Caring for a cerebral palsy child: a caregivers perspective at the University Teaching Hospital, Zambia

Brian Chanda Chiluba1, Geoffrey Moyo1
1Department of Physiotherapy, School of Health Sciences, The University of Zambia, Lusaka, Zambia

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UNICEF Report: At a glance: Zambia. http://www.unicef.org/infobycountry/zambia_2004statistics.html . Accessed on 25 July 2003.

SCPE Collaborative Group. Surveillance of cerebral palsy in Europe: a collaboration of cerebral palsy surveys and registers. Dev Med Child Neurol. 2000;42:816–24.

Cheshire A, Barlow JH, Powell LA. The psychosocial well-being of parents of children with cerebral palsy: a comparison study. Disabil Rehabil. 2010;32:1673–7.

DeLaune M, Brown SC. Spousal responses to role changes following a stroke. Med Surg Nurs. 2001;10(2):79–88.

Becher JG. Pediatric rehabilitation in children with cerebral palsy: general management, classification of motor disorders. J Prosthet Orthot. 2002;14:143–9.

Dowswell G, Lawler J, Dowswell T, Young J, Forster A, Hearn J. A qualitative study of specialist nurse support for stroke patients and caregivers at home. Clin Rehabil. 2006;11:293–301.

Cieza A, Stucki G. Content comparison of health-related quality of life (HRQOL) instruments based on the international classification of functioning, disability and health (ICF). Qual Life Res. 2005;14:1225–37.

Eker L, Tüzün EH. An evaluation of quality of life of mothers of children with cerebral palsy. Disabil Rehabil. 2004;26:1354–9.

World Health Organization Technical Report. Community Based Rehabilitation and the health care referral services. 2006.

Bakas T, Clarkson JE, Dittmer Flett R, Linsell C. Needs, concerns, strategies and advice of stroke caregivers the first 6 months after discharge. J Neurosci Nurs. 2008;34(5):242–9.

Chalwe M, Mweshi M, Mwango M. Short term care for a child with malaria: research study University Teaching Hospital, Lusaka, Zambia. 2008.

Fritz V. Cerebral palsy and stroke. Contin Med Educ. 2007;16(10):958–9.

Blake WJ, Hadker H. Outcome assessments in children with cerebral palsy part I: descriptive characteristics of GMFCS levels I to III. Dev Med Child Neurol. 2000;49:172–80.

Chiluba B, Nkandu EM, Daka CN, Chola M, Chongwe G. Cardiovascular disease risk from protease inhibitors-ART for HIV: retrospective Cohort of University Teaching Hospital Zambia. Cardiol Cardiovasc Res. 2017;1(4):98–103.

Eustis NN, Fischer LR. Common needs, different solutions? Younger and older homecare clients. Generations. 1992;18(1):17–22.

Murphy NA, Christian B, Caplin DA, Young PC. The health of caregivers for children with disabilities: caregiver perspectives. Child Care Health Dev. 2007;33:180–7.

Parkes J, McCullough N, Madden A, McCahey E. The health of children with cerebral palsy and stress in their parents. J Adv Nurs. 2009;65:2311–23.

Van den Heuval ETP, de Witte LP, Schure LM, Sanderman R, Meyboom-de Jong B. Risk factors for burn-out in caregivers of cerebral palsy patients, and possibilities for intervention. Clin Rehabil. 2007;15:669–77.

Anderson CS, Linto J, Stewart-Wynne L. A population-based assessment of the impact and burden of care giving for long-term cerebral palsy survivors. Stroke. 2005;26:843–9.

Mobarak R, Khan NZ, Munir S, Zaman SS, Mcconachie H. Predictors of stress in mothers of children with cerebral palsy in Bangladesh. J Pediatr Psychol. 2000;25:427–33.

De Laure M, Brown N. Quality of life for families with cerebral palsy in Kenya. Trop Doct. 2007;38:160–2.

Wyller F, Gerter W. Health of young and elderly informal carers: analysis of UK census data. Br Med J. 2003;327(7428):1388–2001.

Brehaut JC, Kohen DE, Garner RE, Miller AR, Lach LM, Klassen AF, et al. Health among caregivers of children with health problems: findings from a Canadian population-based study. Am J Public Health. 2009;99:1254–62.

Metzing-Blau S, Schnepp W. Young carers in Germany: to live on as normal as possible—a grounded theory study. BMC Nurs. 2008;7:15.

Doran T, Drever F, Whitehead M, Duncan WH. A population-based assessment of the impact and burden of caring for long term cerebral palsy survivors. Stroke. 2003;26(5):843–9.

Eustis NN, Fischer LR. Common needs, different solutions? Younger and older homecare clients. Generations. 1992;18(1):17–22.

Kaona FAD, Tuba MA. Qualitative study to identify community structures for management of severe malaria: a basis for introducing rectal artesunate in the under 5 years children in Nakonde District of Zambia. Malar J. 2005;2:43.

Polisano R, Rosenbaum P, Walter S, Russell D, Wood E, Galuppi B. Development and reliability of a system to classify gross motor function in children with cerebral palsy. Dev Med Child Neurol. 1997;39:214–23.

Boyd RN, Hays RM. Current evidence for the use of botulinum toxin type A in the management of children with cerebral palsy: a systematic review. Eur J Neurol 2001;8(Suppl. 5):1–20.

Hastings RP. Parental stress and behaviour problems of children with developmental disability. J Intellect Dev Disabil. 2002;27:149–60.

Grant JS, Bartolucci A, Elliott TR, Giger JN. Sociodemographic, physical, and psychosocial characteristics of depressed and non-depressed family caregivers of stroke survivors. Brain Inj. 2000;14:1089–100.

Romans-Clason SE, Clarkson JE, Dittmer, Flett R, Linsell C, Mullen P, Mullin. Impact of a Handicapped child on mental health of parents. Br Med J. 1986;293:1395.

Lambrenos R, Weindling AM, Calam R, Cox AD. The Effects of a child’s disability on mother’s mental health. Arch Dis Child. 1996;74:115–20.