The validation of the Short Warwick-Edinburgh Mental Well-Being Scale (SWEMWBS) with Deaf British Sign Language users in the UK

Health and Quality of Life Outcomes - Tập 16 - Trang 1-12 - 2018
Katherine D. Rogers1, Claire Dodds1, Malcolm Campbell1, Alys Young1
1Division of Nursing, Midwifery, & Social Work, School of Health Sciences, Faculty of Biology, Medicine and Health, Manchester Academic Health Science Centre, University of Manchester, Manchester, UK

Tóm tắt

There is no validated measure of positive mental well-being that is suitable for Deaf people who use a signed language such as British Sign Language (BSL). This impedes inclusion of this population in a range of research designed to evaluate effectiveness of interventions. The study aims were: (i) to translate the original English version of SWEMWBS into BSL and to test the SWEMWBS BSL with the Deaf population in the UK who use BSL; (ii) to examine its psychometric properties; and (iii) to establish the validity and reliability of the SWEMWBS BSL. The SWEMWBS was translated into BSL following a six stage translation procedure and in consultation with the originators. The draft version was piloted with Deaf BSL users (n = 96) who also completed the CORE-OM BSL well-being subscale and the EQ-5D VAS BSL. Reliability was explored using Cronbach’s alpha for internal consistency and ICC for test-retest reliability. Validity was explored by using Kendall’s tau correction for convergent validity and an exploratory factor analysis for construct validity. The internal consistency for the reliability of the SWEMWBS BSL was found to be good and the test-retest one week apart showed an acceptable reliability. There was good convergent validity of the SWEMWBS BSL with the well-being subscale of the CORE-OM BSL and the EQ-5D VAS BSL. The SWEMWBS BSL can be used with a Deaf population of BSL users. This is the first validated version of a BSL instrument that focuses solely on positively phrased questions for measuring mental well-being.

