Co‐construction of health technology assessment recommendations with patients: An example with cardiac defibrillator replacement

Health Expectations - Tập 23 Số 1 - Trang 182-192 - 2020
Marie‐Pascale Pomey1,2,3,4, Philippe Brouillard5, Isabelle Ganache3,4, Laurie Lambert4, Lucy J. Boothroyd4, Caroline Collette4, Sylvain Bédard1, Alexandre Grégoire1, Sandra Peláez6, Olivier Demers‐Payette4, Mireille Goetghebeur4, Michèle de Guise3, Denis Roy3
1Center of Excellence on Partnership with Patients and the Public Montreal Québec Canada
2Centre hospitalier universitaire l’université de Montréal research center (CRCHUM) Montreal Québec Canada
3Institut national d’excellence en santé et services sociaux Montreal Québec Canada
4School of Public Health Université de Montréal Montreal Québec Canada
5Faculty of Medicine Montreal Québec Canada
6McGill University, Montreal, Québec, Canada

Tóm tắt

AbstractContextThe National Institute of Excellence in Health and Social Services (INESSS), which functions as the Québec health technology assessment (HTA) agency, tested a new way to engage patients along with health‐care professionals in the co‐construction of recommendations regarding implantable cardioverter‐defibrillator replacement.ObjectiveThe objective of this article was to describe the process of co‐construction of recommendations and to propose methods of building best practices for patient involvement (PI) in HTA.DesignThroughout the process, documents were collected and participant observations were made. Individual interviews were conducted with patients, health‐care professionals and the INESSS scientific team, from January to March 2018.ResultsThree committees were established: an expert patient committee to reflect on patient experience literature; an expert health professional committee to reflect on medical literature; and a co‐construction committee through which both patients and health‐care professionals contributed to develop the recommendations. The expert patients validated and contextualized a literature review produced by the scientific team. This allowed the scientists to consider aspects related to the patient experience and to integrate the feedback from patients into HTA recommendations. The most important factor contributing to a positive PI experience was the structured methodology for selecting patient participants, and a key factor that inhibited the process was a lack of training in PI on the part of the scientific team.ConclusionsThis experience demonstrates that it is possible to co‐construct recommendations, even for technically complex HTA subjects, through a more democratic process than usual which led to more patient‐focused guidance.

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Health Expectations

Tập 23 Số 1

182-192

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