2022 Alzheimer's disease facts and figures
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National Institute on Aging. What are frontotemporal disorders? Available at:https://www.nia.nih.gov/health/what‐are‐frontotemporal‐disorders. Accessed December 18 2021.
Cummings J, 2021, Aducanumab: Appropriate use recommendations, J Prev Alz Dis, 4, 398
Aducanumab (marketed as Aduhelm) Information. Available at:https://www.fda.gov/drugs/postmarket‐drug‐safety‐information‐patients‐and‐providers/aducanumab‐marketed‐aduhelm‐information. Accessed December 10 2021.
Grossberg GT, 2010, The art of sharing the diagnosis and management of Alzheimer's disease with patients and caregivers: Recommendations of an expert consensus panel, Prim Care Companion J Clin Psychiatry, 12
National Institute on Aging. What causes Alzheimer's disease. Available at:https://www.nia.nih.gov/health/what‐causes‐alzheimers‐disease. Accessed December 18 2021.
National Down Syndrome Society. Alzheimer's Disease and Down Syndrome. Available at:https://www.ndss.org/resources/alzheimers/. Accessed December 18 2021.
World Health Organization. Risk reduction of cognitive decline and dementia: WHO guidelines.https://www.who.int/publications/i/item/risk‐reduction‐of‐cognitive‐decline‐and‐dementia. Accessed December 18 2021.
Institute of Medicine, 2015, Cognitive Aging: Progress in Understanding and Opportunity for Action
HarringtonM WeuveJ JacksonJW BlackerD.Physical Activity. The AlzRisk Database. Alzheimer Research Forum. Available at:http://www.alzrisk.org. Accessed December 18 2021.
Tan ZS, 2017, Physical activity, brain volume, and dementia risk: The Framingham Study, J Gerontol A Biol Sci Med Sci, 72, 789
Stephen R, 2017, Physical activity and Alzheimer's disease: A systematic review, J Gerontol A Biol Sci Med Sci, 72, 733
Soni M, 2017, Physical activity pre‐ and post‐dementia: English Longitudinal Study of Ageing, Aging Ment Health, 17, 1
Jensen CS, 2019, Patients with Alzheier's disease who carry the APOE e4 allele benefit more from physical exercise, TRCI, 5, 99
Stern Y, 2018, Whitepaper: Defining and investigating cognitive reserve, brain reserve, and brain maintenance, Alzheimers Dement, 1552, 33491
Harris CD, 2013, Adult participation in aerobic and muscle‐strengthening physical activities — United States, 2011, Morb Mortal Wkly Rep, 62, 326
Gillespie CD, 2013, Prevalence of hypertension and controlled hypertension — United States, 2007‐2010, MMWR Suppl, 62, 144
Centers for Disease Control and Prevention. Current Cigarette Smoking Among Adults in the United States. Available at:https://www.cdc.gov/tobacco/data_statistics/fact_sheets/adult_data/cig_smoking/index.htm. Accessed December 18 2021.
Yates LA, 2016, Cognitive leisure activities and future risk of cognitive impairment and dementia: Systematic review and meta‐analysis, Int Psychogeriatr, 9, 1
Centers for Disease Control and Prevention. Surveillance Report: Traumatic Brain Injury‐related Hospitalizations and Deaths by Age Group Sex and Mechanism of Injury United States 2016/2017. Available at:https://www.cdc.gov/traumaticbraininjury/pdf/TBI‐surveillance‐report‐2016‐2017‐508.pdf. Accessed September 14 2021.
Centers for Disease Control and Prevention. Traumatic Brain Injury & Concussion. Potential Effects. Available at:https://www.cdc.gov/traumaticbraininjury/outcomes.html. Accessed December 18 2021.
Centers for Medicare & Medicaid Services. Preliminary Medicare COVID‐19 Data Snapshot: Medicare Claims and Encounter Data: January 1 2020 to July 24 2021 Available at:https://www.cms.gov/files/document/medicare‐covid‐19‐data‐snapshot‐fact‐sheet.pdf. Accessed October 18 2021.
BriesacherBA KoetheB Olivieri‐MuiB et al.Association of positive delirium screening with incident dementia in skilled nursing facilities.
CherbuinN KimS AnsteyKJ. Dementia risk estimates associated with measures of depression: A systematic review and meta‐analysis. Available at:https://bmjopen.bmj.com/content/5/12/e008853. Accessed December 18 2021.
