Pediatric short-bowel syndrome: the cost of comprehensive care

De Potter, 1992, 263 patient-years of home parenteral nutrition in children., Transplant Proc, 24, 1056 Grosfeld, 1986, Short bowel syndrome in infancy and childhood. Analysis of survival in 60 patients., Am J Surg, 151, 41, 10.1016/0002-9610(86)90009-7 Vanderhoof, 1997, Short-bowel syndrome in children and adults., Gastroenterology, 113, 1767, 10.1053/gast.1997.v113.pm9352883 Spencer, 2005, Mortality and outcomes of pediatric short bowel syndrome: redefining predictors of success., Ann Surg, 242, 1, 10.1097/01.sla.0000179647.24046.03 Kim, 2003, Serial transverse enteroplasty for short bowel syndrome: a case report., J Pediatr Surg, 38, 881, 10.1016/S0022-3468(03)00115-5 Moukarzel, 1994, 230 patient years of experience with home long-term parenteral nutrition in childhood: natural history and life of central venous catheters., J Pediatr Surg, 29, 1323, 10.1016/0022-3468(94)90107-4 Anagnostopoulos, 1991, Morbidity and mortality of short bowel syndrome in infancy and childhood., Eur J Pediatr Surg, 1, 273, 10.1055/s-2008-1042504 Hassan, 2002, Difficult management choices for infants with short bowel syndrome and liver failure., J Pediatr Gastroenterol Nutr, 35, 216, 10.1097/00005176-200208000-00022 Koehler, 2000, Coordinated interdisciplinary management of pediatric intestinal failure: a 2-year review., J Pediatr Surg, 35, 380, 10.1016/S0022-3468(00)90045-9 Sigalet, 2001, Short bowel syndrome in infants and children: an overview., Semin Pediatr Surg, 10, 49, 10.1053/spsu.2001.22382 Vanderhoof, 1996, Short bowel syndrome in children and small intestinal transplantation., Pediatr Clin North Am, 43, 533, 10.1016/S0031-3955(05)70419-3 Warner, 1993, Management of the short bowel syndrome in the pediatric population., Pediatr Clin North Am, 40, 1335, 10.1016/S0031-3955(16)38664-3 Modi, 2008, Improved survival in a multidisciplinary short bowel syndrome program., J Pediatr Surg, 43, 20, 10.1016/j.jpedsurg.2007.09.014 Diamond, 2007, Neonatal short bowel syndrome outcomes after the establishment of the first Canadian multidisciplinary intestinal rehabilitation program: preliminary experience. Group for the Improvement of Intestinal Function and Treatment., J Pediatr Surg, 42, 806, 10.1016/j.jpedsurg.2006.12.033 Nucci, 2008, Interdisciplinary management of pediatric intestinal failure: a 10-year review of rehabilitation and transplantation., J Gastrointest Surg, 12, 429, 10.1007/s11605-007-0444-0 Howard, 1995, Current use and clinical outcome of home parenteral and enteral nutrition therapies in the United States., Gastroenterology, 109, 355, 10.1016/0016-5085(95)90321-6 Reddy, 1998, Cost and outcome analysis of home parenteral and enteral nutrition., JPEN J Parenter Enteral Nutr, 22, 302, 10.1177/0148607198022005302 Schalamon, 2003, Mortality and economics in short bowel syndrome., Best Pract Res Clin Gastroenterol, 17, 931, 10.1016/S1521-6918(03)00079-9 Puntis, 1998, The economics of home parenteral nutrition., Nutrition, 14, 809, 10.1016/S0899-9007(98)00090-2 Colomb, 2000, Economic aspects of paediatric home parenteral nutrition., Curr Opin Clin Nutr Metab Care, 3, 237, 10.1097/00075197-200005000-00013 Dudrick, 1983, The short bowel syndrome and total parenteral nutrition., Heart Lung: J Acute Crit Care, 12, 195 Schwartz, 1985, Short bowel syndrome in infants and children., Pediatr Clin North Am, 32, 1265, 10.1016/S0031-3955(16)34904-5 Caniano, 1989, Extensive short-bowel syndrome in neonates: outcome in the 1980s., Surgery, 105, 119 Teitelbaum, 1997, Parenteral nutrition-associated cholestasis., Curr Opin Pediatr, 9, 270, 10.1097/00008480-199706000-00016 Iyer, 2002, Nutritional outcome and growth of children after intestinal transplantation., J Pediatr Surg, 37, 464, 