Headache service quality: the role of specialized headache centres within structured headache services, and suggested standards and criteria as centres of excellence

The Journal of Headache and Pain - Tập 20 - Trang 1-9 - 2019
T. J. Steiner1,2, H. Göbel3, R. Jensen4, C. Lampl5, K. Paemeleire6, M. Linde1, M. Braschinsky7, D. Mitsikostas8, R. Gil-Gouveia9, Z. Katsarava10,11,12,13
1Department of Neuromedicine and Movement Science, Norwegian University of Science and Technology, Trondheim, Norway
2Division of Brain Sciences, Imperial College London, London, UK
3Kiel Headache Centre, Kiel Neurological Pain and Headache Centre, Kiel, Germany
4Danish Headache Centre, Department of Neurology, University of Copenhagen, Rigshospitalet-Glostrup Hospital, Glostrup, Denmark
5Headache Medical Centre, Ordensklinikum Linz Barmherzige Schwestern, Linz, Austria
6Department of Neurology, Ghent University Hospital, Ghent, Belgium
7Headache Clinic, Neurology Clinic, Tartu University Clinics, Tartu, Estonia
8Neurology Department A, Aeginition Hospital, National & Kapodistrian University of Athens, Athens, Greece
9Hospital da Luz Headache Center, Lisbon, Portugal
10Evangelical Hospital Unna, Unna, Germany
11Department of Neurology, University of Duisburg-Essen, Essen, Germany
12EVEX Medical Corporation, Tbilisi, Georgia
13IM Sechenov First Moscow State Medical University (Sechenov University), Moscow, Russian Federation

Tóm tắt

In joint initiatives, the European Headache Federation and Lifting The Burden have described a model of structured headache services (with their basis in primary care), defined service quality in this context, and developed practical methods for its evaluation. Here, in a continuation of the service quality evaluation programme, we set out ten suggested role- and performance-defining standards for specialized headache centres operating as an integral component of these services. Verifiable criteria for evaluation accompany each standard. The purposes are five-fold: (i) to inspire and promote, or stimulate the establishment of, specialized headache centres as centres of excellence; (ii) to define the role of such centres within optimally structured and organized national headache services; (iii) to set out criteria by which such centres may be recognized as exemplary in their fulfilment of this role; (iv) to provide the basis for, and to initiate and motivate, collaboration and networking between such centres both nationally and internationally; (v) ultimately to improve the delivery and quality of health care for headache.