Administration for Community Living. 2020 Profile of Older Americans: May 2021. Available at:https://acl.gov/sites/default/files/Aging%20and%20Disability%20in%20America/2020ProfileOlderAmericans.Final_.pdf. Accessed November 19 2021.
HeW GoodkindD Kowal P.U.S. Census Bureau International Population Reports P95/16‐1 An Aging World: 2015 U.S. Government Publishing Office Washington DC 2016. Available at:http://www.census.gov/content/dam/Census/library/publications/2016/demo/p95‐16‐1.pdf. Accessed December 18 2021.
U.S. Census Bureau. 2014 National Population Projections: Downloadable Files. Available at:https://www.census.gov/data/datasets/2014/demo/popproj/2014‐popproj.html. Accessed December 18 2021.
Administration on Aging Administration for Community Living U.S. Department of Health and Human Services. A Profile of Older Americans: 2016. Available at:https://www.acl.gov/sites/default/files/Aging%20and%20Disability%20in%20America/2016‐Profile.pdf. Accessed December 18 2021.
Healthy People 2030. Available at:https://health.gov/healthypeople/objectives‐and‐data/browse‐objectives/dementias/increase‐proportion‐older‐adults‐dementia‐or‐their‐caregivers‐who‐know‐they‐have‐it‐dia‐01. Accessed December 18 2021.
Alzheimer's Association. 2019 Alzheimer's Disease Facts and Figures. Special report: Alzheimer's detection in the primary care setting — connecting patients with physicians. Available at:https://www.alzheimersanddementia.com/article/S1552‐5260(19)30031‐7/fulltext. Accessed December 18 2021.
Unpublished data from the 2019‐2020 Behavioral Risk Factor Surveillance System survey conducted in 46 states and the District of Columbia analyzed and provided to the Alzheimer's Association by the Alzheimer's Disease Program Centers for Disease Control and Prevention.
Unpublished tabulations based on data from the Medicare Current Beneficiary Survey for 2018. Prepared under contract by Health Care Cost Institute December 2021.
Manly JJ, 2004, Critical perspectives on racial and ethnic differentials in health in late life, 95
Lines LM, 2014, Racial and Ethnic Disparities Among Individuals with Alzheimer's Disease in the United States: A literature review
PrinceMJ WimoA GuerchetM AliG‐C WuY‐T PrinaM.World Alzheimer Report 2015: The Global Impact of Dementia: An Analysis of Prevalence Incidence Cost and Trends;2015.
U.S. Census Bureau. 2017 National Population Projections Tables. Available at:https://www.census.gov/data/tables/2017/demo/popproj/2017‐summary‐tables.html. Accessed December 18 2021.
The World Bank. Fertility total (births per woman)—US. Available at:https://data.worldbank.org/indicator/SP.DYN.TFRT.IN?locations=US. Accessed September 13 2021.
Agree EM, 2006, International Handbook of Population Aging, 647
RogersL WilderK. Shift in Working‐Age Population Relative to Older and Younger Americans. Created: June 25 2020. Available at:https://www.census.gov/library/stories/2020/06/working‐age‐population‐not‐keeping‐pace‐with‐growth‐in‐older‐americans.html. Accessed: September 13 2021.
Administration for Community Living. 2019 Profile of Older Americans. May 2020 Available at:https://acl.gov/sites/default/files/Aging%20and%20Disability%20in%20America/2019ProfileOlderAmericans508.pdf. Accessed September 13 2021.
Bauman 2016.https://www.census.gov/newsroom/blogs/random‐samplings/2016/03/shift‐toward‐greater‐educational‐attainment‐for‐women‐began‐20‐years‐ago.html.
Population Reference Bureau 2012.https://www.prb.org/resources/why‐is‐the‐u‐s‐birth‐rate‐declining/.
XuJQ MurphySL KochanekKD AriasE. Mortality in the United States 2018. NCHS Data Brief; No. 355.Hyattsville MD:National Center for Health Statistics.2020.
U.S. Department of Health and Human Services Centers for Disease Control and Prevention National Center for Health Statistics. CDC WONDER online database: About Underlying Cause of Death 1999‐2019. Available at:https://wonder.cdc.gov/ucd‐icd10.html. Accessed December 28 2021.
