Tensions and challenges concerning ethics on video research with young children - experiences from an international collaboration among seven countries
Tóm tắt
This article and the four videos linked to this article are a result of the earliest experiences in establishing an international research collaboration among seven countries in the Project Social and emotional experiences in transition through the early years. We draw attention to the complex issues surrounding the many processes, beliefs and attitudes about infants in research that permeated our processes of gaining ethical approval for the international study and which posed many challenges for our project. Through a process of reflective analysis, we have identified a range of ethical tensions and issues which the different countries involved in this international study faced in gaining ethical approval from their institutional ethical committees for their collaborative participation. More specifically, we identify one persistent tension concerning the use of video data in research on young children. This tension is a result of diverse interpretations of international ethical codes, alongside local restrictions and ethics review processes. It illuminates various positions concerning the protection of infants’ privacy versus the benefits of using non-anonymous video data both in joint analysis, and even further, in open publishing. Such positions have been widely debated in research with adults, whereupon many of the ethically challenging questions have been dealt with through processes of acquiring informed consents from the participants. In case of infants, however, the role and nature of informed consents is different from research with adults, as is the role of the adult in using infant ‘data’ in research. For most cases, informed consents are acquired from the parents or the legal guardians that are not necessarily present on a day-to-day basis in the actual data collection process in early years educational settings. The question of children’s own assents for study is widely debated and this is no less so in the project we present in this paper. On the basis of the experiences in this international collaboration, and the challenges and tensions identified in between diverse cultural context and ethical review boards and practices, we propose that more dialogue in relation to research ethics on video research is needed within the diverse research communities and contexts, both locally and internationally. The dialogue is important to include also the representatives from the ethical committees, as the new (open) mediums for publishing are becoming more relevant and promising. Most important, ultimately, is the dialogue among the research participants, including where possible infants as contributors in their own right (as opposed to vulnerable subjects), and researchers in all phases of the research process.
Tài liệu tham khảo
Airini TVM, Sauni LS, Leaupepe M, Pua V, Tuafuti P (2009) This road belongs to me: Promising practices in distance education. In: Jensson J, Carpenter VM, Mclean M, Stephenson M, Airini (eds) University Teaching Reconsidered: Justice, practice, inquiry. Dunmore Press, Wellington, pp 79–92
Alasuutari P (2009) The domestication of worldwide policy models. Ethnol Eur 39(1):66–71
Alasuutari P, Alasuutari M (2012) The domestication of early childhood education plans in Finland. Global Social Policy 12(2):129–148
Amorim KS, Dentz MV & Costa NMS (2018) Videogravação nas Ciências Humanas: O dilema entre potencial da imagem e direito de preservação da identidade. In Leme M I S, Cagnin S & Leite S A S (eds) Pesquisa aplicada em Psicologia: implicações éticas. Campinas: Mercado das Letras, pp 13-48.
Carvalho AMA, Bergamasco NHP, Lyra CDP, Pedrosa MIP, Rubiano MRB, Rossetti-Ferreira MC, Oliveira ZMR, Vasconcellos VMR (1996) Registro de Vídeo na Pesquisa em Psicologia: Reflexões a partir de Relatos de Experiência (Videorecordings on developmental research: reflections based on experience reports). Psicologia Teoria e Pesquisa 12(3):261–267
CIOMS (1993) International Ethical Guidelines for Biomed Res Involving Humans. https://cioms.ch/wpcontent/uploads/2016/08/International_Ethical_Guidelines_for_Biomedical_Research_Involving_Human_Subjects.pdf. Accessed 6 Nov 2017.
Delgado AC, Müller F (2005) Em busca de metodologias investigativas com as crianças e suas culturas (searching for investigative methodologies with children and their cultures). Cad Pesqui 35(125):161–179
Erickson F (2011) Uses of video in social research: a brief history. International journal of social research methodology, issue 3: video based. Soc Res 14(3):179–189 https://doi.org/10.1080/13645579.2011.563615
Fleer M, Ridgeway A (eds) (2014) Visual methodologies and digital tools for researching with young children: transforming visuality. Springer, Dordrecht
Franciulli Neto D (2004) A proteção ao direito à imagem e a Constituição federal (the protection for the right to image and the Federal Constitution). Informativo Jurídico da Biblioteca Ministro Oscar Saraiva 16(1):1–74 http://www.stj.jus.br/publicacaoinstitucional//index.php/informativo/article/view/442/400. Accessed Apr 08 2017
Gaffney, M. & White, E.J. (2018, in press). Video activism as political advocacy for social justice: The legacy of Professor Anne Smith in education. Video Journal of Education and Pedagogy.
