Measuring quality of life in Japanese children: Development of the Japanese version of PedsQL

Pediatrics International - Tập 52 Số 1 - Trang 80-88 - 2010
Kyoko Kobayashi1, Kiyoko Kamibeppu1
1Department of Family Nursing, Division of Health Science and Nursing, Graduate School of Medicine, The University of Tokyo, Tokyo, Japan

Tóm tắt

AbstractBackground:  Health‐related quality of life (HRQL) is perceived as an important health‐care outcome. There are several systems for measuring the HRQL in adults but there are few such systems for children in Japan. Pediatric Quality of Life Inventory (PedsQL) is valid and demonstrates excellent reliability in the USA, Europe, and Asian countries. The aim of the present study was therefore to develop the Japanese version of PedsQL.Methods:  A two‐step procedure was performed: translation of PedsQL, followed by examination of the psychometric properties in a cross‐sectional study. The feasibility, reproducibility, internal consistency reliability, factor structure, and concurrent and clinical validity were examined.Results:  The internal consistency reliability of the Child Self‐Reports of young children was slightly low, but that of the Child Self‐Reports of school children and adolescents was good. Further, all the Parent Proxy‐Reports had excellent alphas. The Japanese version had satisfactory feasibility for all age ranges. The intercorrelation of subscales supported the multidimensional factor structure. Clinical validity was examined by analysis of variance performed for four groups with different health conditions (healthy, chronic needs only, mental condition only, and chronic needs and mental condition). The scores of each functioning scale differed among the four groups, with the healthy group having the highest scores for all functioning scales.Conclusions:  The Japanese version of PedsQL can be applied in community and school health settings in Japan. Because children with chronic health needs and mental conditions were included, the Japanese version of PedsQL is expected to be useful in clinical settings.

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Tài liệu tham khảo

World Health Organization, 1948, Constitution of the World Health Organization Basic Documents

10.1056/NEJM199603283341306

10.1016/0304-3959(93)90163-J

10.1023/A:1016693417166

10.1053/apmr.2000.20624

Enokido F, 1995, Quality of life (QOL) in the adolescence (1): The development of the questionnaire and its evaluation of the application to junior high school students, Hokuriku J. Neuropsychiatry, 9, 22

Matsuda N, 1999, A study on the development of an effective QOL assessment measure for children, J. Child Health, 58, 350

Nakamura N, 2002, Development of questionnaire to assess QOL for primary school children at third grade and upper and junior high school students, J. Child Health, 61, 806

Shibata R, 2003, A study of the Kid‐KINDL Questionnaire for measuring quality of life in elementary school children in Japan, J. Jpn. Pediatr. Soc, 107, 1514

10.1097/00005650-199902000-00003

Varni JW, 2002, PedsQL™ 4.0: Reliability and validity of the Pediatric Quality of Life Inventory™ version 4.0 generic core scales in healthy and patient populations, Med. Care, 39, 800, 10.1097/00005650-200108000-00006

10.1002/cncr.10428

10.1002/art.10095

10.2337/diacare.26.3.631

Varni JW, 2003, The PedsQL in pediatric asthma: Reliability and validity of the Pediatrics Quality of Life Inventory Generic Core Scales and Asthma Module, J. Behav. Med, 27, 297, 10.1023/B:JOBM.0000028500.53608.2c

Varni JW, 2006, The PedsQL in pediatric cerebral palsy: Reliability, validity, and sensitivity if the Generic Core Scales and Cerebral Palsy Module, Dev. Med. Child Neurol, 48, 442, 10.1017/S001216220600096X

10.1186/1477-7525-5-1

10.1016/S0895-4356(98)00082-1

10.1023/B:QURE.0000018483.01526.ab

10.1111/j.1469-7610.1987.tb00651.x

10.1177/014662167700100306

Murata T, 1996, Childhood depressive state in the school situation: Consideration from the Birleson's Scale, Jpn. J. Psychiatry, 1, 131

Shima S, 1985, New self‐rating scales for depression, Clin. Psychiatry, 27, 717

10.1007/BF02310555

Nunnally JC, 1967, Psychometric Theory, 206

10.1186/1477-7525-5-2

Uneri OS, 2008, Validity and reliability of Pediatric Quality of Life Inventory for 2‐ to 4‐year‐old and 5‐ to 7‐year‐old Turkish children, Qual. Life Res, 17, 305, 10.1007/s11136-007-9303-4

10.1097/00004356-200509000-00004

10.1023/A:1008801802877

10.1002/cncr.21871

Gkoltsuou K, 2008, Measuring health‐related quality of life in Greek children: Psychometric properties of the Greek version of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales, Qual. Life Res, 17, 299, 10.1007/s11136-007-9294-1