World Health Organization, 2004, International Statistical Classification of Diseases and Related Health Problems
KramarowEA Tejada‐VeraB.Dementia mortality in the United States 2000‐2017.National Vital Statistics Reports; Vol 68 No 2.Hyattsville MD:National Center for Health Statistics;2019. Available at:https://www.cdc.gov/nchs/data/nvsr/nvsr68/nvsr68_02‐508.pdf. Accessed December 18 2021.
Unpublished tabulations based on data from the National 100% Sample Medicare Fee‐for‐Service Beneficiaries for 2019. Prepared under contract by Health Care Cost Institute December2021.
Centers for Disease Control and Prevention. National Center for Health Statistics. Excess Deaths Associated with COVID‐19. Available at:https://www.cdc.gov/nchs/nvss/vsrr/covid19/excess_deaths.htm. Accessed December 18 2021.
U.S Department of Health and Human Services. Centers for Disease Control and Prevention. National Center for Health Statistics. CDC WONDER online database: About Provisional Mortality Statistics 2018 Through Last Month. Available athttps://wonder.cdc.gov/mcd‐icd10‐provisional.html. Accessed February 7 2022.
Tejada‐VeraB.Mortality from Alzheimer's disease in the United States: Data for 2000 and 2010. National Center for Health Statistics Data Brief No. 116.National Center for Health Statistics Hyattsville MD;2013.
SpillmanB WolffJ FreedmanVA KasperJD.Informal Caregiving for Older Americans: An Analysis of the 2011 National Health and Aging Trends Study. Available at:https://aspe.hhs.gov/pdf‐report/informal‐caregiving‐older‐americans‐analysis‐2011‐national‐health‐and‐aging‐trends‐study. Accessed December 18 2021.
Walmart: 2021 Annual Report. Available at:https://s2.q4cdn.com/056532643/files/doc_financials/2021/ar/WMT_2021_AnnualReport.pdf. Accessed December 18 2021.
McDonald's Corporation Report 2020. Available at:https://corporate.mcdonalds.com/content/dam/gwscorp/assets/investors/financial‐information/annual‐reports/2020%20Annual%20Report.pdf. Accessed December 18 2021.
Official Data Foundation. CPI inflation calculator. Available at:http://www.in2013dollars.com/2017‐dollars‐in‐2018?amount=139765. Accessed December 18 2021.
Alzheimer's Association. Issues Brief: LGBT and Dementia. Available at:https://www.alz.org/media/Documents/lgbt‐dementia‐issues‐brief.pdf. Accessed December 18 2021.
KasperJD FreedmanVA SpillmanBC.Disability and Care Needs of Older Americans by Dementia Status: An Analysis of the 2011 National Health and Aging Trends Study. U.S. Department of Health and Human Services;2014. Available at:http://aspe.hhs.gov/report/disability‐and‐care‐needs‐older‐americans‐dementia‐status‐analysis‐2011‐national‐health‐and‐aging‐trends‐study. Accessed December 18 2021.
National Alliance for Caregiving in Partnership with the Alzheimer's Association. Dementia Caregiving in the U.S. Bethesda MD. Available at:https://www.caregiving.org/wp‐content/uploads/2020/05/Dementia‐Caregiving‐in‐the‐US_February‐2017.pdf. Accessed December 18 2021.
Unpublished data from the 2015 2016 and 2017 Behavioral Risk Factor Surveillance System survey analyzed by and provided to the Alzheimer's Association by the Alzheimer's Disease and Healthy Aging Program (AD+HP) Centers for Disease Control and Prevention (CDC).
National Poll on Healthy Aging. Dementia Caregivers: Juggling Delaying and Looking Forward. Available at:http://www.healthyagingpoll.org/sites/default/files/2017‐10/NPHA_Caregivers‐Report‐PROOF_101817_v2.pdf. Accessed December 18 2021.
Caregiving in the U.S.: 2020 Report. Available at:https://www.aarp.org/content/dam/aarp/ppi/2020/05/full‐report‐caregiving‐in‐the‐united‐states.doi.10.26419‐2Fppi.00103.001.pdf. Accessed December 18 2021.
National Alliance for Caregiving and AARP. Caregiving in the U.S.: Unpublished data analyzed under contract for the Alzheimer's Association;2009.
Alzheimer's Association. 2014 Alzheimer's Disease Facts and Figures. Special Report: Women and Alzheimer's Disease. Available at:https://www.alzheimersanddementia.com/article/S1552‐5260(14)00062‐4/fulltext. Accessed December 18 2021.
