Khám Phá Trải Nghiệm Của Các Bậc Cha Trong Việc Chăm Sóc Trẻ Em Có Nhu Cầu Chăm Sóc Phức Tạp Qua Nghiên Cứu Dân Tộc Học Và Các Phương Pháp Dựa Trên Nghệ Thuật

Springer Science and Business Media LLC - Tập 24 - Trang 1-17 - 2024
Roberta L. Woodgate1, Miriam Gonzalez1, Jacquie D. Ripat2, Marie Edwards1, Gina Rempel3
1College of Nursing, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, Canada
2College of Rehabilitation Sciences, Department of Occupational Therapy, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, Canada
3Department of Pediatrics and Child Health, Rady Faculty of Health Sciences, CE-208 Children’s Hospital, Health Sciences Centre, Max Rady College of Medicine, University of Manitoba, Winnipeg, Canada

Tóm tắt

Mặc dù số lượng trẻ em sống với nhu cầu chăm sóc phức tạp (CCN) đang gia tăng trên toàn thế giới, dữ liệu về kinh nghiệm của các bậc cha chăm sóc trẻ em có CCN còn hạn chế. Bài báo này báo cáo về những phát hiện liên quan đến trải nghiệm của cha trong việc chăm sóc con cái có CCN và nhấn mạnh các khuyến nghị dành cho cha mẹ của trẻ em có CCN, nhà cung cấp dịch vụ và các nhà hoạch định chính sách. Những phát hiện này xuất phát từ một nghiên cứu lớn hơn được thiết kế để xem xét cách các gia đình Canada có trẻ em với CCN tham gia vào xã hội. Chúng tôi đã sử dụng phương pháp nghiên cứu định tính thông qua dân tộc học và các phương pháp dựa trên nghệ thuật (bản đồ sinh thái và photovoice), cũng như kỹ thuật lấy mẫu có mục đích và lấy mẫu chéo. Bốn phụ huynh đã tham gia tư vấn và hai mươi chín người cha tham gia các cuộc phỏng vấn (tất cả đều đã kết hôn hoặc có mối quan hệ; độ tuổi từ 28 đến 55 tuổi). Theo cách tiếp cận dân tộc học, phân tích dữ liệu đã trải qua nhiều bước lặp đi lặp lại bao gồm so sánh dữ liệu từ bộ phỏng vấn đầu tiên, thứ hai và thứ ba và tinh chỉnh các chủ đề. Một chủ đề chung có được, đó là nỗ lực để hiện diện cho trẻ em có CCN. Năm chủ đề hỗ trợ đã làm nổi bật cách mà các bậc cha đã cố gắng để hiện diện cho con cái: 1) đóng góp vào nhóm cha mẹ thông qua các vai trò khác nhau; 2) xây dựng khả năng tiếp cận thông qua sự thích ứng; 3) tham gia vào các hoạt động với con; 4) thể hiện sự ngưỡng mộ và tự hào về con cái của họ; và 5) tạo ra ý nghĩa. Các khuyến nghị dành cho cha mẹ bao gồm việc tạo ra và nuôi dưỡng các mối liên kết cũng như yêu cầu giúp đỡ, trong khi các khuyến nghị dành cho nhà cung cấp dịch vụ chăm sóc sức khỏe và xã hội bao gồm việc giao tiếp một cách chân thành với các gia đình và lắng nghe cha mẹ. Các bậc cha cũng cho biết rằng lãnh đạo và nguồn tài trợ cho các chương trình của gia đình có trẻ em với CCN nên là ưu tiên của các nhà hoạch định chính sách. Ngoài việc ghi nhận sự tham gia tích cực của các bậc cha trong việc chăm sóc và phát triển con cái của họ, những phát hiện của chúng tôi cung cấp cái nhìn mới về cách mà các bậc cha làm cho việc tham gia vào cuộc sống hàng ngày trở nên dễ tiếp cận và bao gồm cho con cái của họ. Những phát hiện trong nghiên cứu cũng chỉ ra 1) khu vực ưu tiên cho các nhà hoạch định chính sách (ví dụ: môi trường vật lý có khả năng tiếp cận); 2) các yếu tố quan trọng cho việc thúc đẩy nhóm chăm sóc hợp tác với các bậc cha; và 3) nhu cầu về các nhóm chăm sóc phức tạp trong hệ thống chăm sóc sức khỏe người lớn. Các hệ quả cho những người cung cấp hỗ trợ tâm lý xã hội cho các gia đình này cũng được nêu ra, cùng với những khoảng trống kiến thức đáng nghiên cứu trong tương lai như vai trò của sự đa dạng hoặc giao thoa trong việc nuôi dạy trẻ em có CCN.

Từ khóa

#Trẻ em có nhu cầu chăm sóc phức tạp #Cha #Nghiên cứu dân tộc học #Phương pháp nghệ thuật #Hỗ trợ tâm lý xã hội

Tài liệu tham khảo

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