End-of-life medical decisions in France: a death certificate follow-up survey 5 years after the 2005 act of parliament on patients’ rights and end of life

BMC Palliative Care - Tập 11 Số 1 - 2012
Sophie Pennec1, Alain Monnier1, Silvia Pontone1, Régis Aubry2
1Institut National d'Etudes Démographiques, 133 Boulevard Davout, 75980, Paris Cedex 20, France
2Observatoire National de la Fin de Vie, Paris, France

Tóm tắt

Từ khóa


Tài liệu tham khảo

Loi n° 2005–370 du 22 avril 2005 relative aux droits des malades et à la fin de vie. Journal officiel de la République française. 2005, 23 rd April. Paris, 7089.

Deliens L, Mortier F, Bilsen J, Cosyns M, Stichele vander R, Vanoverloop J, Ingels K: End-of-life decisions in medical practice in Flanders, Belgium: a nationwide survey. Lancet. 2000, 356 (9244): 1806-1811. 10.1016/S0140-6736(00)03233-5.

Van Delden JM, Löfmark R, Deliens L, Bosshard G, Norup M, Cecioni R, Van der Heide A, EURELD Consortium: Do-not-resuscitate decisions in six European countries. Crit Care Med. 2006, 34 (6): 1689-1690.

Van der Heide A, Deliens L, Faisst K, Nilstun T, Norup M, Paci E, Van der Wal G, Van der Maas PJ: End-of-life decision-making in six european countries: descriptive study. Lancet. 2003, 362 (9381): 345-350. 10.1016/S0140-6736(03)14019-6.

Giannini A: End-of-life practices in european intensive care units. JAMA. 2003, 290 (22): 2939-10.1001/jama.290.22.2939-a.

Ferrand E, Marty J: Prehospital withholding and withdrawal of life-sustaining treatments. The French LATASAMU survey. Intensive Care Med. 2006, 32 (10): 1149-1154.

Ferrand E, Robert R, Ingrand P, Lemaire F: Withholding and withdrawal of life support in intensive-care units in France: a prospective survey. Lancet. 2001, 357: 9-14. 10.1016/S0140-6736(00)03564-9.

Le Conte P, Riochet D, Batard E, Volteau C, Giraudeau B, Arnaudet I, Labastire L, Levraut J, Thys F, Lauque D, et al: Death in emergency departments: a multicenter cross-sectional survey with analysis of withholding and withdrawing life support. Intensive Care Med. 2010, 36: 765-772. 10.1007/s00134-010-1800-1.

Ferrand E, Dreyfus J-F, Chastrusse M, Ellien F, Lemaire F, Fischler M: Evolution of requests to hasten death among patients managed by palliative care teams in France: A multicentre cross-sectional survey (DemandE). Eur J Cancer. 2012, 48 (3): 368-376. 10.1016/j.ejca.2011.09.020.

Chambaere K, Bilsen J, Cohen J, Pousset G, Onwuteaka-Philipsen DB, Mortier F, Deliens L: A post-mortem survey on end-of-life decisions using a representative sample of death certificates in Flanders, Belgium: research protocol. BMC Publ Health. 2008, 8 (299): 1-10.

Brouard N, Aubry R, Monnier A, Pennec S, Pontone S: Questionnaire auto-administré via l'Internet avec préservation de l'anonymat absolument nécessaire dans une enquête sur la « Fin de vie ». Sixième Colloque francophone sur les Sondages. 2010, Tanger, Maroc, [Self-administered questionnaire by Internet with preservation of anonymity absolutely necessary in a investigation of end-of life survey. 6th conference of French speaking association of surveys scientists].

Outcome rate calculator V3.1. 2010, http://www.aapor.org/researchers/ResponseRateCalculatorVer3.1_1_22_22_10.xls .

Observatoire national de la fin de vie: Fin de vie: un premier état des lieux - rapport 2011. 2012, 268-Paris https://sites.google.com/site/observatoirenationalfindevie/publications/rapport-annuel .

Le Conte P, Batard E, Pinaud V, Evain Y, Potel G: Décisions de limitation ou d'arrêt des thérapeutiques actives dans les services d'urgence (wilthholding and withdrawing decisions in the emergency department). Reanimation. 2008, 17 (8): 802-806. 10.1016/j.reaurg.2008.09.005.

Bilsen J: End-of-life decisions in medical practice in Flanders, Belgium. Beslissingen rond het levenseinde in de medische praktijk in Vlaanderen, België. 2005, Brussel: Vrije Universiteit

Bilsen J, Vander Stichele R, Broeckaert B, Mortier F, Deliens L: Changes in medical end-of-life practices during the legalization process of euthanasia in Belgium. Soc Sci Med. 2007, 65 (4): 803-808. 10.1016/j.socscimed.2007.04.016.