Tài liệu tham khảo

Steiner TJ, Antonaci F, Jensen R, Lainez MJ, Lanteri-Minet M, Valade D (2011) Recommendations for headache service organisation and delivery in Europe. J Headache Pain 12:419–426. Vos T, Abajobir AA, Abate KH, Abbafati C, Abbas KM, Abd-Allah F, Abdulkader RS, Abdulle AM, Abebo TA, Abera SF, Aboyans V, Abu-Raddad LJ, Ackerman IN, Adamu AA, Adetokunboh O, Afarideh M, Afshin A, Agarwal SK, Aggarwal R, Agrawal A, Agrawal S, Ahmadieh H, Ahmed MB, Aichour MTE, Aichour AN, Aichour I, Aiyar S, Akinyemi RO, Akseer N, Al Lami FH, Alahdab F, Al-Aly Z, Alam K, Alam N, Alam T et al (2017) Global, regional, and national incidence, prevalence, and years lived with disability for 328 diseases and injuries for 195 countries, 1990-2016: a systematic analysis for the global burden of disease study 2016. Lancet 390:1211–1259. Steiner TJ, Stovner LJ, Vos T, Jensen R, Katsarava Z (2018) Migraine is first cause of disability in under 50s: will health politicians now take notice? (editorial). J Headache Pain 19:17. Peters M, Perera S, Loder E, Jenkinson C, Gil Gouveia R, Jensen R, Katsarava Z, Steiner TJ (2012) Quality in the provision of headache care. 1: systematic review of the literature and commentary. J Headache Pain 13:437–447. Peters M, Jenkinson C, Perera S, Loder E, Jensen R, Katsarava Z, Gil Gouveia R, Broner S, Steiner T (2012) Quality in the provision of headache care. 2: defining quality and its indicators. J Headache Pain 13:449–457. Schramm S, Uluduz D, Gil Gouveia R, Jensen R, Siva A, Uygunoglu U, Gvantsa G, Mania M, Braschinsky M, Filatova E, Latysheva N, Osipova V, Skorobogatykh K, Azimova J, Straube A, Emre Eren O, Martelletti P, De Angelis V, Negro A, Linde M, Hagen K, Radojicic A, Zidverc-Trajkovic J, Podgorac A, Paemeleire K, De Pue A, Lampl C, Steiner TJ, Katsarava Z (2016) Headache service quality: evaluation of quality indicators in 14 specialist-care centres. J Headache Pain 17:111. Stovner LJ, Hagen K, Jensen R, Katsarava Z, Lipton RB, Scher AI, Steiner TJ, Zwart J-A (2007) The global burden of headache: a documentation of headache prevalence and disability worldwide. Cephalalgia 27:193–210. Linde M, Gustavsson A, Stovner LJ, Steiner TJ, Barré J, Katsarava Z, Lainez JM, Lampl C, Lantéri-Minet M, Rastenyte D, Ruiz de la Torre E, Tassorelli C, Andrée C (2012) The cost of headache disorders in Europe: the Eurolight project. Eur J Neurol 19:703–711. World Health Organization and Lifting The Burden (2011) Atlas of headache disorders and resources in the world 2011. WHO, Geneva at: http://www.who.int/mental_health/management/atlas_headache_disorders/en/2011. Steiner TJ (2004) Lifting the burden: the global campaign against headache. Lancet Neurol 3:204–205. Steiner TJ (2005) Lifting The Burden: the global campaign to reduce the burden of headache worldwide. J Headache Pain 6:373–377. Steiner TJ, Birbeck GL, Jensen R, Katsarava Z, Martelletti P, Stovner LJ (2010) Lifting The Burden: the first 7 years. J Headache Pain 11:451–455. Steiner TJ, Birbeck GL, Jensen R, Katsarava Z, Martelletti P, Stovner LJ (2011) The global campaign, World Health Organization and Lifting The Burden: collaboration in action. J Headache Pain 12:273–274. Yu S, Liu R, Zhao G, Yang X, Qiao X, Feng J, Fang Y, Cao X, He M, Steiner T (2012) The prevalence and burden of primary headaches in China: a population-based door-to-door survey. Headache 52:582–591. Ayzenberg I, Katsarava Z, Sborowski A, Chernysh M, Osipova V, Tabeeva G, Yakhno N, Steiner TJ (2012) The prevalence of primary headache disorders in Russia: a countrywide survey. Cephalalgia 32:373–381. Kulkarni GB, Rao GN, Gururaj G, Stovner LJ, Steiner TJ (2015) Headache disorders and public ill-health in India: prevalence estimates in Karnataka state. J Headache Pain 16:67. Rao GN, Kulkarni GB, Gururaj G, Stovner LJ, Steiner TJ (2015) The burden attributable to headache disorders in India: estimates from a community-based study in Karnataka state. J Headache Pain 16:94. Herekar AA, Ahmad A, Uqaili UL, Ahmed B, Effendi J, Alvi SZ, Shahab MA, Javed U, Herekar AD, Khanani R, Steiner TJ (2017) Primary headache disorders in the adult general population of Pakistan – a cross sectional nationwide prevalence survey. J Headache Pain 18:28. Manandhar K, Risal A, Steiner TJ, Holen A, Linde M (2015) The prevalence of primary headache disorders in Nepal: a nationwide population-based study. J Headache Pain 16:95. Manandhar K, Risal A, Linde M, Steiner TJ (2016) The burden of headache disorders in Nepal: estimates from a population-based survey. J Headache Pain 17:3. Mbewe E, Zairemthiama P, Yeh H-H, Paul R, Birbeck GL, Steiner TJ (2015) The epidemiology of primary headache disorders in Zambia: a population-based door-to-door survey. J Headache Pain 16:30. Mbewe E, Zairemthiama P, Paul R, Birbeck GL, Steiner TJ (2015) The burden of primary headache disorders in Zambia: national estimates from a population-based door-to-door survey. J Headache Pain 16:36. Zebenigus M, Tekle-Haimanot