Bệnh Xơ Nang và Chuyển Giao Đến Chăm Sóc Y Tế Người Lớn
Tóm tắt
Việc chuyển giao các thanh thiếu niên mắc bệnh xơ nang (CF) từ chăm sóc y tế nhi khoa sang chăm sóc y tế dành cho người lớn là một ưu tiên quan trọng, vì nhiều bệnh nhân đang sống khỏe mạnh vào những năm bốn mươi của họ, và đến năm 2010, hơn một nửa số người sống với CF sẽ lớn hơn 18 tuổi. Quá trình chuyển giao sang tuổi trưởng thành, một quá trình phát triển xây dựng kỹ năng tự quản lý được hỗ trợ bởi hệ thống y tế, rất quan trọng cho việc chuyển giao thành công sang chăm sóc CF dành cho người lớn. Quỹ Xơ Nang Hoa Kỳ đã chủ động chuẩn bị cho số lượng thanh niên ngày càng tăng cần chăm sóc chuyên biệt dành cho người lớn bằng cách xây dựng các chương trình học lâm sàng chuyên biệt cho các nhà cung cấp y tế và yêu cầu thành lập các chương trình CF cho người lớn. Mặc dù có những sáng kiến này, cách tốt nhất để tạo điều kiện chuyển giao và xác định, đo lường các kết quả thành công sau khi chuyển sang chăm sóc người lớn vẫn còn chưa rõ ràng. Nhiều người lớn mắc bệnh CF vẫn tiếp tục nhận chăm sóc trong môi trường nhi khoa, trong khi những người khác chuyển giao trước khi được chuẩn bị phát triển đầy đủ. Trong bài đánh giá hiện trạng này, chúng tôi cung cấp bối cảnh cho phạm vi các thách thức liên quan đến việc thiết kế và đánh giá quá trình chuyển giao chăm sóc y tế cho thanh thiếu niên và người lớn tuổi trẻ có CF và những hệ lụy cho tất cả thanh thiếu niên có nhu cầu chăm sóc sức khỏe đặc biệt.
Từ khóa
#Bệnh xơ nang #chăm sóc y tế #chuyển giao #thanh thiếu niên #người trưởng thànhTài liệu tham khảo
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