Ma M, 2017, Alzheimer's disease and caregiving: A meta‐analytic review comparing the mental health of primary carers to controls, Aging Ment Health, 5, 1
Park VT, 2021, Asian Americans and Pacific Islanders' perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging, and caregiving research, Alzheimers Dement (N Y), 7, e12195, 10.1002/trc2.12195
National Alliance for Caregiving and AARP. Caregiving in the U.S. (2015 Report). Available at:https://www.aarp.org/content/dam/aarp/ppi/2015/caregiving‐in‐the‐united‐states‐2015‐report‐revised.pdf. Accessed December 18 2021.
Liu W, 2009, Aging families and caregiving, 85
Quinn C, 2019, Influence of positive aspects of dementia caregiving on caregivers' well‐being: A systematic review, Gerontologist, 59, e584
Vitaliano PP, 2017, Objective and subjective cognitive problems among caregivers and matched non‐caregivers, Gerontologist, 57, 637
Parker LJ, 2021, Is dementia‐specific caregiving compared with non‐dementia caregiving associated with physical difficulty among caregivers for community‐dwelling adults?, J Appl Gerontol, 733464821101435
Roth DL, 2019, Is family caregiving associated with inflammation or compromised immunity? A meta‐analysis, Gerontologist, 59, e521
Meyer K, 2021, The differential effects of caregiving intensity on overnight hospitalization, West J Nurs Res, 193945921100290
AARP Family Caregiving and Out‐of‐Pocket Costs: 2016 Report. Available at:https://www.aarp.org/content/dam/aarp/research/surveys_statistics/ltc/2016/family‐caregiving‐costs‐fact‐sheet.doi.10.26419%252Fres.00138.002.pdf. Accessed December 18 2021.
Maslow K, 2012, Translating Innovation to Impact: Evidence‐Based Interventions to Support People with Alzheimer's Disease and their Caregiver at Home and in the Community
Rosalynn Carter Institute for Caregiving. Available at:https://www.rosalynncarter.org/. Accessed December 18 2021.
Hodgson N, Bridging the Family Care Gap
Rising KL, 2021, Living through the pandemic: The voices of persons with dementia and their caregivers, J Appl Gerontol, 733464821103639
WethingtonE BurgioLD.Translational research on caregiving: Missing links in the translation process. In:GauglerJE KaneRL eds.Family caregiving in the new normal.Philadelphia Pa.:Elsevier Inc;2015: p.193‐210.
Zarit SH, 2017, Past is prologue: How to advance caregiver interventions, Aging Ment Health, 16, 1
Whitlatch CJ, 2018, Meeting the informational, educational, and psychosocial support needs of persons living with dementia and their family caregivers, Gerontologist, 58, S58
U.S. Department of Health and Human Services. National Research Summit on Care Services and Supports for Persons with Dementia and their Caregivers. Available at:https://aspe.hhs.gov/national‐research‐summit‐care‐services‐and‐supports‐persons‐dementia‐and‐their‐caregivers. Accessed December 18 2021.
The Lewin Group. Process Evaluation of the Older Americans Act Title IIIE‐National Family Caregiver Support Program: Final Report 2016. Available at:https://acl.gov/sites/default/files/programs/2017‐02/NFCSP_Final_Report‐update.pdf. Accessed December 18 2021.
Alzheimer's Association. Alzheimer's Association Dementia Care Practice Recommendations. Available at:https://www.alz.org/media/Documents/alzheimers‐dementia‐care‐practice‐recommendations.pdf. Accessed December 18 2021.
GauglerJE. Our vast family care system for the elderly is at risk of collapse. Available at:https://www.startribune.com/our‐vast‐family‐care‐system‐for‐the‐elderly‐is‐about‐to‐collapse/572221182/. Accessed December 18 2021.
Mitchell LL, 2021, Caring for a relative with dementia in long‐term care during COVID‐19, J Am Med Dir Assoc
U.S. Department of Health and Human Services Health Resources and Services Administration National Center for Health Workforce Analysis. National and Regional Projections of Supply and Demand for Geriatricians: 2013‐2025. Available at:https://bhw.hrsa.gov/sites/default/files/bhw/health‐workforce‐analysis/research/projections/. Accessed October 24 2021.
U.S. Centers for Medicare & Medicaid Services. State Level Chronic Conditions Table: Prevalence Medicare Utilization and Spending 2008‐2018. Available at:https://www.cms.gov/Research‐Statistics‐Data‐and‐Systems/Statistics‐Trends‐and‐Reports/Chronic‐Conditions/CC_Main.html. Accessed December 18 2021.
