The international fibrodysplasia ossificans progressiva association
Tóm tắt
The International Fibrodysplasia Ossificans Progressiva (FOP) Association was, founded by patient Jeannie Peeper in June of 1988 to educate patients, doctors, and the public about FOP: to raise funds and provide a patient base to support medical research into FOP: and to support patients with FOP and their families by providing a network of communication to help end the isolation that accompanies this rare and severely disabling condition.
Tài liệu tham khảo
Rocke DM, Zasloff M, Peeper J, Cohen RB, Kaplan FS. 1994 Age and joint-specific risk of initial heterotopic ossification in patients who have fibrodysplasia ossificans, progressiva. Clin Orthop 301:243–248.