10.1053/jpsu.2002.30864 2001, Medicare program; replacement of reasonable charge methodology by fee schedules for parenteral and enteral nutrients, equipment, and supplies. Final rule., Fed Regist, 66, 45173 Touloukian, 1983, Normal intestinal length in preterm infants., J Pediatr Surg, 83, 720, 10.1016/S0022-3468(83)80011-6 Lee, 1995, Group sequential comparison of changes: ad-hoc versus more exact method., Biometrics, 51, 21, 10.2307/2533311 GlantzSPrimer of biostatistics.3rd ed.New York, NY:McGraw-Hill, Inc,1992. Andorsky, 2001, Nutritional and other postoperative management of neonates with short bowel syndrome correlates with clinical outcomes., J Pediatr, 139, 27, 10.1067/mpd.2001.114481 Wilmore, 2000, Short bowel syndrome., World J Surg, 24, 1486, 10.1007/s002680010266 Ziegler, 1986, Short bowel syndrome in infancy: etiology and management., Clin Perinatol, 13, 163, 10.1016/S0095-5108(18)30844-3 Goulet, 1991, Neonatal short bowel syndrome., J Pediatr, 119, 18, 10.1016/S0022-3476(05)81032-7 Wilmore, 1972, Factors correlating with a successful outcome following extensive intestinal resection in newborn infants., J Pediatr, 80, 88, 10.1016/S0022-3476(72)80459-1 Goulet, 2005, Outcome and long-term growth after extensive small bowel resection in the neonatal period: a survey of 87 children., Eur J Pediatr Surg, 15, 95, 10.1055/s-2004-821214 Barksdale, 2002, The surgical management of short bowel syndrome., Curr Gastroenterol Rep, 4, 229, 10.1007/s11894-002-0068-1 Candusso, 2002, Outcome and quality of life in paediatric home parenteral nutrition., Curr Opin Clin Nutr Metab Care, 5, 309, 10.1097/00075197-200205000-00011 Grosfeld, 1987, Current management of short bowel syndrome in children., J Ark Med Soc, 84, 243 Georgeson, 1992, Outcome and intestinal adaptation in neonatal short-bowel syndrome., J Pediatr Surg, 27, 344, 10.1016/0022-3468(92)90859-6 Burnes, 1992, Home parenteral nutrition—a 3-year analysis of clinical and laboratory monitoring., J Parenter Enteral Nutr, 16, 327, 10.1177/0148607192016004327 Weiland, 1991, Comparative uses and cost for TPN in the United States, Canada, and the United Kingdom., JPEN J Parenter Enteral Nutr, 15, 498, 10.1177/0148607191015004498 Marshall, 2005, Economic analysis of home vs hospital-based parenteral nutrition in Ontario, Canada., JPEN J Parenter Enteral Nutr, 29, 266, 10.1177/0148607105029004266 Detsky, 1986, A cost-utility analysis of the home parenteral nutrition program at Toronto General Hospital: 1970-1982., J Parenter Enteral Nutr, 10, 49, 10.1177/014860718601000149 Vantini, 2004, Survival rate and prognostic factors in patients with intestinal failure., Dig Liver Dis, 36, 46, 10.1016/j.dld.2003.09.015 Messing, 1999, Long-term survival and parenteral nutrition dependence in adult patients with the short bowel syndrome., Gastroenterology, 117, 1043, 10.1016/S0016-5085(99)70388-4 CohenRMartinezMHealth insurance coverage: estimates from the National Health Interview Survey,2005.Atlanta, GA:Centers for Disease Control and Prevention,2006. Howard, 2003, Management of complications in patients receiving home parenteral nutrition., Gastroenterology, 124, 1651, 10.1016/S0016-5085(03)00326-3 Goulet, 1992, Which patients need small bowel transplantation for neonatal short bowel syndrome?, Transplant Proc, 24, 1058 Modi, 2007, International STEP Data Registry. First report of the international serial transverse enteroplasty data registry: indications, efficacy, and complications., J Am Coll Surg, 204, 365, 10.1016/j.jamcollsurg.2006.12.033 Gura, 2008, Safety and efficacy of a fish-oil-based fat emulsion in the treatment of parenteral nutrition-associated liver disease., Pediatrics, 121, e678, 10.1542/peds.2007-2248 Sigalet, 2001, ALX-0600 (NPS Allelix Corp)., Curr Opin Investig Drugs, 2, 505