End-of-life medical decisions in France: a death certificate follow-up survey 5 years after the 2005 act of parliament on patients’ rights and end of life
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Loi n° 2005–370 du 22 avril 2005 relative aux droits des malades et à la fin de vie. Journal officiel de la République française. 2005, 23 rd April. Paris, 7089.
Deliens L, Mortier F, Bilsen J, Cosyns M, Stichele vander R, Vanoverloop J, Ingels K: End-of-life decisions in medical practice in Flanders, Belgium: a nationwide survey. Lancet. 2000, 356 (9244): 1806-1811. 10.1016/S0140-6736(00)03233-5.
Van Delden JM, Löfmark R, Deliens L, Bosshard G, Norup M, Cecioni R, Van der Heide A, EURELD Consortium: Do-not-resuscitate decisions in six European countries. Crit Care Med. 2006, 34 (6): 1689-1690.
Van der Heide A, Deliens L, Faisst K, Nilstun T, Norup M, Paci E, Van der Wal G, Van der Maas PJ: End-of-life decision-making in six european countries: descriptive study. Lancet. 2003, 362 (9381): 345-350. 10.1016/S0140-6736(03)14019-6.
Giannini A: End-of-life practices in european intensive care units. JAMA. 2003, 290 (22): 2939-10.1001/jama.290.22.2939-a.
Ferrand E, Marty J: Prehospital withholding and withdrawal of life-sustaining treatments. The French LATASAMU survey. Intensive Care Med. 2006, 32 (10): 1149-1154.
Ferrand E, Robert R, Ingrand P, Lemaire F: Withholding and withdrawal of life support in intensive-care units in France: a prospective survey. Lancet. 2001, 357: 9-14. 10.1016/S0140-6736(00)03564-9.
Le Conte P, Riochet D, Batard E, Volteau C, Giraudeau B, Arnaudet I, Labastire L, Levraut J, Thys F, Lauque D, et al: Death in emergency departments: a multicenter cross-sectional survey with analysis of withholding and withdrawing life support. Intensive Care Med. 2010, 36: 765-772. 10.1007/s00134-010-1800-1.
Ferrand E, Dreyfus J-F, Chastrusse M, Ellien F, Lemaire F, Fischler M: Evolution of requests to hasten death among patients managed by palliative care teams in France: A multicentre cross-sectional survey (DemandE). Eur J Cancer. 2012, 48 (3): 368-376. 10.1016/j.ejca.2011.09.020.
Chambaere K, Bilsen J, Cohen J, Pousset G, Onwuteaka-Philipsen DB, Mortier F, Deliens L: A post-mortem survey on end-of-life decisions using a representative sample of death certificates in Flanders, Belgium: research protocol. BMC Publ Health. 2008, 8 (299): 1-10.
Brouard N, Aubry R, Monnier A, Pennec S, Pontone S: Questionnaire auto-administré via l'Internet avec préservation de l'anonymat absolument nécessaire dans une enquête sur la « Fin de vie ». Sixième Colloque francophone sur les Sondages. 2010, Tanger, Maroc, [Self-administered questionnaire by Internet with preservation of anonymity absolutely necessary in a investigation of end-of life survey. 6th conference of French speaking association of surveys scientists].
Outcome rate calculator V3.1. 2010, http://www.aapor.org/researchers/ResponseRateCalculatorVer3.1_1_22_22_10.xls .
Observatoire national de la fin de vie: Fin de vie: un premier état des lieux - rapport 2011. 2012, 268-Paris https://sites.google.com/site/observatoirenationalfindevie/publications/rapport-annuel .
Le Conte P, Batard E, Pinaud V, Evain Y, Potel G: Décisions de limitation ou d'arrêt des thérapeutiques actives dans les services d'urgence (wilthholding and withdrawing decisions in the emergency department). Reanimation. 2008, 17 (8): 802-806. 10.1016/j.reaurg.2008.09.005.
Bilsen J: End-of-life decisions in medical practice in Flanders, Belgium. Beslissingen rond het levenseinde in de medische praktijk in Vlaanderen, België. 2005, Brussel: Vrije Universiteit
Bilsen J, Vander Stichele R, Broeckaert B, Mortier F, Deliens L: Changes in medical end-of-life practices during the legalization process of euthanasia in Belgium. Soc Sci Med. 2007, 65 (4): 803-808. 10.1016/j.socscimed.2007.04.016.