Rao A, 2017, Dementia neurology deserts: What are they and where are they located in the US?, Alzheimers Dement, 13, P509
American Society of Geriatrics. Geriatrics workforce by the numbers. Available at:https://www.americangeriatrics.org/geriatrics‐profession/about‐geriatrics/geriatrics‐workforce‐numbers. Accessed December 18 2021.
Institute of Medicine, 2008, Retooling for an Aging America: Building the Health Care Workforce
American Association of Nurse Practitioners (AANP). NP Fact Sheet 2021. Available at:https://www.aanp.org/about/all‐about‐nps/np‐fact‐sheet. Accessed October 24 2021.
Khatutsky G, 2011, Understanding direct care workers: A snapshot of two of America's most important jobs: Certified nursing assistants and home health aides
Stone R, 2012, Universal Coverage of Long‐Term Care in the United States: Can We Get There from Here?, 155
Jones AL, 2009, The National Nursing Home Survey: 2004 Overview, Vital Health Stat 13, 1
Kramer NA, 2000, Professional Psychology in Long‐Term Care, 227
WellerC AlmeidaB CohenM StoneR. Making Care Work Pay. Available at:https://www.ltsscenter.org/wp‐content/uploads/2020/09/Making‐Care‐Work‐Pay‐Report‐FINAL.pdf. Accessed December 18 2021.
Paraprofessional Healthcare Institute (PHI). Direct Care Workers in the United States: Key Facts. 2021 Available at:https://phinational.org/resource/direct‐care‐workers‐in‐the‐united‐states‐key‐facts‐2/. Accessed October 22 2021.
U.S. Bureau of Labor Statistics. Occupational Outlook Handbook ‐ Healthcare. Available at:https://www.bls.gov/ooh/healthcare/home‐health‐aides‐and‐personal‐care‐aides.htm. Accessed December 18 2021.
U.S. Bureau of Labor Statistics. Occupational Outlook Handbook ‐ Building and Grounds cleaning. Available at:https://www.bls.gov/ooh/building‐and‐grounds‐cleaning/janitors‐and‐building‐cleaners.htm. Accessed December 18 2021.
U.S. Bureau of Labor Statistics. Occupational Outlook Handbook ‐ Retail Sales Workers. Available at:https://www.bls.gov/ooh/sales/retail‐sales‐workers.htm. Accessed December 18 2021.
Paraprofessional Healthcare Institute (PHI). Workplace Injuries and the Direct Care Workforce. Available at:https://phinational.org/resource/workplace‐injuries‐direct‐care‐workforce. Accessed October 21 2021.
Paraprofessional Healthcare Institute (PHI). We Surveyed Our Stakeholders on COVID‐19. Here's What We Learned. Available at:https://phinational.org/we‐surveyed‐our‐stakeholders‐on‐covid‐19‐heres‐what‐we‐learned/. Accessed October 21 2021.
Paraprofessional Healthcare Institute (PHI). Understanding the Direct Care Workforce: Key Facts and FAQs. Available at:https://phinational.org/policy‐research/key‐facts‐faq. Accessed October 21 2021.
RoweJW BerkmanL FriedT et al.2016.Preparing for Better Health and Health Care for an Aging Population: A Vital Direction for Health and Health Care. NAM Perspectives. Discussion Paper National Academy of Medicine Washington DC.
WintersA BlockL MaxeyH MedlockC RuaneK HockenberryS.State Strategies for Sector Growth and Retention for the Direct Care Health Workforce.Washington DC:National Governors Association Center for Best Practices;2021. Available at:https://www.nga.org/wp‐content/uploads/2021/10/NGA_SectorGrowth‐DirectCare_report.pdf. Accessed October 21 2021.
Warshaw GA, 2016, The essential components of quality geriatric care, Generations, 40, 28
BurkeG OrlowskiG. Training to serve people with dementia: is our health care system ready? Available at:https://www.justiceinaging.org/wp‐content/uploads/2015/08/Training‐to‐serve‐people‐with‐dementia‐Alz1_Final.pdf. Accessed October 24 2021.
American Public Health Asociation. Strengthening the dementia care workforce: A public health priority. Available at:https://www.apha.org/policies‐and‐advocacy/public‐health‐policy‐statements/policy‐database/2021/01/13/strengthening‐the‐dementia‐care‐workforce. Accessed Ddecember 19 2021.