Tài liệu tham khảo

Department of Health. Wellbeing: Why it matters to health policy? Health is the top thing people say matters to their wellbeing. Department of Health. 2014; https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/277566/Narrative__January_2014_.pdf. Accessed 6 Nov 2017 Aked J, Thompson S. Five ways to wellbeing: new applications, new ways of thinking. London. In: England: NEF; 2011. Ryan RM, Deci EL. On happiness and human potential: a review of research on hedonic and eudaimonic well-being. Annu Rev Psychol. 2001;52:141–66. https://doi.org/10.1146/annurev.psych.52.1.141. Taggart F, Friede T, Weich S, Clarke A, Johnson M, Stewart-Brown S. Cross cultural evaluation of the Warwick-Edinburgh mental well-being scale (WEMWBS) – a mixed methods study. Health Qual Life Outcomes. 2013;11:27. https://doi.org/10.1186/1477-7525-11-27. Lopez MA, Gabilondo A, Codony M, Garcia-Forero C, Vilagut G, Castellvi P, et al. Adaptation into Spanish of the Warwick-Edinburgh mental well-being scale (WEMWBS) and preliminary validation in a student sample. Qual Life Res. 2013;22:1099–104. https://doi.org/10.1007/s11136-012-0238-z. Trousselard M, Steiler D, Dutheil F, Claverie D, Canini F, Fenouillet F, et al. Validation of the Warwick-Edinburgh mental well-being scale (WEMWBS) in French psychiatric and general populations. Psychiatry Res. 2016;245:282–90. https://doi.org/10.1016/j.psychres.2016.08.050. Haver A, Akerjordet K, Caputi P, Furunes T, Magee C. Measuring mental well-being: a validation of the Short Warwick-Edinburgh Mental Well-Being Scale in Norwegian and Swedish. Scandinavian Journal of Public Health. 2015;43:721–7. https://doi.org/10.1177/1403494815588862. Tennant R, Hiller L, Fishwick R, Platt S, Joseph S, Weich S, et al. The Warwick-Edinburgh mental well-being scale (WEMWBS): development and UK validation. Health Qual Life Outcomes. 2007;5:63. https://doi.org/10.1186/1477-7525-5-63. Ladd P. Understanding Deaf Culture. In: Search of Deafhood. Clevedon, England: Multilingual Matters Ltd; 2003. Young A, Temple B. Approaches to social research: the case of deaf studies. New York, NY: Oxford University Press; 2014. Woodward J. Implications for sociolinguistics research among the deaf. Sign Language Studies. 1972;1:1–7. https://doi.org/10.1353/sls.1972.0004(1972). BDA. What is BSL? British deaf association. 2016. https://bda.org.uk/help-resources/#BSL. Accessed 19 Sept 2017. Rogers KD, Ferguson-Coleman E, Young A. Challenges of Realising patient-centered outcomes for deaf patients. The Patient - Patient-Centered Outcomes Research. 2018;11:9–16. https://doi.org/10.1007/s40271-017-0260-x. Barnett S, Klien JD, Pollard R, Samar V, Schlehofer D, Starr M, et al. Community participatory research with deaf sign language users to identify health inequities. Am J Public Health. 2011;101:2235–8. https://doi.org/10.2105/AJPH.2011.300247. SignHealth. A report into the health of deaf people in the UK. London: SignHealth. 2014. https://www.signhealth.org.uk/sick-of-it-report-professionals/. Accessed 21 Aug 2017. Joint Commissioning Panel for Mental Health, SignHealth. Guidance for Commissioners of Primary Care Mental Health Services for Deaf People. Practical mental health commissioning. London: RCPsych; 2017. https://www.jcpmh.info/resource/guidance-commissioners-primary-care-mental-health-services-deaf-people/. Accessed 21 Aug 2017 Alexander A, Ladd P, Powell S. Deafness might damage your health. Lancet. 2012;379(9820):979–81. https://doi.org/10.1016/S0140-6736(11)61670-X. Fellinger J, Holzinger D, Pollard, R. Mental health of deaf people. The Lancet 2012;379(9820):1037–1044. https://doi.org/10.1016/S0140-6736(11)61143-4. 2012. NHS England. Principles for high quality interpreting and translation services. Version 1.19. 2015. https://www.england.nhs.uk/commissioning/wp-content/uploads/sites/12/2015/03/it_principles.pdf. Accessed 21 Aug 2017. NDCS. New GCSE figures show extensive attainment gap for deaf children. 2016. http://www.ndcs.org.uk/news/new_gcse_figures.html. Accessed 21 Aug 2017. RNID. Employment for all: assisting people with health problems and disabilities into work. Submission by RNID to the Work and Pensions Committee. 2003. http://webarchive.nationalarchives.gov.uk/+/http://www.cabinetoffice.gov.uk/media/cabinetoffice/strategy/assets/rnid3.pdf. Accessed 21 Aug 2017. Rogers KD. Deaf people and mental well-being: Exploring and measuring mental well-being in British sign language. PhD thesis. UK: University of Manchester; 2013. Rogers KD, Young A, Lovell K, Campbell M, Scott PR, Kendal S. The British sign language versions of the patient health questionnaire, the generalized anxiety disorder 7-item scale, and the work and social adjustment scale. J Deaf Stud Deaf Educ. 2013;18:110–22. https://doi.org/10.1093/deafed/ens040. Rogers KD, Evans C, Campbell M, Young A, Lovell K. The reliability of British sign language and English versions of the clinical outcomes in routine evaluation – outcome measure with d/deaf populations in the UK: a pilot study. Health & Social Care in the Community. 2014;22:278–89. https://doi.org/10.1111/hsc.12078. Young A, Rogers K, Davies L, Pilling M, Lovell K., Pilling S, et al. Evaluating the effectiveness and cost-effectiveness of British sign language improving access to psychological therapies: an exploratory study. Health Services and Delivery Research 2017;5:24. https://www.journalslibrary.nihr.ac.uk/programmes/hsdr/1213679/#/. Accessed 19 Sept 2017. Stewart-Brown S, Tennant A, Tennant R, Platt S, Parkinson J, Weich S. Internal construct validity of the Warwick-Edinburgh mental well-being scale (SWEMWBS): a Rasch analysis using data from the Scottish health education population survey. Health Qual Life Outcomes. 2009;7:15. https://doi.org/10.1186/1477-7525-7-15. Rogers KD, Young A, Lovell K, Evans C. The challenges of translating the clinical outcomes in routine evaluation – outcome measure (CORE-OM) into British sign language. J Deaf Stud Deaf Educ. 2013;18:287–98. https://doi.org/10.1093/deafed/ent002. Cornes AJ, Brown PM. Mental health of Australian deaf adolescents: an investigation using an Auslan version of the strengths and difficulties questionnaire. Deafness & Education International. 2012;14:161–75. https://doi.org/10.1179/1557069X12Y.0000000009. Graybill P, Aggas J, Dean RK, Demers S, Finigan EG, Pollard RQ. A CommunityParticipatory approach to adapting survey items for deaf individuals and American sign language. Field Methods. 2010;22:429–48. https://doi.org/10.1177/1525822X10379201. Rogers K, Pilling M, Davies LM, Belk R, Nassimi-Green C, Young A. Translation, reliability and validity of the British sign language (BSL) version of the EQ-5D-5L. Qual Life Res. 2016;25:1825–34. https://doi.org/10.1007/s11136-016-1235-4. Bonett DG. Sample size requirements for estimating intraclass correlations with desired precision. Stat Med. 2002;21:1331–5. https://doi.org/10.1002/sim.1108. Bonett DG. Sample size requirements for testing and estimating coefficient alpha. J Educ Behav Stat. 2002;27:335–40. https://doi.org/10.3102/10769986027004335. Fat LN, Scholes S, Boniface S, Mindell J, Stewart-Brown S. Evaluating and establishing national norms for mental wellbeing using the Short Warwick-Edinburgh Mental Well-Being Scale (SWEMWBS): findings from the health survey for England. Qual Life Res. 2017;26:1129–44. https://doi.org/10.1007/s11136-016-1454-8. George D, Mallery P. SPSS for windows step by steps: a simple guide and reference. Boston, MA: Allyn and Bacon; 2003. Chanfreau J, Lloyd C, Byron C, Roberts C, Craig R, De Feo D, McManus S. Predicting wellbeing. London: NatCen. Soc Res. 2013; http://www.natcen.ac.uk/media/205352/predictors-of-wellbeing.pdf. Accessed 14 May 2018 Sheppard K, Badger T. The lived experience of depression among culturally deaf adults. J Psychiatr Ment Health Nurs. 2010;17:783–9. https://doi.org/10.1111/j.1365-2850.2010.01606.x. Griggs M. Deafness and Mental Health: Perceptions of health within the deaf community. PhD thesis. UK: University of Bristol; 1998. Ryff CD. Psychological well-being revisited: advances in the science and practice of Eudaimonia. Psychother Psychosom. 2014;83:10–28. https://doi.org/10.1159/000353263. Faculty of Public Health and Mental Health Foundation. Better Mental Health for All. A public health approach to mental health improvement. In: London: faculty of public health and mental Health Foundation; 2016. Feinstein L, Hammond C. The contribution of adult learning to health and social capital. Oxf Rev Educ. 2004;30:199–221. https://doi.org/10.1080/0305498042000215520. Feinstein L, Vorhaus J, Sabates R. Learning through life challenge report. London: Foresight Mental Capital and Wellbeing Project; 2008.