Experiences of coeliac disease in a changing gluten‐free landscape

Journal of Human Nutrition and Dietetics - Tập 32 Số 1 - Trang 72-79 - 2019
James A. King1,2, Gilaad G. Kaplan1,3,4, Jenny Godley2,4
1Department of Community Health Sciences, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada
2Department of Sociology, Faculty of Arts, University of Calgary, Calgary, Alberta, Canada
3Department of Medicine, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada
4O'Brien Institute for Public Health, University of Calgary, Calgary, Alberta, Canada

Tóm tắt

AbstractBackgroundCoeliac disease is an autoimmune disorder triggered by the ingestion of gluten. In recent years, there has been considerable increase in the availability of gluten‐free products in North America. The present study investigated how the recent proliferation of the gluten‐free industry has affected individuals living with coeliac disease, with a primary focus on their social lives and relationships.MethodsInterpretive phenomenology was utilised for study design and analysis. Semi‐structured interviews were conducted with 17 adults diagnosed with coeliac disease in Calgary, Alberta. Interviews were audio recorded and then transcribed for analysis.ResultsPeople living with coeliac disease experience the growth of the gluten‐free industry as a ‘double‐edged sword’. Although they are grateful for more palatable gluten‐free options, they are increasingly faced with misunderstandings about the severity of coeliac disease as a result of many noncoeliac disease individuals subscribing to the gluten‐free diet. This ‘double‐edged sword’ made certain types of social situations more easily manageable (e.g. more gluten‐free options available at restaurants), whereas others produced distress (e.g. increased risk of inadvertently consuming gluten). Participants also felt they may be perceived or even perceived themselves differently (e.g. felt high maintenance). To help mitigate these social ramifications of following the gluten‐free diet, participants utilised various strategies.ConclusionsThe sole medical recommendation of a gluten‐free diet fails to acknowledge the ongoing difficulties those with coeliac disease can endure in the current gluten‐free landscape. Recommendations beyond the gluten‐free diet are advisable to alleviate many of the indirect burdens revealed in the present study.

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Thông tin xuất bản

Journal of Human Nutrition and Dietetics

Tập 32 Số 1

72-79

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