Using videotelephony to support paediatric oncology-related palliative care in the home: from abandoned RCT to acceptability study

Palliative Medicine - Tập 23 Số 3 - Trang 228-237 - 2009
Mark Bensink1, Nigel R Armfield1, Ross Pinkerton2,3, Helen Irving4, Andrew R. Hallahan4,5, Deborah Theodoros1,6,7, Trevor Russell1,8,9, Adrian Barnett10, Paul Cashin11, Richard Wootton12,13
1Centre for Online Health, University of Queensland, Queensland
2Queensland Children’s Cancer Centre, Queensland; University of Queensland, Queensland
3University of Queensland, Queensland
4Queensland Children's Cancer Centre, Queensland
5Queensland Children’s Cancer Centre, Queensland; Department of Paediatrics and Child Health, University of Queensland, Queensland
6Centre for Online Health, University of Queensland, Queensland; Division of Speech Pathology, University of Queensland, Queensland; Telerehabilitation Research Unit, University of Queensland, Queensland
7Telerehabilitation Research Unit, University of Queensland, Queensland
8Centre for Online Health, University of Queensland, Queensland; Telerehabilitation Research Unit, University of Queensland, Queensland; Division of Physiotherapy, University of Queensland, Queensland
9Division of Physiotherapy, University of Queensland, Queensland
10Institute of Health and Biomedical Innovation and School of Public Health, Queensland University of Technology, Queensland
11School of Medicine, Griffith University, Queensland
12Centre for Online Health, University of Queensland, Queensland; Scottish Centre for Telehealth, Aberdeen
13Scottish Centre for Telehealth, Aberdeen

Tóm tắt

Videotelephony (real-time audio-visual communication) has been used successfully in adult palliative home care. This paper describes two attempts to complete an RCT (both of which were abandoned following difficulties with family recruitment), designed to investigate the use of videotelephony with families receiving palliative care from a tertiary paediatric oncology service in Brisbane, Australia. To investigate whether providing videotelephone-based support was acceptable to these families, a 12-month non-randomised acceptability trial was completed. Seventeen palliative care families were offered access to a videotelephone support service in addition to the 24 hours ‘on-call’ service already offered. A 92% participation rate in this study provided some reassurance that the use of videotelephones themselves was not a factor in poor RCT participation rates. The next phase of research is to investigate the integration of videotelephone-based support from the time of diagnosis, through outpatient care and support, and for palliative care rather than for palliative care in isolation. Trial registration ACTRN 12606000311550

Từ khóa


Tài liệu tham khảo

10.5694/j.1326-5377.2003.tb05571.x

10.1177/082585979601200304

10.1136/bmj.298.6678.937

10.1136/adc.65.6.641

10.1177/082585979701300405

10.1258/1357633981931470

De Conno F, 1997, Eur J Palliat Care, 4, 174

10.1258/1357633001934645

10.1258/135763307779701149

10.1258/jtt.2008.070107

10.1258/1357633042614465

10.1258/13576330260440745

10.1258/135763303322596228

Palliative Care Australia, 1999, Standards for Palliative Care Provision.

10.1016/S0885-3924(02)00440-2

10.1056/NEJM200002033420506

10.1016/S0895-4356(98)00109-7

19 Ware J;  Kosinski M;  Turner-Bowker D;  Gandek B;  . How to score version 2 of the SF-12 health survey (with a supplement docmenting version 1). Lincoln: QualityMetric Incorporated; 2002.

10.1186/1477-7525-3-68

22 Australian Bureau of Statistics. Outcomes of ABS views on remoteness consultation, Australia. Canberra: ABS; 2001. Report No.: Catalogue No. 1244.0.00.001.

10.1089/109662101750290209

10.1258/135763306777889082

10.1186/1472-6963-7-38

10.1258/jtt.2008.080505

Doolittle G, 1997, Telemed Today, 5, 18

10.1258/1357633001934645

10.1258/1357633981931470

10.1179/096992605X57679

10.12968/ijpn.2001.7.9.9301

10.1191/0269216303pm769rr

10.1191/026921699668963873

10.5694/j.1326-5377.2005.tb07034.x

10.1258/1357633042614348

10.1089/tmj.2006.0023

Thông tin
Thông tin xuất bản

Palliative Medicine

Tập 23 Số 3

228-237

Thông tin tác giả