 7-10.
Arnold EM, Artin KA, Person JL, Griffith DL: Consideration of hastening death among hospice patients and their families. J Pain Symptom Manage. 2004, 6: 523-532.
Kohlwes RJ, Koepsell TD, Rhodes LA, Pearlman RA: Physicians’ responses to patients’ requests for physician-assisted suicide. Arch Intern Med. 2001, 161: 657-663.
Fischer S, Huber CA, Furter M, Imhof L, Mahrer Imhof R, Schwarzenegger C, Ziegler S, Bosshard G: Reasons why people in Switzerland seek assisted suicide: the view of patients and physicians. Siwss Med Wkly. 2009, 139 (23–24): 333-338.
Mauron A: Acting on a wish to die at the end of life. The Swiss situation. Patients’ Wishes to die. Research, Ethics, Palliative Care. Edited by: Rehmann-Sutter C, Ohnsorge K, Gudat H. 2015, Oxford: Oxford University Press
Ohnsorge K, Gudat H, Rehmann-Sutter C: The intentions in wishes to die: analysis and a typology - A report of 30 qualitative case studies with terminally ill cancer patients in palliative care. Psychooncology. 2014, online doi:10.1002/pon.3524
Ohnsorge K: Intentions, motivations and social interactions of a wish to die. Patients’ Wishes to die. Research, Ethics, Palliative Care. Edited by: Rehmann-Sutter C, Gudat H, Ohnsorge K. 2015, Oxford: Oxford University Press
Smith J, Flowers P, Larkin M: Interpretive Phenomenological Analysis. 2009, Los Angeles: Sage
Glaser BG, Strauss AL: The Discovery of Grounded Theory. 2008, Aldine Transaction: New Brunswick
Rehmann-Sutter C, Porz R, Scully JL: How to relate the empirical to the normative: toward a phenomenologically informed hermeneutic approach to bioethics. Camb Q Healthc Ethics. 2012, 21 (4): 436-447. doi:10.1017/S0963180112000217
Scully JL, Rippberger C, Rehmann-Sutter C: Non-professionals’ evaluations of gene therapy ethics. Soc Sci Med. 2004, 58: 1415-1425.
Haimes E, Porz R, Scully JL, Rehmann-Sutter C: “So, what is an embryo?” A comparative study of the views of those asked to donate embryos for hESC research in the UK and Switzerland. New Genet Soc. 2008, 27 (2): 113-126.
Robinson JA, Crawford GB: Identifying palliative care patients with symptoms of depression: an algorithm. J Palliat Med. 2005, 19: 278-287.
Beck AT, Kovacs M: Assessment of suicidal intention: the scale for suicidal ideation. J Consult Clin Psychol. 1979, 47: 43-352. doi:10.1037/0022-006X.47.2.343
Corbin J, Strauss AL: Basics of Qualitative Research. Techniques and Procedures for Developing Grounded Theory. 2008, Los Angeles: Sage
Charmaz K: Constructing Grounded Theory. A Practical Guide through Qualitative Analysis. 2006, London: Sage
Arnold EM: Factors that influence consideration of hastening death among people with life-threatening illness. Health Soc Work. 2004, 29: 17-26.
Engel GL: The need for a new medical model: a challenge for biomedicine. DOI:10.1126/science.847460. Science. 1977, 196: 129-136. doi:10.1126/science.847460 DOI:10.1126%2Fscience.847460
Ohnsorge K, Gudat H, Widdershoven G, Rehmann-Sutter C: ‘Ambivalence’ at the end of life: How to understand patients’ wishes ethically. Nurs Ethics. 2012, 19: 629-641.
Paley J: Narrative Machinery. Narrative Stories in Health Care. Illness, dying, and bereavement. Edited by: Gunaratnam Y, Oliviere D. 2009, Oxford: Oxford University Press, 17-32.
MacIntyre A: After Virtue: A Study in Moral Theory. 2007, Indiana: University of Notre Dame Press, 3
Walker MJ: Neuroscience, self-understandings and narrative truth. AJOB Neurosci. 2012, 3 (4): 63-74. doi:10.1080/21507740.2012.712603
Lindemann Nelson H: Damaged Identities, Narrative Repair. 2001, Ithaca and London: Cornell Univeristy Press
Heidegger M: Sein und Zeit. 1927, Max Niemeyer Verlag: Tübingen
Walker MU: Moral Understandings: A feminist Study in Ethics. 2007, New York: Oxford University Press, 2
Gadamer HG: Wahrheit und Methode: Grundzüge einer philosophischen Hermeneutik. 1990, Tübingen: Mohr, 6