Jobim Souza S (2007) Dialogismo e alteridade na utilização da imagem técnica em pesquisa acadêmica: questões éticas e metodológicas. In: (Dialogism and alterity in the use of image tecnique in academic research: ehtical and metholofogical issues) Ciências Humanas e pesquisa: Uma leitura de Mikhail Bakhtin. Cortez, São Paulo, pp 77–94
Kreppner K (2001) Sobre a maneira de produzir dados no estudo da interação social (about the way to produce data in social interaction studies). Psicologia: Teoria e Pesquisa 17(2):97–107
Lester PM (2018) Visual ethics: A guide for photographers, journalists and filmmakers. Routledge, New York & London
Marwick H (2017) Supporting concordant intersubjectivity and sense of ‘belonging’ for under three-yearolds in early years settings. In: Dalli C, White J (eds) Under three year olds in policy and practice. Springer Publications, Singapore, (p 101–122)
Marwick H, Doolin O, Allely CS, McConnachie A, Johnson P, Puckering C, Golding J, Gillberg C, Wilson P (2013) Predictors of diagnosis of child psychiatric disorder in adult-infant social-communicative interaction at 12 months. Research in Developmental Disabilities 34:562–572
Meade A (2015) Catching the Waves: Innovation in Early Child Educ, Wellington. New Zealand Council for Educ Res, New Zealand http://www.nzcer.org.nz/nzcerpress/catching-waves-innovation-early-childhood-education?cPath=139_133_44&products_id=1334 Accessed 31 Mar 2018
NIH (1947). Nuremberg Code. https://historynihgov/research/downloads/nurembergpdf Accessed 6 Nov 2017
Ramos N (2010) Cinema e pesquisa em ciências sociais e humanas: contribuição do filme etnopiscológico Para o estudo da infância e culturas (cinema and research in human and social sciences: contribution of etnopsychological movie for the study of infancy and culture). Contemporânea, 8(2). https://portalseer.ufba.br/index.php/contemporaneaposcom/article/view/4817/3575. Accessed Apr 25 2017
Rodrigues R B (n.d.) Direito à imagem e dano moral: reparação por meio de indenização pecuniária (Right to image and moral damage: amendment through pecuniary compensation). Revista dos Estudantes de Direito da UnB, 7ª Edição. http://www.arcos.org.br/periodicos/revista-dos-estudantes-de-direito-da-unb/7a-edicao/direito-a-imagem-e-dano-moral-reparacao-por-meio-de-indenizacao-pecuniaria. Accessed 26 Mar 2017
Rutanen N, Amorim K S, Colus K, Piattoeva N (2013) What is Best for the Child? Early Childhood Education and Care for Children under 3 Years of Age in Brazil and in Finland. International Journal of Early Childhood 45:1–21
Spink MJ (2000) A ética na pesquisa social: da perspectiva prescritiva a interanimacao dialógica (Ethics in social investigation: from a prescriptive perspective to a dilogical interanimation). Psico (Porto Alegre) 31(1):7–22
United Nations (1959) Declaration of the rights of the child. New York. http://www.cirp.org/library/ethics/UN-declaration/. Accessed 6 Nov 2017
United Nations (1966a) Universal declaration of human rights. http://www.un.org/en/universal-declaration-human-rights/index.html. Accessed 6 Nov 2017
United Nations (1966b) International Covenant on Civil and Political Rights. https://www.un.org/ruleoflaw/blog/document/international-covenant-on-civil-and-political-rights/ Accessed 6 Nov 2017
White E J (2011a) Summary: Lessons learnt and future provocations. In E Johansson E & White E J (eds), Educational Research with Our Youngest: Voices of Infants and Toddlers (pp. 185–202). Springer. Dordrechdt, The Netherlands
White, E.J. (2011b). “Now you see me, now you do not”: Dialogic loopholes in authorship activity with the very young. Psychology Research 1(6)
White E J (2012) Cry baby, cry: A dialogic response to emotion. Mind, Culture and Activity 20(1):62–78
White J (2016) More than meets the “I”: A polyphonic approach to video as dialogic meaning-making. Video Journal of Education and Pedagogy 1(6). https://doi.org/10.1186/s40990-016-0002-3
White E J (2017a) The ‘work of the eye’ in infant research: A visual encounter. In Li L, Quinones G & Ridgway A (eds) Studying Babies and Toddlers: Relationships in Cultural Contexts (pp. 123–136) Springer: Dordrechdt, The Netherlands. http://link.springer.com/book/10.1007%2F978-981-10-3197-7
White J (2017b) Video ethics and young children. Editorial. Video Journal of Education and Pedagogy 2(2). https://doi.org/10.1186/s40990-017-0012-9
White E J, Peer M & Redder B (2015). Infant-teacher dialogues: A pedagogical imperative? Early Childhood Quarterly 30: 160–173. http://www.sciencedirect.com/science/article/pii/S0885200614001197
WHO (1993). Council for International Organizations of Medical Sciences (CIOMxS)
WMA (1964) Helsinki declaration. https://www.wma.net/policies-post/wma-declaration-of-helsinki-ethical-principles-for-medical-research-involving-human-subjects/ Accessed 6 Nov 2017
WMA (1975) Helsinki declaration. https://www.wma.net/policies-post/wma-declaration-of-helsinki-ethical-principles-for-medical-research-involving-human-subjects/ Accessed 6 Nov 2017
WMA (1983) Helsinki declaration. https://www.wma.net/policies-post/wma-declaration-of-helsinki-ethical-principles-for-medical-research-involving-human-subjects/ Accessed 6 Nov 2017
WMA (1989) Helsinki declaration. https://www.wma.net/policies-post/wma-declaration-of-helsinki-ethical-principles-for-medical-research-involving-human-subjects/ Accessed 6 Nov 2017
WMA (1996) Helsinki declaration. https://www.wma.net/policies-post/wma-declaration-of-helsinki-ethical-principles-for-medical-research-involving-human-subjects/ Accessed 6 Nov 2017
WMA (2000) Helsinki declaration. https://www.wma.net/policies-post/wma-declaration-of-helsinki-ethical-principles-for-medical-research-involving-human-subjects/ Accessed 6 Nov 2017
WMA (2002) Helsinki declaration. https://www.wma.net/policies-post/wma-declaration-of-helsinki-ethical-principles-for-medical-research-involving-human-subjects/ Accessed 6 Nov 2017
WMA (2004) Helsinki declaration. https://www.wma.net/policies-post/wma-declaration-of-helsinki-ethical-principles-for-medical-research-involving-human-subjects/ Accessed 6 Nov 2017
WMA (2008) Helsinki declaration. https://www.wma.net/policies-post/wma-declaration-of-helsinki-ethical-principles-for-medical-research-involving-human-subjects/ Accessed 6 Nov 2017