Achieving patient‐centred care: the potential and challenge of the patient‐as‐professional role

Health Expectations - Tập 18 Số 6 - Trang 2616-2628 - 2015
Rebecca Phillips1,2, Alison Short3, Annie Kenning1, Paul Dugdale1,4, Peter Nugus5, Russell McGowan6, David Greenfield3
1Centre for Health Stewardship, The Australian National University, Canberra, ACT, Australia.
2Institute for Governance and Policy Analysis; University of Canberra; Canberra ACT Australia
3Centre for Clinical Governance Research, Australian Institute of Health Innovation, The University of New South Wales, Sydney, NSW, Australia.
4Chronic Disease Management Unit ACT Health Canberra ACT Australia
5Department of Family Medicine and Centre for Medical Education McGill University Montréal QC Canada
6Health Care Consumers' Association of the Australian Capital Territory, Canberra, ACT, Australia.

Tóm tắt

AbstractBackgroundThe patient‐as‐professional concept acknowledges the expert participation of patients in interprofessional teams, including their contributions to managing and coordinating their care. However, little is known about experiences and perspectives of these teams.ObjectiveTo investigate (i) patients’ and carers’ experiences of actively engaging in interprofessional care by enacting the patient‐as‐professional role and (ii) clinicians’ perspectives of this involvement.Design, setting and participantsA two‐phased qualitative study. In Phase 1, people with chronic disease (n = 50) and their carers (n = 5) participated in interviews and focus groups. Phase 2 involved interviews with clinicians (n = 14). Data were analysed thematically.FindingsPatients and carers described the characteristics of the role (knowing about the condition, questioning clinicians, coordinating care, using a support network, engaging an advocate and being proactive), as well as factors that influence its performance (the patient–clinician partnership, benefits, barriers and applicability). However, both patients and carers, and clinicians cautioned that not all patients might desire this level of involvement. Clinicians were also concerned that not all patients have the required knowledge for this role, and those who do are time‐consuming. When describing the inclusion of the patient‐as‐professional, clinicians highlighted the patient and clinician's roles, the importance of the clinician–patient relationship and ramifications of the role.ConclusionSupport exists for the patient‐as‐professional role. The characteristics and influencing factors identified in this study could guide patient engagement with the interprofessional team and support clinicians to provide patient‐centred care. Recognition of the role has the potential to improve health‐care delivery by promoting patient‐centred care.

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Health Expectations

Tập 18 Số 6

2616-2628

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