Quality of life and the related factors in spouses of veterans with chronic spinal cord injury

Health and Quality of Life Outcomes - 2013
Mohammad H. Ebrahimzadeh1, Bibi-Soheila Shojaei1, Farideh Golhasani-Keshtan1, Seyed Hossein Soltani-Moghaddas1, Asieh Sadat Fattahi2, S M Mazloumi1
1Orthopedic and Trauma Research Center, Department of Orthopedic Surgery, University of Medical Sciences, Mashhad, Iran
2Endoscopic Research Center, Department of Surgery, University of Medical Sciences, Mashhad, Iran

Tóm tắt

Abstract Background The quality of life (QOL) of caregivers of individuals with chronic spinal cord injuries may be affected by several factors. Moreover, this issue is yet to be documented fully in the literature. The purpose of this study was to evaluate the health related quality of life of spouses who act as primary caregivers of veterans with chronic spinal cord injuries in Iran. Methods The study consisted of 72 wives of 72 veterans who were categorized as spinal cord injured patients based on the American Spinal Injury Association (ASIA) classification. Health related quality of life was assessed by the Short Form (SF-36) Health Survey. Pearson's correlation was carried out to find any correlation between demographic variables with SF-36 dimensions. To find the effect of the factors like age, employment status, duration of care giving, education, presence or absence of knee osteoarthritis, and mechanical back pain on different domains of the SF-36 health survey, Multivariate analysis of variance (MANOVA) was used. Results The mean age of the participants was 44.7 years. According to the ASIA classification 88.9% and 11.1% of the veterans were paraplegic and tetraplegic respectively. Fifty percent of them had a complete injury (ASIA A) and 85% of the spouses were exclusive care givers. All of the SF-36 scores of the spouses were significantly lower than the normal population. Pearson's correlation demonstrated a negative significant correlation between both age and duration of caring with the PF domain. The number of children had a negative correlation with RE and VT. Conclusion The burden of caregiving can impact the QOL of caregivers and cause health problems. These problems can cause limitations for caregiver spouses and it can lead to a decrease in the quality of given care.

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Tài liệu tham khảo

Weitzenkamp DA, Gerhart KA, Charlifue SW, Whiteneck GG, Savic G: Spouses of spinal cord injury survivors: the added impact of caregiving. Arch Phys Med Rehabil 1997, 78: 822–827. 10.1016/S0003-9993(97)90194-5

Lim JW, Zebrack B: Caring for family members with chronic physical illness: a critical review of caregiver literature. Health Qual Life Outcomes 2004, 2: 50. 10.1186/1477-7525-2-50

Lapham-Randlov N: How the family copes with spinal cord injury: a personal perspective. Rehabil Nurs 1994, 19: 80–83. 10.1002/j.2048-7940.1994.tb01313.x

Gill M: Psychosocial implications of spinal cord injury. Crit Care Nurs Q 1999, 22: 1–7.

Russo J, Vitaliano PP, Brewer DD, Katon W, Becker J: Psychiatric disorders in spouse caregivers of care recipients with Alzheimer's disease and matched controls: a diathesis-stress model of psychopathology. J Abnorm Psychol 1995, 104: 197–204.

Devivo MJ, Fine PR: Spinal cord injury: its short-term impact on marital status. Arch Phys Med Rehabil 1985, 66: 501–504.

Zarit SH, Todd PA, Zarit JM: Subjective burden of husbands and wives as caregivers: a longitudinal study. Gerontologist 1986, 26: 260–266. 10.1093/geront/26.3.260

Shimoyama S, Hirakawa O, Yahiro K, Mizumachi T, Schreiner A, Kakuma T: Health-related quality of life and caregiver burden among peritoneal dialysis patients and their family caregivers in Japan. Perit Dial Int 2003, 23: 200–205.

Blanes L, Carmagnani MI, Ferreira LM: Health-related quality of life of primary caregivers of persons with paraplegia. Spinal Cord 2007, 45: 399–403. 10.1038/sj.sc.3102038

Hadrys T, Adamowski T, Kiejna A: Mental disorder in Polish families: is diagnosis a predictor of caregiver's burden? Soc Psychiatry Psychiatr Epidemiol 2011, 46: 363–372. 10.1007/s00127-010-0200-8

Zendjidjian X, Richieri R, Adida M, Limousin S, Gaubert N, Parola N: Quality of life among caregivers of individuals with affective disorders. J Affect Disord 2012, 136: 660–665. 10.1016/j.jad.2011.10.011

Unalan H, Gencosmanoglu B, Akgun K, Karamehmetoglu S, Tuna H, Ones K: Quality of life of primary caregivers of spinal cord injury survivors living in the community: controlled study with short form-36 questionnaire. Spinal Cord 2001, 39: 318–322. 10.1038/sj.sc.3101163

Hughes SL, Giobbie-Hurder A, Weaver FM, Kubal JD, Henderson W: Relationship between caregiver burden and health-related quality of life. Gerontologist 1999, 39: 534–545. 10.1093/geront/39.5.534

Chan RC: Stress and coping in spouses of persons with spinal cord injuries. Clin Rehabil 2000, 14: 137–144. 10.1191/026921500675826560

Montazeri A, Goshtasebi A, Vahdaninia M, Gandek B: The Short Form Health Survey (SF-36): translation and validation study of the Iranian version. Qual Life Res 2005, 14: 875–882. 10.1007/s11136-004-1014-5

Santo EAR, Gaíva MAM, Espinosa MM, Barbosa DA: Taking Care of Children With Cancer: Evaluation of the Caregivers’ Burden and Quality of Life. Rev Latino-Am Enfermagem 2011,19(3):515–522. 10.1590/S0104-11692011000300010

Gündüz B, Erhan B: Quality of Life of Stroke Patients' Spouses Living in The Community in Turkey:Controlled Study with Short Form-36 Questionnaire. J Neurol Sci (Turkish) 2008,25(4):226–234.

Rahimi-Movaghar V, Moradi-Lakeh M, Rasouli MR, Vaccaro AR: Burden of spinal cord injury in FTehran, Iran. Spinal Cord 2010, 48: 492–497. 10.1038/sc.2009.158

Post MW, Bloemen J, de Witte LP: Burden of support for partners of persons with spinal cord injuries. Spinal Cord 2005, 43: 311–319. 10.1038/sj.sc.3101704

Bedard M, Molloy DW, Squire L, Dubois S, Lever JA, O'DONNell M: The Zarit Burden Interview: a new short version and screening version. Gerontologist 2001, 41: 652–657. 10.1093/geront/41.5.652

Devins GM, Bink YM: Facilitating coping with chronic physical illness. In Handbook of coping: Theory, research, applications. Edited by: Zeidner M, Endler N. New York: John Wiley and Sons; 1996:640–696.

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