Building a telepalliative care strategy in nursing homes: a qualitative study with mobile palliative care teams
Tóm tắt
Từ khóa
Tài liệu tham khảo
Palliative Care. World Health Organization. 2018. Available from: https://www.who.int/news-room/fact-sheets/detail/palliative-care [cited 5 May 2020]
Duhamel G, Mejane J, Piron P. Les soins palliatifs et la fin de vie à domicile. Inspection générale des affaires sociales; 2017.
Engberink AO, Mailly M, Marco V, Bourrie D, Benezech J-P, Chevallier J, et al. A phenomenological study of nurses experience about their palliative approach and their use of mobile palliative care teams in medical and surgical care units in France. BMC Palliat Care. 2020;19(1):34.
Annuaire des structures de soins palliatifs et des associations de bénévoles d’accompagnement de la SFAP. Available from: http://sfap.org/rubrique/en-quelques-chiffres [cited 14 May 2021].
Populations légales des régions en 2016 − Populations légales 2016 | Insee.. Available from: https://www.insee.fr/fr/statistiques/3677761?sommaire=3677855 [cited 14 May 2021]
Pennec S, Gaymu J, Monnier A, Riou F, Aubry R, Pontone S, et al. Le dernier mois de l’existence : les lieux de fin de vie et de décès en France. Population. 2013;68(4):585–615.
Cohen J, Pivodic L, Miccinesi G, Onwuteaka-Philipsen BD, Naylor WA, Wilson DM, et al. International study of the place of death of people with cancer: a population-level comparison of 14 countries across 4 continents using death certificate data. Br J Cancer. 2015;113(9):1397–404.
Legifrance. Décret n° 2010–1229 du 19 octobre 2010 relatif à la télémédecine. 2010. https://www.legifrance.gouv.fr/loda/id/JORFTEXT000022932449/. Accessed 5 May 2020.
Rogante M, Giacomozzi C, Grigioni M, Kairy D. Telemedicine in palliative care: a review of systematic reviews. Ann DellIstituto Super Sanità. 2016;(3). Available from: http://www.iss.it/binary/publ/cont/ANN_16_03_16.pdf [cited 5 May 2020]
Oliver DP, Demiris G, Wittenberg-Lyles E, Washington K, Day T, Novak H. A systematic review of the evidence base for Telehospice. Telemed E-Health. 2012;18(1):38–47.
Bonsignore L, Bloom N, Steinhauser K, Nichols R, Allen T, Twaddle M, et al. Evaluating the feasibility and acceptability of a Telehealth program in a rural palliative care population: TapCloud for palliative care. J Pain Symptom Manag. 2018;56(1):7–14.
Maudlin J, Keene J, Kobb R. A road map for the last journey: home Telehealth for holistic end-of-life care. Am J Hosp Palliat Med. 2006;23(5):399–403.
Calton BA, Rabow MW, Branagan L, Dionne-Odom JN, Parker Oliver D, Bakitas MA, et al. Top ten tips palliative care clinicians should know about Telepalliative care. J Palliat Med. 2019;22(8):981–5.
Donelan K, Barreto EA, Sossong S, Michael C, Estrada JJ, Cohen AB, et al. Patient and clinician experiences with Telehealth for patient follow-up care. Am J Manag Care. 2019;25(1):40–4.
Grant M, de Graaf E, Teunissen S. A systematic review of classifications systems to determine complexity of patient care needs in palliative care. Palliat Med. 2021;35(4):636–50.
Davis K, Minckas N, Bond V, Clark CJ, Colbourn T, Drabble SJ, et al. Beyond interviews and focus groups: a framework for integrating innovative qualitative methods into randomised controlled trials of complex public health interventions. Trials. 2019;20(1):329.
Iborra M, Fiat C. Rapport d’information: les établissements d’hébergements pour personnes âgées dépendantes (EHPAD). Paris: Assemblée Nationale, Commission des Affaires Sociales; 2018. Available from: http://www.assemblee-nationale.fr/dyn/15/rapports/cion-soc/l15b0769_rapport-information.pdf
de Discours M. Edouard Philippe, Premier ministre, à Châlus. Service de communication de l’Hôtel Matignon; 2017. Available from: https://www.gouvernement.fr/sites/default/files/document/document/2017/10/discours_de_m._edouard_philippe_premier_ministre_a_chalus_-_13_octobre_2017.pdf
Krueger RA, Casey MA. Focus groups: a practical guide for applied research. 5th ed. Thousand Oaks: SAGE Publications, Inc; 2014.
