Multi-sided platform and data-driven care research
Tóm tắt
Multi-sided platforms in healthcare often focus their business model on standardizing care for wide-spread, chronic diseases. However, there is a lack of knowledge surrounding platform business models enabling individualized care coordination for patients with rare diseases. This paper analyses the development of a complex platform business model addressing Amyotrophic Lateral Sclerosis, a severe neurological disease that requires the coordination of a diverse network of medical specialists, care, and equipment providers. A longitudinal case study examines the platform’s development, focusing subsequently on qualitative and efficient care coordination, care research, and active and direct involvement of patients, as well as establishing two business models, namely, care coordination and care research. We reconstruct how these complex platform business models were configured to improve patient care and care research, thereby creating immediate value for patients and insights for long-term care improvements. The ongoing platform development carefully balances value generation for diverse stakeholders and economic sustainability.
Tài liệu tham khảo
Aanestad, M., & Jensen, T. B. (2011). Building nation-wide information infrastructures in healthcare through modular implementation strategies. Journal of Strategic Information Systems, 20(2), 161–176. https://doi.org/10.1016/j.jsis.2011.03.006
Aanestad, M., Grisot, M., Hanseth, O., & Vassilakopoulou, P. (Eds.). (2017). Information infrastructures within European health care. Working with the installed base. Cham: Springer International Publishing.
Abell, D. F. (1980). Defining the business: The starting point of strategic planning. Englewood Cliffs, N.J: Prentice-Hall.
Alvesson, M., & Kärreman, D. (2007). Constructing mystery: Empirical matters in theory development. Academy of Management Review, 32(4), 1265–1281.https://doi.org/10.5465/amr.2007.26586822.
Amelung, V. E., Wolf, S., & Hildebrandt, H. (2012). Integrated care in Germany – A stony but necessary road! International Journal of Integrated Care, 12(1), 1–5. https://dx.doi.org/10.5334%2Fijic.853
Anderson, N., Potočnik, K., & Zhou, J. (2014). Innovation and creativity in organizations: A State-of-the-Science Review, Prospective Commentary, and Guiding Framework. Journal of Management, 40(5), 1297–1333. https://doi.org/10.1177/0149206314527128.
Artiga, S., & Hinton, E. (2018). Beyond health care: The role of social determinants in promoting health and health equity. Issue Report: Henry J Kaiser Family Foundation.
Bakker, M., Creemers, H., Schipper, K., Beelen, A., Grupstra, H., Nollet, F., & Abma, T. (2015). Need and value of case management in multidisciplinary ALS care: A qualitative study on the perspectives of patients, spousal caregivers, and professionals. Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration, 16(3–4), 180–186. https://doi.org/10.3109/21678421.2014.971811.
Baldwin, C. Y., & Woodard, J. C. (2009). The architecture of platforms: A unified view. Cheltenham, U.K. and Northampton: Edward Elgar Publishing.
Brandhorst, A., Hildebrandt, H., & Luthe, E.-W. (Eds.). (2017). Kooperation und Integration – das unvollendete Projekt des Gesundheitswesens. Wiesbaden: Springer.
Brynjolfsson, E., van Alstyne, M. W., & Renshaw, A. A. (1997). The matrix of change: A tool for business process reengineering. Sloan Management Reviews, 38(2), 37–54.
Ceccagnoli, M., Forman, C., Huang, P., & Wu, D. (2012). Co-creation of value in a platform ecosystem: The case of enterprise software. MIS Quarterly, 36(1), 263–290. https://doi.org/10.2307/41410417.
Eisenhardt, K. M. (1989). Building theories from case study research. Academy of Management Review, 14(4), 532–550. https://doi.org/10.5465/amr.1989.4308385.
Flyvbjerg, B. (2006). Five misunderstandings about case-study research. Qualitative Inquiry, 12(2), 219–245. https://doi.org/10.1177/1077800405284363.
Foss, N. J., & Saebi, T. (2018). Business models and business model innovation: Between wicked and paradigmatic problems. Long Range Planning, 51(1), 9–21. https://doi.org/10.1016/j.lrp.2017.07.006.
Funke, A., Grehl, T., Grosskreutz, J., Münch, C., Walter, B., Kettemann, D., Karnapp, C., Gajewski, N., Meyer, R., Maier, A., Gruhn, K.M., Prell, T., Kollewe, K., Abdulla, S., Kobeleva, X., Körner, S., Petri, S., & Meyer, T. (2015). Hilfsmittelversorgung bei der amyotrophen Lateralsklerose. Analyse aus 3 Jahren Fallmanagement in einem internetunterstützten Versorgungsnetzwerk. Nervenarzt, 86(8), 1007–1017. https://doi.org/10.1007/s00115-015-4398-2.