VespaJ MedinaL ArmstrongDM.Demographic Turning Points for the United States: Population Projections for 2020 to 2060. Current Population Reports. 2020 P25‐1144 U.S. Census Bureau Washington DC 2020.
Gaps in the Dementia Care Workforce: Research Update and Data Needs. Committee on Population (CPOP) Semi‐Annual Meeting May 23 2019. Available at:https://www.nia.nih.gov/sites/default/files/2019‐11/Seminar‐Gaps‐Dementia‐Workforce‐Final‐508.pdf. Accessed October 24 2021.
The Gerontological Society of America. The GSA KAER Toolkit for Primary Care Teams: Supporting Conversations about Brain Health Timely Detection of Cognitive Impairment and Accurate Diagnosis of Dementia. Fall 2020 Edition. Available at:https://www.geron.org/images/gsa/Marketing/KAER/GSA_KAER‐Toolkit_2020_Final.pdf. Accessed October 22 2021.
TyD McDermottM for the Alliance to Improve Dementia Care and Milken Institute. Building Workforce Capacity to Improve Detection and Diagnosis of Dementia. May 10 2021. Available at:https://milkeninstitute.org/reports/building‐dementia‐workforce‐capacity. Accessed November 19 2021.
Geddes MR, 2020, Alzheimer Society of Canada Task Force on Dementia Care Best Practices for COVID‐19. Remote cognitive and behavioral assessment: Report of the Alzheimer Society of Canada Task Force on dementia care best practices for COVID‐19, Alzheimers Dement, 12, e12111
Unpublished data from the 2018 Medicare Current Beneficiary Survey (MCBS) analyzed by the Alzheimer's Association. October 2020.
Fishman P, 2019, Cost of dementia in Medicare Managed Care: A systematic literature review, Am J Manag Care, 25, e247
U.S. Centers for Medicare & Medicaid Services. State Level Chronic Conditions Table: Prevalence Medicare Utilization and Spending 2007‐2018. Available at:https://www.cms.gov/Research‐Statistics‐Data‐and‐Systems/Statistics‐Trends‐and‐Reports/Chronic‐Conditions/CC_Main.html. Accessed December 18 2021.
CairnsC KangK SantoL. National Hospital Ambulatory Medical Care Survey: 2018 Emergency Department Summary Tables. Available from:https://www.cdc.gov/nchs/data/nhamcs/web_tables/2018_ed_web_tables‐508.pdf. Accessed December 14 2021.
Medicare. Glossary. Medicare: The Official U.S. Government Site for Medicare. Available at:https://www.medicare.gov/glossary/a. Accessed December 18 2021.
Harris‐Kojetin L, 2019, Long‐term care providers and services users in the United States, 2015‐2016. National Center for Health Statistics, Vital Health Stat, 3
LendonJP SinghP. Adult Day Services Center Participant Characteristics: United States 2018. NCHS Data Brief No. 411 September 2021. Available at:https://www.cdc.gov/nchs/data/databriefs/db411.pdf. Accessed December 21 2021.
Rome V, 2020, Differences in characteristics of adult day services centers by level of medical service provision, National Center for Health Statistics, 3, 1
CaffreyC SenguptaM MelekinA. Residential care community resident characteristics: United States 2018. NCHS Data Brief No. 404 September 2021.
Sengupta M, 2020, Characteristics of residential care communities by percentage of resident population diagnosed with dementia: United States, 2016, Natl Health Stat Report, 148, 1
CaffreyC SenguptaM.Variation in residential care community resident characteristics by size of community: United States 2016. NCHS Data Brief no 299.Hyattsville MD:National Center for Health Statistics.2018.
CaffreyC Harris‐KojetinL RomeV SenguptaM.Variation in operating characteristics of residential care communities by size of community: United States 2014. NCHS Data Brief No. 222. November2015.
U.S. Centers for Medicare & Medicaid Services. Nursing Home Data Compendium 2015 Edition. Available at:https://www.cms.gov/Medicare/Provider-Enrollment-and-Certification/CertificationandComplianc/Downloads/nursinghomedatacompendium_508-2015.pdf. Accessed December 18 2021.
ColeloKJ. Who pays for long‐term services and supports? Congressional Research Service In Focus IF10343. August 5 2021. Available at:https://crsreports.congress.gov/. Accessed November 22 2021.
