Nhu cầu chăm sóc tự nhận thức và chất lượng cuộc sống của người bị suy giảm nhận thức trong quá trình chăm sóc tại nhà: Kết quả nghiên cứu cắt ngang của một nghiên cứu can thiệp

Hoel KA, Rokstad AMM, Feiring IH, Lichtwarck B, Selbæk G, Bergh S. Person-centered dementia care in home care services - highly recommended but still challenging to obtain: a qualitative interview study. BMC Health Serv Res. 2021;21(1):723. https://doi.org/10.1186/s12913-021-06722-8. Tahami Monfared AA, Byrnes MJ, White LA, Zhang Q. Alzheimer’s Disease: Epidemiology and Clinical Progression. Neurol Ther. 2022;11(2):553–69. https://doi.org/10.1007/s40120-022-00338-8. Brooker H, Williams G, Hampshire A, Corbett A, Aarsland D, Cummings J et al. 2020;12(1):e12098. doi: https://doi.org/10.1002/dad2.12098. Revi M. Alzheimer’s Disease Therapeutic Approaches. Adv Exp Med Biol. 2020;1195:105–16. https://doi.org/10.1007/978-3-030-32633-3_15. Fang EF, Xie C, Schenkel JA, Wu C, Long Q, Cui H et al. A research agenda for ageing in China in the 21st century (2nd edition): Focusing on basic and translational research, long-term care, policy and social networks. Ageing Res Rev. 2020;64:101174. doi: https://doi.org/10.1016/j.arr.2020.101174. The Lancet Public Health. Strengthening public health in China. Lancet Public Health. 2020;5(12):e628. https://doi.org/10.1016/S2468-2667(20)30268-1. Hendlmeier I, Bickel H, Heßler-Kaufmann JB, Schäufele M. Care challenges in older general hospital patients: impact of cognitive impairment and other patient-related factors. Z Gerontol Geriatr. 2019;52(Suppl 4):212–21. https://doi.org/10.1007/s00391-019-01628-x. Jia L, Du Y, Chu L, Zhang Z, Li F, Lyu D, COAST Group, et al. Prevalence, risk factors, and management of dementia and mild cognitive impairment in adults aged 60 years or older in China: a cross-sectional study. Lancet Public Health. 2020;5(12):e661–71. https://doi.org/10.1016/S2468-2667(20)30185-7. Wang HY, Lv X, Du J, Kong G, Zhang L. Age- and gender-specific prevalence of Frailty and its outcomes in the Longevous Population: the chinese longitudinal healthy longevity study. Front Med (Lausanne). 2021;8:719806. https://doi.org/10.3389/fmed.2021.719806. Ward A, Arrighi HM, Michels S, Cedarbaum JM. Mild cognitive impairment: disparity of incidence and prevalence estimates. Alzheimers Dement. 2012;8(1):14–21. https://doi.org/10.1016/j.jalz.2011.01.002. Lu H, Wang XD, Shi Z, Yue W, Zhang Y, Liu S, et al. Comparative analysis of cognitive impairment prevalence and its etiological subtypes in a rural area of northern China between 2010 and 2015. Sci Rep. 2019;9(1):851. https://doi.org/10.1038/s41598-018-37286-z. Jorge C, Cetó M, Arias A, Blasco E, Gil MP, López R, et al. Level of understanding of Alzheimer disease among caregivers and the general population. Neurologia (Engl Ed). 2021;36(6):426–32. https://doi.org/10.1016/j.nrleng.2018.03.004. Klein OA, Boekholt M, Afrin D, Dornquast C, Dreier-Wolfgramm A, Keller A, et al. Effectiveness of a digitally supported care management programme to reduce unmet needs of family caregivers of people with dementia: study protocol for a cluster randomised controlled trial (GAIN). Trials. 2021;22(1):401. https://doi.org/10.1186/s13063-021-05290-w. Miranda-Castillo C, Woods B, Orrell M. People with dementia living alone: what are their needs and what kind of support are they receiving? Int Psychogeriatr. 