Development and preliminary psychometric investigation of the German Satisfaction with Comprehensive Cancer Care (SCCC) Questionnaire
Tóm tắt
The assessment of patient satisfaction during treatment is essential to provide patient-centered high-quality cancer care. Nevertheless, no German instrument assesses patient satisfaction with comprehensive cancer care, which not only includes oncological treatment, but also interpersonal quality of care as well as psychosocial support services. Based on the French REPERES-60, we developed the German Patient Satisfaction with Comprehensive Cancer Care (SCCC) questionnaire.
The REPERES-60 was translated and the items were adapted to make it applicable to the German healthcare system and across different tumor entities. Scales of the resulting instrument were extracted via principal axis factoring (PAF). Subsequently, we investigated the reliability (Cronbach’s Alpha, CA), discriminatory power (corrected item-scale correlations) and convergent validity (pre-specified correlations of the SCCC with different outcomes). The SCCC consisted of 32 items which were subsequently tested among a sample of 333 patients across different tumor entities (response rate: 47%). Average age was 59 years (standard deviation: 14), 63% were male. PAF revealed four multi-item scales named Competence, Information, Access and Support accounting for 71% of the variance. Two single-items scales assess global satisfaction with medical and psychosocial care, respectively. CA across the multi-item scales ranged from .84 to .96. Discriminatory power was sufficiently high, with all r ≥ .5. Convergent validity was largely verified by negative associations of the four multi-item scales with depressive/anxious symptomatology (r ≥ − .18, p < .01) and fatigue/overall symptom burden (r ≥ − .14, p < .01). We developed a tool to assess patient satisfaction with comprehensive cancer care in Germany. The SCCC showed satisfactory psychometric properties. Further studies are needed to verify these preliminary findings.
Tài liệu tham khảo
Zucca A, Sanson-Fisher R, Waller A, Carey M. Patient-centred care: making cancer treatment centres accountable. Support Care Cancer. 2014;22:1989–97. https://doi.org/10.1007/s00520-014-2221-4.
de Vries AMM, Gholamrezaee MM, Verdonck-de Leeuw IM, Passchier J, Despland J-N, Stiefel F, de Roten Y. Patient satisfaction and alliance as a function of the physician’s self-regulation, the physician’s stress, and the content of consultation in cancer care. Psychooncology. 2017;26:927–34. https://doi.org/10.1002/pon.4233.
Heerdegen ACS, Petersen GS, Jervelund SS. Determinants of patient satisfaction with cancer care delivered by the Danish healthcare system. Cancer. 2017;123:2918–26. https://doi.org/10.1002/cncr.30673.
Iversen HH, Holmboe O, Bjertnæs OA. The Cancer Patient Experiences Questionnaire (CPEQ): reliability and construct validity following a national survey to assess hospital cancer care from the patient perspective. BMJ Open. 2012. https://doi.org/10.1136/bmjopen-2012-001437.
Jean-Pierre P, Fiscella K, Freund KM, Clark J, Darnell J, Holden A, et al. Structural and reliability analysis of a patient satisfaction with cancer-related care measure: a multisite patient navigation research program study. Cancer. 2011;117:854–61. https://doi.org/10.1002/cncr.25501.
Kleeberg UR, Tews J-T, Ruprecht T, Höing M, Kuhlmann A, Runge C. Patient satisfaction and quality of life in cancer outpatients: results of the PASQOC study. Support Care Cancer. 2005;13:303–10. https://doi.org/10.1007/s00520-004-0727-x.
Marshall GN, Hays RD, Sherbourne CD, Wells KB. The structure of patient satisfaction with outpatient medical care. Psychol Assess. 1993;5:477.
Brédart A, Bottomley A, Blazeby JM, Conroy T, Coens C, D’Haese S, et al. An international prospective study of the EORTC cancer in-patient satisfaction with care measure (EORTC IN-PATSAT32). Eur J Cancer. 2005;41:2120–31. https://doi.org/10.1016/j.ejca.2005.04.041.
Lo C, Burman D, Rodin G, Zimmermann C. Measuring patient satisfaction in oncology palliative care: psychometric properties of the FAMCARE-patient scale. Qual Life Res. 2009;18:747–52. https://doi.org/10.1007/s11136-009-9494-y.
Abrahm J. Integrating palliative care into comprehensive cancer care. JNCCN. 2012;10:1192–8.
Grassi L, Watson M. Psychosocial care in cancer: an overview of psychosocial programmes and national cancer plans of countries within the International Federation of Psycho-Oncology Societies. Psychooncology. 2012;21:1027–33. https://doi.org/10.1002/pon.3154.
Defossez G, Mathoulin-Pelissier S, Ingrand I, Gasquet I, Sifer-Riviere L, Ingrand P, et al. Satisfaction with care among patients with non-metastatic breast cancer: development and first steps of validation of the REPERES-60 questionnaire. BMC Cancer. 2007;7:129. https://doi.org/10.1186/1471-2407-7-129.
Sarkar S, Sautier L, Schilling G, Bokemeyer C, Koch U, Mehnert A. Anxiety and fear of cancer recurrence and its association with supportive care needs and health-care service utilization in cancer patients. J Cancer Surviv. 2015;9:567–75. https://doi.org/10.1007/s11764-015-0434-2.
Gräfe K, Zipfel S, Herzog W, Löwe B. Screening psychischer Störungen mit dem “Gesundheitsfragebogen für Patienten (PHQ-D)“. Diagnostica. 2004;50:171–81.
Mehnert A, Müller D, Lehmann C, Koch U. Die deutsche version des NCCN distress-thermometers: empirische Prüfung eines screening-instruments zur erfassung psychosozialer belastung bei krebspatienten. Z Psychiatr Psychol Psychother. 2006;54:213–23.
Kim H-Y. Statistical notes for clinical researchers: assessing normal distribution (2) using skewness and kurtosis. Restor Dent Endod. 2013;38:52–4. https://doi.org/10.5395/rde.2013.38.1.52.
Finch H. Distribution of variables by method of outlier detection. Front Psychol. 2012;3:211.
Liu Y, Zumbo BD. The impact of outliers on Cronbach’s coefficient alpha estimate of reliability: visual analogue scales. Educ Psychol Measur. 2007;67:620–34.
Briggs S, Cheek J. The role of factor analysis in the development and evaluation of personality scales. J Personal. 1986;54:106–48.
Ferketich S. Focus on psychometrics. Aspects of item analysis. Res Nurs Health. 1991;14:165–8.
Essen LV, Larsson G, Öberg K, Sjödén P-O. ‘Satisfaction with care’: associations with health-related quality of life and psychosocial function among Swedish patients with endocrine gastrointestinal tumours. Eur J Cancer Care. 2002;11:91–9.
Batbaatar E, Dorjdagva J, Luvsannyam A, Savino MM, Amenta P. Determinants of patient satisfaction: a systematic review. Perspect Public Health. 2017;137(2):89–101.
Crow R, Gage H, Hampson S, Hart J, Kimber A, Storey L, et al. The measurement of satisfaction with healthcare: implications for practice from a systematic review of the literature. Health Technol Assess. 2002;6(32):1–244.
Cohen J. A power primer. Psychol Bull. 1992;112:155.