The ‘problematisation’ of palliative care in hospital: an exploratory review of international palliative care policy in five countries
Tóm tắt
Từ khóa
Tài liệu tham khảo
Stjernsward J, Foley KM, Ferris F. The public health strategy for palliative care. J Pain Symptom Manage. 2007;33(5):486–93.
Global Atlas of Palliative Care at the End of Life. [ http://www.who.int/nmh/Global_Atlas_of_Palliative_Care.pdf ]. Accessed 11 Oct 2015.
May P, Hynes G, McCallion P, Payne S, Larkin P, McCarron M. Policy analysis: palliative care in Ireland. Health Policy. 2014;115(1):68–74.
Palliative care for older people: better practice. [ http://www.euro.who.int/__data/assets/pdf_file/0017/143153/e95052.pdf ]. Accessed 21 March 2016.
Quill TE, Abernethy A. Generalist plus specialist palliative care - creating a more sustainable model. N Engl J Med. 2013;368(13):1173–5.
McNamara B. Good enough death: autonomy and choice in Australian palliative care. Soc Sci Med. 2004;58:929–38.
Randall F, Downie R. The philosophy of palliative care. Oxford: Oxford University Press; 2010.
Clark D. From margins to centre: a review of the history of palliative care in cancer. Lancet Oncol. 2008;8(5):430–8.
Pastrana T, Junger S, Ostgathe C, Elsner F, Radbruch L. A matter of definition - key elements identified in a discourse analysis of definitions of palliative care. Palliat Med. 2008;22:222–32.
Barnes S, Gott M, Payne S, Parker C, Seamark D, Gariballa S, Small N. Prevalence of symptoms in a community based sample of heart failure patients. J Pain Symptom Manage. 2006;32(3):208–16.
Gardiner C, Gott M, Small N, Payne S, Seamark D, Barnes S, Halpin D, Ruse C. Living with advanced chronic obstructive pulmonary disease: patients concerns regarding death and dying. Palliat Med. 2009;23(8):691–7.
WHO definition of palliative care 2002. [ http://www.who.int/cancer/palliative/definition/en/ ]. Accessed 21 March 2016.
Murray SA, Kendall M, Boyd K, Sheikh A. Illness trajectories and palliative care. BMJ. 2005;330:1007–11.
Canadian strategy on palliative and end-of-life care: Final report of the coordinating committee. December 2002 to March 2007. [ http://healthycanadians.gc.ca/publications/health-system-systeme-sante/strategy-palliative-strategie-palliatifs/index-eng.php ]. Accessed 8 Dec 2015.
End of life care strategy: promoting high quality care for all adults at the end of life. [ https://www.gov.uk/government/publications/end-of-life-care-strategy-promoting-high-quality-care-for-adults-at-the-end-of-their-life ]. Accessed 6 Dec 2015.
Supporting Australians to live well at the end of life. National Palliative Care Strategy. [ https://www.health.gov.au/internet/main/publishing.nsf/Content/EF57056BDB047E2FCA257BF000206168/$File/NationalPalliativeCareStrategy.pdf ]. Accessed 8 Dec 2015.
National strategy for palliative care 2010–2012. [ http://www.bag.admin.ch/themen/gesundheitspolitik/13764/index.html?lang=en ]. Accessed 9 Dec 2015.
Report of the National Advisory Committee on Palliative Care. [ http://health.gov.ie/wp-content/uploads/2014/03/nacpc.pdf ]. Accessed 8 Dec 2015.
Report on the National Strategy for Palliative Care. [ https://www.duke-nus.edu.sg/sites/default/files/Report_on_National_Strategy_for_Palliative_Care%205Jan2012.pdf ]. Accessed 8 Dec 2015.
The New Zealand Health Strategy: Future Direction. Wellington: Ministry of Health; 2016.
Salisbury H, Bosanquet N, Wilkinson EK, Franks PJ, Kite S, Lorentzon M, Naysmith A. The impact of different models of specialist palliative care on patients’ quality of life: a systematic literature review. Palliat Med. 2009;13(1):3–17.