2010;22(4):607–17. https://doi.org/10.1017/S104161021000013X. Kerpershoek L, de Vugt M, Wolfs C, Woods B, Jelley H, Orrell M, Actifcare Consortium, et al. Needs and quality of life of people with middle-stage dementia and their family carers from the european actifcare study. When informal care alone may not suffice. Aging Ment Health. 2018;22(7):897–902. https://doi.org/10.1080/13607863.2017.1390732. Black BS, Johnston D, Rabins PV, Morrison A, Lyketsos C, Samus QM. Unmet needs of community-residing persons with dementia and their informal caregivers: findings from the maximizing independence at home study. J Am Geriatr Soc. 2013;61(12):2087–95. https://doi.org/10.1111/jgs.12549. Eichler T, Thyrian JR, Hertel J, Richter S, Wucherer D, Michalowsky B, et al. Unmet needs of Community-Dwelling Primary Care patients with dementia in Germany: prevalence and correlates. J Alzheimers Dis. 2016;51(3):847–55. https://doi.org/10.3233/JAD-150935. Zhang J, Xu X, Yang L, Wang J. Met and unmet care needs of home-living people with dementia in China: an observational study using the Camberwell Assessment of need for the Elderly. Geriatr Gerontol Int. 2021;21(1):102–7. https://doi.org/10.1111/ggi.14093. Abdi S, Spann A, Borilovic J, de Witte L, Hawley M. Understanding the care and support needs of older people: a scoping review and categorisation using the WHO international classification of functioning, disability and health framework (ICF). BMC Geriatr. 2019;19(1):195. https://doi.org/10.1186/s12877-019-1189-9. Ding X, Abner EL, Schmitt FA, Crowley J, Goodman P, Kryscio RJ. Mental Component score (MCS) from Health-Related Quality of Life predicts incidence of Dementia in U.S. males. J Prev Alzheimers Dis. 2021;8(2):169–74. https://doi.org/10.14283/jpad.2020.50. Lin BL, Mei YX, Wang WN, Wang SS, Li YS, Xu MY, et al. Unmet care needs of community-dwelling stroke survivors: a systematic review of quantitative studies. BMJ Open. 2021;11(4):e045560. https://doi.org/10.1136/bmjopen-2020-045560. Haraldstad K, Wahl A, Andenæs R, Andersen JR, Andersen MH, Beisland E, et al. LIVSFORSK network. A systematic review of quality of life research in medicine and health sciences. Qual Life Res. 2019;28(10):2641–50. https://doi.org/10.1007/s11136-019-02214-9. Ware JE Jr, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. conceptual framework and item selection. Med Care. 1992;30(6):473–83. Hoe J, Hancock G, Livingston G, Orrell M. Quality of life of people with dementia in residential care homes. Br J Psychiatry. 2006;188:460–4. https://doi.org/10.1192/bjp.bp.104.007658. Hughes TB, Black BS, Albert M, Gitlin LN, Johnson DM, Lyketsos CG, et al. Correlates of objective and subjective measures of caregiver burden among dementia caregivers: influence of unmet patient and caregiver dementia-related care needs. Int Psychogeriatr. 2014;26(11):1875–83. https://doi.org/10.1017/S1041610214001240. Zhao H, Wu B, Shi J, Reifsnider E, Fan J, Li J, et al. Chinese Medical students’ attitudes toward older adults and willingness to consider a Career in Geriatric Medicine: a cross-sectional survey. Teach Learn Med. 2020;32(5):486–93. https://doi.org/10.1080/10401334.2020.1784739. Katzman R, Zhang MY, Ouang-Ya-Qu, Wang ZY, Liu WT, Yu E, et al. A chinese version of the Mini-Mental State examination; impact of illiteracy in a Shanghai dementia survey. J Clin Epidemiol. 