Funke, A., Spittel, S., Grehl, T., Grosskreutz, J., Kettemann, D., Petri, S., Weyen, U., Weydt, P., Dorst, J., Ludolph, A. C., Baum, P., Oberstadt, M., Jordan, B., Hermann, A., Wolf, J., Boentert, M., Walter, B., Gajewski, N., Maier, A., Münch, C., & Meyer, T. (2018). Provision of assistive technology devices among people with ALS in Germany: A platform-case management approach. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 19(5–6), 342–350. https://doi.org/10.1080/21678421.2018.1431786.
Fürstenau, D., Auschra, C., Klein, S., & Gersch, M. (2019). A process perspective on platform design and management: evidence from a digital platform in health care. Electronic Markets, 29(4), 581–596. https://doi.org/10.1007/s12525-018-0323-4.
Gassmann, O., Frankenberger, K., & Csik, M. (2014). The business model navigator. 55 models that will revolutionise your business. Harlow, England, London, New York, Boston, San Francisco: Pearson.
Gawer, A., & Cusumano, M. A. (2014). Industry platforms and ecosystem innovation. Journal of Product Innovation Management, 31(3), 417–433. https://doi.org/10.1111/jpim.12105.
Güell, M. R., Antón, A., Rojas-García, R., Puy, C., & Pradas, J. (2013). Comprehensive care of amyotrophic lateral sclerosis patients: A care model. Archivos de Bronconeumologia, 49(12), 529–533. https://doi.org/10.1016/j.arbr.2013.09.011.
Guggenberger, T., Möller, F., Boualouch, K., & Otto, B. (2020). Towards a unifying understanding of digital business models. Proceedings of the 24th Pacific Asia conference on information systems (PACIS).
Haddad, P., Schaffer, J. L., & Wickramasinghe, N. (2015). Evaluating business value of IT in healthcare: Three clinical practices from Australia and the US. Studies in Health Technology and Informatics, Volume 216: MEDINFO 2015: eHealth-enabled Health, 183-187. https://doi.org/10.3233/978-1-61499-564-7-183.
Hagiu, A., & Wright, J. (2015). Multi-sided platforms. International Journal of Industrial Organization, 43(11), 162–174. https://doi.org/10.1016/j.ijindorg.2015.03.003.
Harari, Y. N. (2017). Homo Deus. A brief history of tomorrow. London: Vintage.
Hein, A., Schreieck, M., Wiesche, M., Böhm, M., & Krcmar, H. (2019). The emergence of native multi-sided platforms and their influence on incumbents. Electronic Markets, 29(4), 631–647. https://doi.org/10.1007/s12525-019-00350-1.
Hwang, J., & Christensen, C. M. (2008). Disruptive innovation in health care delivery: A framework for business-model innovation. Health Affairs, 27(5), 1329–1335. https://doi.org/10.1377/hlthaff.27.5.1329.
ICHOM (2020). International consortium for health outcome measures. Retrieved from https://www.ichom.org.
Irwin, G., Topdijan, J., & Kaura, A. (2014). Putting an I in healthcare. Strategy+Business (71), 1–10.
Kazan, E. (2018). Towards a disruptive digital platform model. Copenhagen Business School. PhD series Nr., 25.2018.
Kelly, S., & Noonan, C. (2017). The doing of datafication (and what this doing does): Practices of edification and the enactment of new forms of sociality in the Indian public health service. Journal of the Association for Information Systems, 18(12), 872–899. https://doi.org/10.17705/1jais.00477.
Kornberger, M. (2017). The values of strategy: Valuation practices, rivalry and strategic agency. Organization Studies, 38(12), 1753–1773. https://doi.org/10.1177/0170840616685365.
Li, F. (2020). The digital transformation of business models in the creative industries: A holistic framework and emerging trends. Technovation, 92-93, 102012. https://doi.org/10.1016/j.technovation.2017.12.004.
Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Beverly Hills: Sage.
Locke, K., Golden-Biddle, K., & Feldman, M. S. (2008). Making doubt generative: Rethinking the role of doubt in the research process. Organization Science, 19(6), 907–918. https://doi.org/10.1287/orsc.1080.0398.
Mai, J.-E. (2016). Big data privacy: The datafication of personal information. The Information Society, 32(3), 192–199. https://doi.org/10.1080/01972243.2016.1153010.
Mandel, J. C., Kreda, D. A., Mandl, K. D., Kohane, I. S., & Ramoni, R. B. (2016). SMART on FHIR: A standards-based, interoperable apps platform for electronic health records. Journal of the American Medical Informatics Association, 23(5), 899–908. https://doi.org/10.1093/jamia/ocv189.
Mayring, P. (2000). Qualitative content analysis. Forum: Qualitative Social Research, 1(2), art. 20. Retrieved from http://www.qualitative-research.net/index.php/fqs/article/download/1089/2384
Mazzucato, M. (2019). The value of everything: Making and taking in the global economy: Penguin.