Wilkinson EK, Salisbury H, Bosanquet N, Franks PJ, Kite S, Lorentzon M, Naysmith A. Patient and carer preference for, and satisfaction with, specialist models of palliative care: a systematic literature review. Palliat Med. 1999;13(3):197–216.
Seale C, Kelly M. A comparison of hospice and hospital care for people who die: views of the surviving spouse. Palliat Med. 1997;11(2):93–100.
Higginson I, Wade A, McCarthy M. Palliative care: views of patients and their families. BMJ. 1990;301:277–81.
Robinson J, Gott M, Ingleton C and Gardiner C. The impact of the environment on experiences of hospital admissions from the perspectives of patients with palliative care needs. BMJ Support Palliat Care. 2015, doi: 10.1136/bmjspcare-2015-000891 .
Waghorn M, Young H, Davies A. Opinions of patients with cancer on the relative importance of place of death in the context of a ‘good death’. BMJ Support Palliat Care. 2011;1(3):310–4.
Cox K, Bird L, Arthur A, Kennedy S, Pollock K, Kumar A, Stanton W, Seymour J. Public attitudes to death and dying in the UK: a review of published literature. BMJ Support Palliat Care. 2001;33:37–45.
Borgstrom E. Planning for an (un)certain future: choice within English end-of-life care. Curr Sociol. 2015;65(5):700–13.
McLaughlin L, Braun KL. Asian and Pacific Islander cultural values. Health Soc Work. 1998;23(2):116–26.
Gerrard R, Campbell J, Minton O, Moback B, Skinner C, McGowan C, Stone C. Achieving the preferred place of care for hosptalized patients at the end of life. Palliat Med. 2011;25(4):333–6.
Robinson J, Gott M, Gardiner C, Ingleton C. A qualitative study exploring the benefits of hospital admissions from the perspectives of patients with palliative care needs. Palliat Med. 2015;29(8):703–10.
Gott M, Williams L, Moeke-Maxwell T. The paradoxes of ‘home’ within a palliative care context. In: Roche M, Mansvelt J, Prince R, Gallgher A, editors. Engaging geograhies: landscapes, lifecourses and mobilities. Newcastle upon Tyne: Cambridge Scholars Publishing; 2015.
Collier A, Phillips JL, Iedema R. The meaning of home at the end of life: a video reflexive ethnography study. Palliat Med. 2015;29(8):695–702.
Gott M, Seymour J, Bellamy G, Clark D, Ahmedzai SH. Older peoples views about home as a place of care at the end of life. Palliat Med. 2004;18(5):460–7.
Gomes B, Calanzani N, Higginson I. Local preferences and place of death in regions within England. London: Cicely Saunders Institute; 2011.
Pringle J, Johnston B, Buchanan D. Dignity and patient-centred care for people with palliative care needs in the acute hospital setting: a systematic review. Palliat Med. 2015;29(8):675–94.
Seymour J, Gott M. The challenges of health technology for ageing and dying. In: Gott M, Ingleton C, editors. Living with ageing and dying. Oxford: Oxford University Press; 2011. p. 42–51.
Gott M, Frey R, Robinson J, Boyd M, O’Callaghan A, Richards N, Snow B. The nature of, and reasons for, ‘inappropriate’ hospitalisations among patients with palliative care needs: a qualitative exploration of the views of generalist palliative care providers. Palliat Med. 2013;27(8):747–56.
Robinson J, Boyd M, O’Callaghan A, Laking G, Frey R, Raphael D, Snow B, Gott M. The extent and cost of potentially avoidalbe admissions in hospital inpatients with palliative care needs: a cross-sectional study. BMJ Support Palliat Care. 2015;5(3):266–72.
Abel J, Rich A, Griffin T, et al. End of life care in hospital: a descriptive study of all inpatient deaths in 1 year. Palliat Med. 2009;23(7):616–22.
Robinson J, Gott M, Ingleton C. Patient and family experiences of palliative care in hospital: what do we know? An integrative review. Palliat Med. 2014;28(1):18–33.
Lloyd L. What do we know about the congruence between what older people prioritize at the end of life and policy and practices? Oxford: Oxford University Press; 2011.