Van den Block L, Deschepper R, Bilsen J, Bossuyt N, Van Casteren V, Deliens L: Euthanasia and other end-of-life decisions: a mortality follow-back study in Belgium. BMC Publ Health. 2009, 9: 79-10.1186/1471-2458-9-79.
Cohen J, Van Delden JM, Mortier F, Löfmark R, Norup M, Cartwright C, Faisst K, Canova C, Onwuteaka-Philipsen BD, Bilsen J: Influence of physicians’ life stances on attitudes to end-of-life decisions and actual end-of-life decision-making in six countries. J Med Ethics. 2008, 34 (4): 247-253. 10.1136/jme.2006.020297.
Emanuel EJ, Fairclough DL, Daniels ER, Clarridge BR: Euthanasia and physician-assisted-suicide: attitudes and experiences of oncology patients, oncologists and the public. Lancet. 1996, 347: 1805-1810. 10.1016/S0140-6736(96)91621-9.
Hinkka H, Kosumen E, Lammi EK, Metsanoja R, Puustelli A, Kellokumpu-Lehtinen P: Decision making in terminal care: a survey of Finnish doctors' treatment decisions in end-of-life scenarios involving a terminal cancer and a terminal dementia patient. Palliat Med. 2002, 16: 195-204. 10.1191/0269216302pm510oa.
Kompanje EJO: End-of-life practices in european intensive care units. JAMA. 2003, 290 (22): 2938-2939. 10.1001/jama.290.22.2938-a.
Kuhse H, Singer P, Baume P, Clark M, Rickard M: End-of-life dedcisions in Australian medical practice. Med J Aust. 1997, 166: 191-196.
Van der Maas PJ, Van Delden JM, Pijnenborg L, Looman CWN: Euthanasia and other medical decisions concerning the end of life. Lancet. 1991, 338 (8768): 669-674. 10.1016/0140-6736(91)91241-L.
Van der Maas PJ, Van der Wal G, Haverkate I, De Graaff CLM, Kester JGC, Onwuteaka-Philipsen BD, Van der Heide A, Bosma JM, Willems DL: Euthanasia, physician-assisted suicide, and other medical practices involving the end of life in the Netherlands, 1990–1995. N Engl J Med. 1996, 335 (22): 1699-1705. 10.1056/NEJM199611283352227.
Maessen M, Veldink JH, Onwuteaka-Philipsen DB, Vries De JM, Wokke JHJ, Van der Wal G, Van der Berg LH: Trends and determinants of end-of-life practices in ALS in the Netherlands. Neurology. 2009, 73 (12): 954-961. 10.1212/WNL.0b013e3181b87983.
Onwuteaka-Philipsen DB, Heide van der A, Koper D, Keij-Deerenberg I, Rietjens ACJ, Rupurt LM, Vrakking MA, Georges JJ, Muller TM, Wal van der G, et al: Euthanasia and other end-of-life decisions in the Netherlands in 1990, 1995, and 2001. Lancet. 2003, 362 (9381): 395-399. 10.1016/S0140-6736(03)14029-9.
Bilsen J, Cohen J, Chambaere K, Pousset G, Onwuteaka-Philipsen BD, Mortier F, Deliens L: Medical End-of-Life practices under the Euthanasia law in Belgium. N Engl J Med. 2009, 361 (11): 11189-11120.
Ferrand E, Jabre P, Vincent-Genod C, Aubry R, Badet M, Badia P, Cariou A, Ellien F, Gounant V, Gil R, et al: Circumstances of death in hospitalized patients and nurses' perceptions. Arch Intern Med. 2008, 168 (8): 867-875. 10.1001/archinte.168.8.867.
Seale C: End-of-life decisions in the UK involving medical practitioners. Palliat Med. 2009, 23 (3): 198-204. 10.1177/0269216308102042.
Bilsen J, Cohen J, Chambaere K, Pousset G, Onwuteaka-Philipsen DB, Mortier F, Deliens L: Medical End-Of-Life Practices under the Euthanasia law in Belgium. N Engl J Med. 2009, 361 (11): 1119-1121. 10.1056/NEJMc0904292.
Onwuteaka-Philipsen BD, Brinkman-Stoppelenburg A, Penning C, de Jong-Krul GJF, van Delden JJM, van der Heide A: Trends in end-of-life practices before and after the enactment of the euthanasia law in the Netherlands from 1990 to 2010: a repeated cross-sectional survey. Lancet. 2012, 380 (9845): 908-915. 10.1016/S0140-6736(12)61034-4.