Meyer, T., Grosskreutz, J., Münch, C., Maier, A., Meyer, R., Kettemann, D., & Grehl, T. (2013). AmbulanzPartner – multiprofessionelles und internet-unterstütztes Versorgungsmanagement bei der ALS. Klinische Neurophysiologie, 44(02), 159–166.
Meyer, R., Spittel, S., Steinfurth, L., Funke, A., Kettemann, D., Münch, C., Meyer, T., & Maier, A. (2018). Patient-reported outcome of physical therapy in amyotrophic lateral sclerosis: Observational online study. JMIR Rehabilitation and Assistive Technologies, 5(2), e10099. https://doi.org/10.2196/10099.
Meyer, T., Funke, A., Münch, C., Kettemann, D., Maier, A., Walter, B., Thomas, A., & Spittel, S. (2019). Real world experience of patients with amyotrophic lateral sclerosis (ALS) in the treatment of spasticity using Tetrahydrocannabinol:Cannabidiol (THC:CBD). BMC Neurology, 19(1), 1–13. https://doi.org/10.1186/s12883-019-1443-y.
Meyer, T., Kettemann, D., Maier, A., Grehl, T., Weyen, U., Grosskreutz, J., Steinbach, R., Norden, J., George, A., Hermann, A., Guenther, R., Petri, S., Schreiber-Katz, O., Dorst, J., Ludolph, A. C., Walter, B., Münch, C., & Spittel, S. (2020). Symptomatic pharmacotherapy in ALS: Data analysis from a platform-based medication management programme. Journal of Neurology, Neurosurgery, and Psychiatry, 91(7), 783–785. https://doi.org/10.1136/jnnp-2020-322938.
Mini, T., & Widjaja, T. (2019). Tensions in digital platform business models: A literature review. Proceedings of the 40th International Conference on Information Systems (ICIS), 1-17.
Mitchell, J. D. (2000). Guidelines in motor neurone disease (MND)/amyotrophic lateral sclerosis (ALS)--from diagnosis to patient care. Journal of Neurology, 247, VI7–VI12. https://doi.org/10.1007/PL00007786.
Moghimi, H., de Steiger, R., Schaffer, J., & Wickramasinghe, N. (2013). The benefits of adopting e-performance management techniques and strategies to facilitate superior healthcare delivery: the proffering of a conceptual framework for the context of Hip and Knee Arthroplasty. Health & Technology, 3(3), 237–247. https://doi.org/10.1007/s12553-013-0057-4.
Muzellec, L., Ronteau, S., & Lambkin, M. (2015). Two-sided internet platforms: A business model lifecycle perspective. Industrial Marketing Management, 45(1), 139–150. https://doi.org/10.1016/j.indmarman.2015.02.012.
Nagasaka, T., & Takiyama, Y. (2015). Home- and community-based medical care for neurodegenerative diseases: ALS as an illustration. In K. Wada (Ed.), Neurodegenerative disorders as systemic diseases (pp. 237–275). Tokyo: Springer Japan. https://doi.org/10.1007/978-4-431-54541-5_11.
Newell, S., & Marabelli, M. (2015). Strategic opportunities (and challenges) of algorithmic decision-making: A call for action on the long-term societal effects of ‘datification’. Journal of Strategic Information Systems, 24(1), 3–14. https://doi.org/10.1016/j.jsis.2015.02.001.
Osterwalder, A., & Pigneur, Y. (2013). Business model generation. A handbook for visionaries, game changers, and challengers. New York: Wiley & Sons.
Otto, B., & Jarke, M. (2019). Designing a multi-sided data platform: Findings from the international data spaces case. Electronic Markets, 29(4), 561–580. https://doi.org/10.1007/s12525-019-00362-x.
Parker, G., Van Alstyne, M., & Jiang, X. (2017). Platform ecosystems: How developers invert the firm. MIS Quarterly, 41(1), 255–266. https://doi.org/10.2139/ssrn.2861574.
Porter, M. E. (2001). Strategy and the internet. Advances in Strategy, 79(3), 64–78.
Porter, M. E. (2008). Value-based health care delivery. Annals of Surgery, 248(4), 503–509. https://doi.org/10.1097/SLA.0b013e31818a43af.
Porter, M. E., & Guth, C. (2012). Chancen für das deutsche Gesundheitssystem: Von Partikularinteressen zu mehr Patientennutzen. Berlin: Springer Gabler.
Porter, M. E., & Teisberg, E. O. (2006). Redefining health care. Creating value-based competition on results. Bosten: Harvard Business School Press.
Raivio, Y., & Luukkainen, S. (2011). Mobile networks as a two-sided platform - case open telco. Journal of Theoretical and Applied Electronic Commerce Research, 6(2), 15–16. https://doi.org/10.4067/S0718-18762011000200008.