EikenS SredlK BurwellB AmosA. Medicaid Expenditures for Long‐Term Services and Supports in FY 2016. IAP Medicaid Innovation Accelerator Program. IBM Watson. May 2018. Available at:https://www.medicaid.gov/sites/default/files/2019‐12/ltssexpenditures2016.pdf. Accessed December 18 2021.
MurrayC TourtellotteA LipsonD WysockiA.Medicaid Long Term Services and Supports Annual Expenditures Report: Federal Fiscal Years 2017 and 2018.Chicago IL:Mathematica January 7 2021.
BynumJ. Characteristics Costs and Health Service Use for Medicare Beneficiaries with a Dementia Diagnosis: Report 1: Medicare Current Beneficiary Survey. Unpublished; provided under contract with the Alzheimer's Association.Lebanon NH:Dartmouth Institute for Health Policy and Clinical Care Center for Health Policy Research January2009.
Genworth. Genworth Cost of Care Survey 2020 Summary and Methodology. Genworth Financial Inc.https://pro.genworth.com/riiproweb/productinfo/pdf/131168.pdf. December 2 2020. Accessed December 18 2021.
KomaW NeumanT JacobsonG SmithK. Medicare beneficiaries’ financial security before the coronavirus pandemic. Issue Brief.Kaiser Family Foundation.www.kff.org/medicare/issue‐brief/medicare‐beneficiaries‐financial‐security‐before‐the‐coronavirus‐pandemic/. Accessed on December 18 2021.
U.S. Centers for Medicare & Medicaid Services. Your Medicare Coverage. Long‐Term Care. Available at:https://www.medicare.gov/coverage/long‐term‐care.html. Accessed December 18 2021.
Centers for Medicare and Medicaid Services. Skilled nursing facility (SNF) care.https://www.medicare.gov/coverage/skilled‐nursing‐facility‐snf‐care. Accessed December 18 2021.
Centers for Medicare and Medicaid Services. What Are Long‐Term Care Hospitals? CMS Product No. 11347.https://www.medicare.gov/Pubs/pdf/11347‐Long‐Term‐Care‐Hospitals.pdf. Revised June 2019. Accessed December 18 2021.
Centers for Medicare and Medicaid Services. Original Medicare (Part A and B) Eligibility and Enrollment.https://www.cms.gov/Medicare/Eligibility‐and‐Enrollment/OrigMedicarePartABEligEnrol. Last Modified July 8 2020. Accessed December 18 2021.
FreedM DamicoA NeumanT.A Dozen Facts About Medicare Advantage in 2020.Kaiser Family Foundation. April 20 2020.https://www.kff.org/medicare/issue‐brief/a‐dozen‐facts‐about‐medicare‐advantage‐in‐2020/. Accessed December 18 2021.
Centers for Medicare and Medicaid Services. How Do Medicare Advantage Plans Work?https://www.medicare.gov/sign‐up‐change‐plans/types‐of‐medicare‐health‐plans/medicare‐advantage‐plans/how‐do‐medicare‐advantage‐plans‐work. Accessed December 18 2021.
Centers for Medicare and Medicaid Services. What's Medicare? What's Medicaid? CMS Product No. 11306.https://www.medicare.gov/Pubs/pdf/11306‐Medicare‐Medicaid.pdf. Accessed December 18 2021.
U.S. Department of Health and Human Services. What is Long‐Term Care Insurance? Available at:http://longtermcare.gov/costs‐how‐to‐pay/what‐is‐long‐term‐care‐insurance/. Accessed December 18 2021.
National Association of Insurance Commissioners and the Center for Insurance Policy and Research. The State of Long‐Term Care Insurance: The Market Challenges and Future Innovations. CIPR Study Series 2016‐1. May 2016.
ReavesEL MusumeciM. Medicaid and Long‐Term Services and Supports: A Primer.Menlo Park Calif.: Kaiser Commission on Medicaid and the Uninsured Henry J. Kaiser Family Foundation; December 2015. Publication # 8617‐02.
House Bill 1087 66th Legislature 2019 Regular Session. Long‐Term Services and Supports Trust Program. Available at:http://lawfilesext.leg.wa.gov/biennium/2019‐20/Pdf/Bills/Session%20Laws/House/1087‐S2.SL.pdf#page=1. Accessed December 18 2021.