1988;41(10):971–8. https://doi.org/10.1016/0895-4356(88)90034-0. Zhang MY, Katzman R, Salmon D, Jin H, Cai GJ, Wang ZY, et al. The prevalence of dementia and Alzheimer’s disease in Shanghai, China: impact of age, gender, and education. Ann Neurol. 1990;27(4):428–37. https://doi.org/10.1002/ana.410270412. Liu Y, Ma W, Li M, Han P, Cai M, Wang F, et al. Relationship between physical performance and mild cognitive impairment in Chinese Community-Dwelling older adults. Clin Interv Aging. 2021;16:119–27. https://doi.org/10.2147/CIA.S288164. Pérez-Ros P, Vila-Candel R, Martin-Utrilla S, Martínez-Arnau FM. Health-Related Quality of Life in Community-Dwelling older people with cognitive impairment: EQ-5D-3L Measurement Properties. J Alzheimers Dis. 2020;77(4):1523–32. https://doi.org/10.3233/JAD-200806. Bakker C, de Vugt ME, van Vliet D, Verhey F, Pijnenburg YA, Vernooij-Dassen MJ, et al. Unmet needs and health-related quality of life in young-onset dementia. Am J Geriatr Psychiatry. 2014;22(11):1121–30. https://doi.org/10.1016/j.jagp.2013.02.006. Monin JK, Jorgensen TD, MacNeil Vroomen JL. Self-Reports and Caregivers’ Proxy Reports of Unmet needs of persons with dementia: implications for both Partners’ Health-Related Quality of Life. Am J Geriatr Psychiatry. 2020;28(3):363–7. https://doi.org/10.1016/j.jagp.2019.10.006. Ren XS, Amick B 3rd, Zhou L, Gandek B. Translation and psychometric evaluation of a chinese version of the SF-36 Health Survey in the United States. J Clin Epidemiol. 1998;51(11):1129–38. https://doi.org/10.1016/s0895-4356(98)00104-8. Lin Y, Yu Y, Zeng J, Zhao X, Wan C. Comparing the reliability and validity of the SF-36 and SF-12 in measuring quality of life among adolescents in China: a large sample cross-sectional study. Health Qual Life Outcomes. 2020;18(1):360. https://doi.org/10.1186/s12955-020-01605-8. Wang R, Wu C, Ma XQ, Zhao YF, Yan XY, Jia He. Health-related quality of life in chinese people: a population-based survey of five cities in China. Scand J Public Health. 2011;39(4):410–8. https://doi.org/10.1177/1403494810395817. Gorgoraptis N, Zaw-Linn J, Feeney C, Tenorio-Jimenez C, Niemi M, Malik A, et al. Cognitive impairment and health-related quality of life following traumatic brain injury. NeuroRehabilitation. 2019;44(3):321–31. https://doi.org/10.3233/NRE-182618. Siverová J, Bužgová R. The effect of reminiscence therapy on quality of life, attitudes to ageing, and depressive symptoms in institutionalized elderly adults with cognitive impairment: a quasi-experimental study. Int J Ment Health Nurs. 2018;27(5):1430–9. https://doi.org/10.1111/inm.12442. Brickman AM, Riba A, Bell K, Marder K, Albert M, Brandt J, et al. Longitudinal assessment of patient dependence in Alzheimer disease. Arch Neurol. 2002;59(8):1304–8. https://doi.org/10.1001/archneur.59.8.1304. McLaughlin T, Feldman H, Fillit H, Sano M, Schmitt F, Aisen P, et al. Dependence as a unifying construct in defining Alzheimer’s disease severity. Alzheimers Dement. 2010;6(6):482–93. https://doi.org/10.1016/j.jalz.2009.09.004. Bassiony MM, Youssef UM, Hassan MS, Salah El-Deen GM, El-Gohari H, Abdelghani M, et al. Cognitive impairment and tramadol dependence. J Clin Psychopharmacol. 