Remane, G., Hanelt, A., Tesch, J. F.A.N., & Kolbe, L. M. (2017). The business model pattern database - a tool for systematic business model innovation. International Journal of Innovation Management, 21(01), 1750004-1–1750004-61. https://doi.org/10.1142/S1363919617500049.
Rochet, J.-C., & Tirole, J. (2003). Platform competition in two-sided markets. Journal of the European Economic Association, 1(4), 990–1029. https://doi.org/10.1162/154247603322493212.
Sabatier, V., Mangematin, V., & Rousselle, T. (2010). From recipe to dinner: Business model portfolios in the european biopharmaceutical industry. Long Range Planning, 43(2–3), 431–447. https://doi.org/10.1016/j.lrp.2010.02.001.
Sackett, D. L., Rosenberg, W. M., Gray, J. A., Haynes, R. B., & Richardson, W. S. (1996). Evidence based medicine: What it is and what it isn't. British Medical Journal, 312(7023), 71–72. https://doi.org/10.1136/bmj.312.7023.71.
Schreier, M. (2014). Qualitative content analysis. In U. Flick (Ed.), The SAGE handbook of qualitative data analysis (pp. 170–183). London: Sage.
Seitzer, F., Kahrass, H., Neitzke, G., & Strech, D. (2016). The full spectrum of ethical issues in the care of patients with ALS: A systematic qualitative review. Journal of Neurology, 263(2), 201–209. https://doi.org/10.1007/s00415-015-7867-4.
Song, P., Xue, L., Rai, A., & Zhang, C. (2018). The ecosystem of software platform: A study of asymmetric cross-side network effects and platform governance. MIS Quarterly, 42(1), 121–142.
Soriani, M.-H., & Desnuelle, C. (2017). Care management in amyotrophic lateral sclerosis. Revue Neurologique, 173(5), 288–299. https://doi.org/10.1016/j.neurol.2017.03.031.
Strauss, A., & Corbin, J. M. (1990). Basics of qualitative research: Grounded theory procedures and techniques. Newbury Park, CA: Sage.
Täuscher, K., & Laudien, S.M. (2018). Understanding platform business models: A mixed methods study of marketplaces. European Management Journal, 36(3), 319–329. https://doi.org/10.1016/j.emj.2017.06.005.
Teece, D. J. (2010). Business models, business strategy and innovation. Long Range Planning, 43(2–3), 172–194. https://doi.org/10.1016/j.lrp.2009.07.003.
Timmers, P. (1998). Business models for electronic markets. Electronic Markets, 8(2), 3–8. https://doi.org/10.1080/10196789800000016.
van Alstyne, M. W., Parker, G. G., & Choudary, S. P. (2016). Pipelines, Platforms, and the new rules of strategy. Harvard Business Review, 94(4), 54–62.
Vassilakopoulou, P., Grisot, M., Jensen, T. B., Sellberg, N., Eltes, J., Thorseng, A. A., & Aanestad, M. (2017). Building national eHealth platforms: The challenge of inclusiveness. Proceedings of the 38th International Conference on Information Systems (ICIS).
Vega, J. (2013). Universal health coverage: The Post-2015 development agenda. The Lancet, 381(9862), 179–180.
Wickramasinghe, N., & Bodendorf, F. (Eds.) (2019). Delivering superior health and wellness management with IoT and analytics. Berlin: Springer.
Wickramasinghe, N., Silvers, J. B., Sloane, E. B., McCoy, M. J., & Schaffer, J. B. (2019). Data, denial, and disparity: Is this a new digital divide? In N. Wickramasinghe & F. Bodendorf (Eds.), Delivering superior health and wellness mangament with IoT and analytics (pp. 415-423) Berlin: Springer.
Xie, C., Bagozzi, R. P., & Troye, S. V. (2008). Trying to prosume: Toward a theory of consumers as co-creators of value. Journal of the Academy of Marketing Science, 36(1), 109–122. https://doi.org/10.1007/s11747-007-0060-2.
Yaraghi, N., Du, A. Y., Sharman, R., Gopal, R. D., & Ramesh, R. (2015). Health information exchange as a multisided platform: Adoption, usage, and practice involvement in service co-production. Information Systems Research, 26(1), 1–18. https://doi.org/10.1287/isre.2014.0547.
Yin, R. K. (2018). Case study research: Design and methods (6th ed.). Los Angeles: Sage.
Zenooz, A. M., & Fox, J. (2019). How new health care platforms will improve patient care. Harvard Business Review, 10(1), 1–8.
Zuboff, S. (2019). The age of surveillance capitalism: The fight for a human future at the new frontier of power (First ed.). New York: PublicAffairs.