Van den Block L, Deschepper R, Bilsen J, Bossuyt N, Van Casteren V, Deliens L: Euthanasia and other end-of-life decisions: a mortality follow-back study in Belgium. BMC Publ Health. 2009, 9: 79-10.1186/1471-2458-9-79.

Cohen J, Van Delden JM, Mortier F, Löfmark R, Norup M, Cartwright C, Faisst K, Canova C, Onwuteaka-Philipsen BD, Bilsen J: Influence of physicians’ life stances on attitudes to end-of-life decisions and actual end-of-life decision-making in six countries. J Med Ethics. 2008, 34 (4): 247-253. 10.1136/jme.2006.020297.

Emanuel EJ, Fairclough DL, Daniels ER, Clarridge BR: Euthanasia and physician-assisted-suicide: attitudes and experiences of oncology patients, oncologists and the public. Lancet. 1996, 347: 1805-1810. 10.1016/S0140-6736(96)91621-9.

Hinkka H, Kosumen E, Lammi EK, Metsanoja R, Puustelli A, Kellokumpu-Lehtinen P: Decision making in terminal care: a survey of Finnish doctors' treatment decisions in end-of-life scenarios involving a terminal cancer and a terminal dementia patient. Palliat Med. 2002, 16: 195-204. 10.1191/0269216302pm510oa.

Kompanje EJO: End-of-life practices in european intensive care units. JAMA. 2003, 290 (22): 2938-2939. 10.1001/jama.290.22.2938-a.

Kuhse H, Singer P, Baume P, Clark M, Rickard M: End-of-life dedcisions in Australian medical practice. Med J Aust. 1997, 166: 191-196.

Van der Maas PJ, Van Delden JM, Pijnenborg L, Looman CWN: Euthanasia and other medical decisions concerning the end of life. Lancet. 1991, 338 (8768): 669-674. 10.1016/0140-6736(91)91241-L.

Van der Maas PJ, Van der Wal G, Haverkate I, De Graaff CLM, Kester JGC, Onwuteaka-Philipsen BD, Van der Heide A, Bosma JM, Willems DL: Euthanasia, physician-assisted suicide, and other medical practices involving the end of life in the Netherlands, 1990–1995. N Engl J Med. 1996, 335 (22): 1699-1705. 10.1056/NEJM199611283352227.

Maessen M, Veldink JH, Onwuteaka-Philipsen DB, Vries De JM, Wokke JHJ, Van der Wal G, Van der Berg LH: Trends and determinants of end-of-life practices in ALS in the Netherlands. Neurology. 2009, 73 (12): 954-961. 10.1212/WNL.0b013e3181b87983.

Onwuteaka-Philipsen DB, Heide van der A, Koper D, Keij-Deerenberg I, Rietjens ACJ, Rupurt LM, Vrakking MA, Georges JJ, Muller TM, Wal van der G, et al: Euthanasia and other end-of-life decisions in the Netherlands in 1990, 1995, and 2001. Lancet. 2003, 362 (9381): 395-399. 10.1016/S0140-6736(03)14029-9.

Bilsen J, Cohen J, Chambaere K, Pousset G, Onwuteaka-Philipsen BD, Mortier F, Deliens L: Medical End-of-Life practices under the Euthanasia law in Belgium. N Engl J Med. 2009, 361 (11): 11189-11120.

Ferrand E, Jabre P, Vincent-Genod C, Aubry R, Badet M, Badia P, Cariou A, Ellien F, Gounant V, Gil R, et al: Circumstances of death in hospitalized patients and nurses' perceptions. Arch Intern Med. 2008, 168 (8): 867-875. 10.1001/archinte.168.8.867.

Seale C: End-of-life decisions in the UK involving medical practitioners. Palliat Med. 2009, 23 (3): 198-204. 10.1177/0269216308102042.

Bilsen J, Cohen J, Chambaere K, Pousset G, Onwuteaka-Philipsen DB, Mortier F, Deliens L: Medical End-Of-Life Practices under the Euthanasia law in Belgium. N Engl J Med. 2009, 361 (11): 1119-1121. 10.1056/NEJMc0904292.

Onwuteaka-Philipsen BD, Brinkman-Stoppelenburg A, Penning C, de Jong-Krul GJF, van Delden JJM, van der Heide A: Trends in end-of-life practices before and after the enactment of the euthanasia law in the Netherlands from 1990 to 2010: a repeated cross-sectional survey. Lancet. 2012, 380 (9845): 908-915. 10.1016/S0140-6736(12)61034-4.