R, Worku DK, Thomas H, Steiner TJ (2016) The prevalence of primary headache disorders in Ethiopia. J Headache Pain 17:110. Zebenigus M, Tekle-Haimanot R, Worku DK, Thomas H, Steiner TJ (2016) The burden of headache disorders in Ethiopia: national estimates from a population-based door-to-door survey. J Headache Pain 18:58. Steiner TJ, Stovner LJ, Katsarava Z, Lainez JM, Lampl C, Lantéri-Minet M, Rastenyte D, Ruiz de la Torre E, Tassorelli C, Barré J, Andrée C (2014) The impact of headache in Europe: principal results of the Eurolight project. J Headache Pain 15:31. Vos T, Flaxman AD, Naghavi M, Lozano R, Michaud C, Ezzati M, Shibuya K, Salomon JA, Abdalla S, Aboyans V, Abraham J, Ackerman I, Aggarwal R, Ahn SY, Ali MK, Alvarado M, Anderson HR, Anderson LM, Andrews KG, Atkinson C, Baddour LM, Bahalim AN, Barker-Collo S, Barrero LH, Bartels DH, Basáñez MG, Baxter A, Bell ML, Benjamin EJ, Bennett D, Bernabé E, Bhalla K, Bhandari B, Bikbov B, Bin Abdulhak A et al (2012) Years lived with disability (YLDs) for 1160 sequelae of 289 diseases and injuries 1990-2010: a systematic analysis for the global burden of disease study 2010. Lancet 380:2163–2196. Antonaci F, Valade D, Lanteri-Minet M, Láinez JM, Jensen R, Steiner TJ (2008) Proposals for the organisation of headache services in Europe. Intern Emerg Med 3(suppl 1):S25–S28. Steiner TJ, Jensen R, Katsarava Z, Linde M, MacGregor EA, Osipova V, Paemeleire K, Olesen J, Peters M, Martelletti P, on behalf of the European Headache Federation and Lifting The Burden: the Global Campaign against Headache (2019) Aids to management of headache disorders in primary care (2nd edition). J Headache Pain 20 (in press). Steiner TJ, Stovner LJ, Dua T, Birbeck GL, Jensen R, Katsarava Z, Martelletti P, Saxena S (2011) Time to act on headache disorders. J Headache Pain 12:501–503. Steiner TJ, Gururaj G, Andrée C, Katsarava Z, Ayzenberg I, Yu SY, Al Jumah M, Tekle-Haimanot R, Birbeck GL, Herekar A, Linde M, Mbewe E, Manandhar K, Risal A, Jensen R, Queiroz LP, Scher AI, Wang SJ, Stovner LJ (2014) Diagnosis, prevalence estimation and burden measurement in population surveys of headache: presenting the HARDSHIP questionnaire. J Headache Pain 15:3. Harpole LH, Samsa GP, Jurgelski AE, Shipley JL, Bernstein A, Matchar DB (2003) Headache management program improves outcome for chronic headache. Headache 43:715–724. Lake AE, Saper JR, Hamel RL (2009) Comprehensive inpatient treatment of refractory chronic daily headache. Headache 49:555–562. Göbel H, Heinze A, Heinze-Kuhn K, Henkel K, Roth A, Rüschmann HH (2009) Development and implementation of integrated health care in pain medicine: the nationwide German headache treatment network. Schmerz 23:653–670. Göbel H, Heinze-Kuhn K, Petersen I, Göbel A, Heinze A (2013) Integrated headache care network. Kiel migraine and headache center and German National Headache Treatment Network. Schmerz 27:149–165. Jensen R, Zeeberg P, Dehlendorff C, Olesen J (2010) Predictors of outcome of the treatment programme in a multidisciplinary headache center. Cephalalgia 30:1214–1224. Diener H, Gaul C, Jensen R, Göbel H, Heinze A, Silberstein S (2011) Integrated headache care. Cephalalgia 31:1039–1047. Saper JR, Lake AE, Madden SF, Kreeger C (1999) Comprehensive tertiary care for headache: a 6-month outcome study. Headache 39:249–263. Lemstra M, Stewart B, Olszynski WP (2002) Effectiveness of multidisciplinary intervention in the treatment of migraine: a randomized clinical trial. Headache 42:845–854. Rothrock JF, Parada VA, Sims C, Key K, Walters NS, Zweifler RM (2006) The impact of intensive patient education on clinical outcome in a clinic-based migraine population. Headache 46:726–731. Martelletti P, Haimanot RT, Lainez MJA, Rapoport AM, Ravishankar K, Sakai F, Silberstein SD, Vincent M, Steiner TJ (2005) The global campaign to reduce the burden of headache worldwide. The international team for specialist education (ITSE). J Headache Pain 6:261–263. Martelletti P (2007) Headache medicine: academic teaching in Europe. The Sapienza University Master’s Degree. Headache 47:1224–1225 author reply 1225-1227. Sapienza University of Rome. Master in Headache Medicine. At: https://web.uniroma1.it/masterheadache/. University of Copenhagen. Master of Headache Disorders. At: https://mhd.ku.dk/. Headache Classification Committee of the International Headache Society (2018) The international classification of headache disorders, 3rd edition. Cephalalgia 38:1–211. World Health Organization (2018) International Classification of Diseases 11th Revision. The global standard for diagnostic health information. WHO, Geneva at https://icd.who.int. Steiner TJ, Paemeleire K, Jensen R, Valade D, Savi L, Lainez MJA, Diener H-C, Martelletti P, Couturier EGM on behalf of the European Headache Federation and Lifting The Burden: The global campaign to reduce the burden of headache worldwide (2007) Aids for management of common headache disorders in primary care. J Headache Pain 8 suppl 1: S22-S39.