Lee J, Xue N-L. Analyzing user requirements by use cases: a goal-driven approach. IEEE Softw. 1999;16(4):92–101.
Dionisio JDN, Bui AAT, Johnson DB, Thompson LL, Sinha U. Designing a patient education framework via use case analysis. Ann N Y Acad Sci. 2002;980(1):225–35.
Chahraoui K, Laurent A, Bioy A, Quenot J-P. Psychological experience of patients 3 months after a stay in the intensive care unit: a descriptive and qualitative study. J Crit Care. 2015;30(3):599–605.
Ecarnot F, Meunier-Beillard N, Seronde M-F, Chopard R, Schiele F, Quenot J-P, et al. End-of-life situations in cardiology: a qualitative study of physicians’ and nurses’ experience in a large university hospital. BMC Palliat Care. 2018;17(1):112.
Jess M, Timm H, Dieperink KB. Video consultations in palliative care: a systematic integrative review. Palliat Med. 2019;33:942–58.
Washington KT, Oliver DP, Gage LA, Albright DL, Demiris G. A multimethod analysis of shared decision-making in hospice interdisciplinary team meetings including family caregivers. Palliat Med. 2015;17:9.
Farre A, Rapley T. The new old (and old new) medical model: four decades navigating the biomedical and psychosocial understandings of health and illness. Healthcare. 2017;5(4):88.
Hoek PD, Schers HJ, Bronkhorst EM, Vissers KCP, Hasselaar JGJ. The effect of weekly specialist palliative care teleconsultations in patients with advanced cancer –a randomized clinical trial. BMC Med. 2017;15(1):119.
Islind AS, Snis UL, Lindroth T, Lundin J, Cerna K, Steineck G. The virtual clinic: two-sided affordances in consultation practice. Comput Support Coop Work CSCW. 2019;28(3):435–68.
Mathieu-Fritz A. Les téléconsultations en santé mentale: Ou comment établir la relation psychothérapeutique à distance. Réseaux. 2018;207(1):123.
Esterle L, Mathieu-Fritz A. Teleconsultation in geriatrics: impact on professional practice. Int J Med Inform. 2013;82(8):684–95.
Larsen SB, Bardram JE. Competence articulation: alignment of competences and responsibilities in synchronous telemedical collaboration. In: Proceeding of the twenty-sixth annual CHI conference on Human factors in computing systems - CHI ‘08. Florence: ACM Press; 2008. p. 553. Available from: http://portal.acm.org/citation.cfm?doid=1357054.1357144 [cited 4 Feb 2020]
Mathieu-Fritz A, Gaglio G. À la recherche des configurations sociotechniques de la télémédecine: Revue de littérature des travaux de sciences sociales. Réseaux. 2018;207(1):27.
Hughes EC. Men and their work. Quid Pro Books; 2013. p. 146.
Bidet A. Qu’est-ce que le vrai boulot ? Le cas d’un groupe de techniciens. Soc Contemp. 2010;78(2):115.
Stevanovic A, Beckers SK, Czaplik M, Bergrath S, Coburn M, Brokmann JC, et al. Telemedical support for prehospital emergency medical service (TEMS trial): study protocol for a randomized controlled trial. Trials. 2017;18(1):43.
Salles N. Impact de la télémédecine clinique sur les pratiques de soins en Ehpad. Rev Francoph Cicatrisation. 2017;1(1):19.
Whitten PS, Mackert MS. Addressing telehealth’s foremost barrier: provider as initial gatekeeper. Int J Technol Assess Health Care. 2005;21(4):517–21.
Golinelli D, Boetto E, Carullo G, Nuzzolese AG, Landini MP, Fantini MP. Adoption of digital Technologies in Health Care during the COVID-19 pandemic: systematic review of early scientific literature. J Med Internet Res. 2020;22(11):e22280.
Cormi C, Ohannessian R, Sanchez S. Motivations of French Physicians to Perform Teleconsultations During COVID-19: A Mixed-Method Study. Telemed E-Health. 2021; Available from: https://www.liebertpub.com/doi/10.1089/tmj.2020.0524 [cited 10 Feb 2021]
Fadul N, Elsayem AF, Bruera E. Integration of palliative care into COVID-19 pandemic planning. BMJ Support Palliat Care. 2021;11:40–4.
Lally K, Kematick BS, Gorman D, Tulsky J. Rapid conversion of a palliative care outpatient clinic to Telehealth. JCO Oncol Pract. 2021;17(1):e62–7.
Hawkins JP, Gannon C, Palfrey J. Virtual visits in palliative care: about time or against the grain? BMJ Support Palliat Care. 2020;10(3):331–6.