2017;37(1):61–6. https://doi.org/10.1097/JCP.0000000000000617. Shao W, He X, Li X, Tao W, Zhang J, Zhang S, et al. Disrupted White Matter Networks from subjective memory impairment to amnestic mild cognitive impairment. Curr Alzheimer Res. 2021. https://doi.org/10.2174/1567205018666210324115817. Dickson VV, Tkacs N, Riegel B. Cognitive influences on self-care decision making in persons with heart failure. Am Heart J. 2007;154(3):424–31. https://doi.org/10.1016/j.ahj.2007.04.058. Hajduk AM, Lemon SC, McManus DD, Lessard DM, Gurwitz JH, Spencer FA, et al. Cognitive impairment and self-care in heart failure. Clin Epidemiol. 2013;5:407–16. https://doi.org/10.2147/CLEP.S44560. Rossor MN, Fox NC, Mummery CJ, Schott JM, Warren JD. The diagnosis of young-onset dementia. Lancet Neurol. 2010;9(8):793–806. https://doi.org/10.1016/S1474-4422(10)70159-9. Arthur PB, Gitlin LN, Kairalla JA, Mann WC. Relationship between the number of behavioral symptoms in dementia and caregiver distress: what is the tipping point? Int Psychogeriatr. 2018;30(8):1099–107. https://doi.org/10.1017/S104161021700237X. Jenny Wei YJ, Chen C, Fillingim RB, DeKosky ST, Schmidt S, Pahor M, et al. Uncontrolled Pain and Risk for Depression and behavioral symptoms in residents with dementia. J Am Med Dir Assoc. 2021;22(10):2079–2086e5. https://doi.org/10.1016/j.jamda.2021.05.010. Tapia Muñoz T, Slachevsky A, León-Campos MO, Madrid M, Caqueo-Urízar A, Rohde GC, et al. Predictors of unmet needs in chilean older people with dementia: a cross-sectional study. BMC Geriatr. 2019;19(1):106. https://doi.org/10.1186/s12877-019-1131-1. Vellone E, Fida R, D’Agostino F, Mottola A, Juarez-Vela R, Alvaro R, et al. Self-care confidence may be the key: a cross-sectional study on the association between cognition and self-care behaviors in adults with heart failure. Int J Nurs Stud. 2015;52(11):1705–13. https://doi.org/10.1016/j.ijnurstu.2015.06.013. Schneider J, Hallam A, Murray J, Foley B, Atkin L, Banerjee S, et al. Formal and informal care for people with dementia: factors associated with service receipt. Aging Ment Health. 2002;6(3):255–65. https://doi.org/10.1080/13607860220142486. Stein J, Pabst A, Luck T, Lühmann D, Heser K, Jessen F, et al. AgeCoDe and AgeQualiDe Study Group. Unmet care needs in the Oldest Old Primary Care Patients with Cognitive Disorders: results of the AgeCoDe and AgeQualiDe Study. Dement Geriatr Cogn Disord. 2017;44(1–2):71–83. https://doi.org/10.1159/000478850. Logsdon RG, McCurry SM, Teri L. Evidence-based interventions to Improve Quality of Life for individuals with dementia. Alzheimers care today. 2007;8(4):309–18. Lam FM, Huang MZ, Liao LR, Chung RC, Kwok TC, Pang MY. Physical exercise improves strength, balance, mobility, and endurance in people with cognitive impairment and dementia: a systematic review. J Physiother. 2018;64(1):4–15. https://doi.org/10.1016/j.jphys.2017.12.001. Song D, Yu DSF. Effects of a moderate-intensity aerobic exercise programme on the cognitive function and quality of life of community-dwelling elderly people with mild cognitive impairment: a randomised controlled trial. Int J Nurs Stud. 2019;93:97–105. https://doi.org/10.1016/j.ijnurstu.2019.02.019.