Palliative care rehabilitation survey: a pilot study of patients’ priorities for rehabilitation goals

Palliative Medicine - Tập 22 Số 7 - Trang 822-830 - 2008
MA Schleinich1, Sharon Warren2, Cheryl Nekolaichuk3, Terry Kaasa4, Sharon Watanabe3
1Tertiary Palliative Care Unit, Grey Nuns Community Hospital, Edmonton, Alberta, Canada.
2Rehabilitation Research Centre, Faculty of Rehabilitation Medicine, University of Alberta, Edmonton, Alberta
3Division of Palliative Care Medicine, Department of Oncology, University of Alberta, Edmonton, Alberta,
4Cross Cancer Institute, Edmonton, Alberta, Canada

Tóm tắt

Rehabilitation in palliative care is often overlooked. Settings that do consider occupational or physical therapy for palliative care patients often consult to therapists with competing caseloads. Few therapists specialise in palliative care, but nearly all ask, ‘What needs doing’? and ‘How well am I doing that’? No existing instruments address their questions. The objective is to develop and test a questionnaire for identifying patient goals and priorities for rehabilitation in palliative care. A questionnaire representing 11 domains of the Canadian Model of Occupational Performance was designed and pilot tested at four palliative care sites. Each question reflected a typical rehabilitation intervention in palliative care. Patients were asked to rate how important each of these interventions was on a numerical rating scale (0, not important–10, extremely important). Open-ended questions captured verbatim comments regarding thoughts of rehabilitation. The questionnaire was tested for test-retest reliability with two interviews approximately 1 week apart. Forty patients participated in the first interview and 32 in the second. Eight of eleven domain sub-scores achieved an intra-class correlation coefficient of 0.6 or higher. The highest means were for the physical (8.2), institutional (7.8) and self-care (7.8) domains on the first interview and for the spiritual domain (7.9) on the second interview. Suggestions are provided to shorten the questionnaire and strengthen validity. This work furthers the understanding of the role of rehabilitation in palliative care. It also illustrates the feasibility of involving palliative care patients in research that contributes to setting standards and measuring quality of service.

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Palliative Medicine

Tập 22 Số 7

822-830

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