Centers for Medicare and Medicaid Services. Medicare and hospice benefits: Getting Started. Care and support for people who are terminally ill. CMS Product No. 11361. Revised March 2020. Available atwww.medicare.gov/Pubs/pdf/11361‐Medicare‐Hospice‐Getting‐Started.pdf. Accessed December 18 2021.
U.S. Centers for Medicare & Medicaid Services. Post‐Acute Care and Hospice Provider Data 2017. Available at:https://www.cms.gov/Research‐Statistics‐Data‐and‐Systems/Statistics‐Trends‐and‐Reports/Medicare‐Provider‐Charge‐Data/PAC2017. Accessed December 18 2021.
U.S. Department of Health and Human Services, Centers for Medicare and Medicaid Services, 2021, 42 CFR Part 418 [CMS‐1754‐F] RIN 0938‐AU41. Medicare Program; FY 2022 Hospice Wage Index and Payment Rate, Hospice Conditions of ParticipationUpdates, Hospice and Home Health Quality Reporting Program Requirements Update, Federal Register, 86, 42528
BynumJPW MearaE ChangC‐H RhoadsJM.Our Parents Ourselves: Health Care for an Aging Population. A Report of the Dartmouth Atlas Project. The Dartmouth Institute for Health Policy & Clinical Practice;2016.
Centers for Disease Control and Prevention National Center for Health Statistics. Underlying Cause of Death 1999‐2019 on CDC WONDER Online Database released in 2020. Data are from the Multiple Cause of Death Files 1999‐2019 as compiled from data provided by the 57 vital statistics jurisdictions through the Vital Statistics Cooperative Program. Avaialble at:http://wonder.cdc.gov/ucd‐icd10.html. Accessed November 15 2021.
Healthy People 2020. Available at:https://www.healthypeople.gov/2020/data‐search/Search‐the‐Data#objid=4159. Accessed December 18 2021.
U.S. Centers for Medicare & Medicaid Services. COVID‐19 Nursing Home Data. Available at:https://data.cms.gov/covid‐19/covid‐19‐nursing‐home‐data. Accessed December 19 2021.
Centers for Medicare & Medicaid Services. Preliminary Medicare COVID‐19 Data Snapshot. Medicare Claims and Encounter Data: January 1 2020 to August 21 2021 Received by September 17 2021. Available at:https://www.cms.gov/files/document/medicare‐covid‐19‐data‐snapshot‐fact‐sheet.pdf. Accessed January 9 2022.
LamontH SamsonLW ZuckermanR DeyJ OliveiraI TaraziW.The Impact of COVID‐19 on Medicare Beneficiaries with Dementia (Issue Brief).Washington DC:Office of the Assistant Secretary for Planning and Evaluation U.S. Department of Health and Human Services. April 6 2021.
Centers for Medicare & Medicaid Services. The Impact of COVID‐19 on Medicare Beneficiaries in Nursing Homes. Available at:https://www.cms.gov/files/document/medicare‐covid‐19‐nursing‐home‐analysis.pdf. Accessed January 9 2022.
CubanskiJ NeumanT. FAQs on Medicare Financing and Trust Fund Solvency. Kaiser Family Foundation March 16 2021.https://www.kff.org/medicare/issue‐brief/faqs‐on‐medicare‐financing‐and‐trust‐fund‐solvency/. Accessed January 9 2022.
Alzheimer's Association. Changing the Trajectory of Alzheimer's Disease: How a Treatment by 2025 Saves Lives and Dollars. Available at:https://www.alz.org/help‐support/resources/publications/trajectory_report. Accessed December 18 2021.
Mattke S, 2021, Expected wait times for access to a disease‐modifying Alzheimer's treatment in the United States, Alzheimer's Dement, 1
Alzheimer's Association. Mild cognitive impairment (MCI). Available at:https://www.alz.org/alzheimers‐dementia/what‐is‐dementia/related_conditions/mild‐cognitive‐impairment. Accessed February 3 2022.
Mayo Clinic. Mild cognitive impairment (MCI): Symptoms and causes. Available at:https://www.mayoclinic.org/diseases‐conditions/mild‐cognitive‐impairment/symptoms‐causes/syc‐20354578. Accessed February 3 2022.
Harvard Health Publishing. Staving off dementia when you have mild cognitive impairment. March 30 2021. Available at:https://www.health.harvard.edu/staying‐healthy/staving‐off‐dementia‐when‐you‐have‐mild‐cognitive‐impairment. Accessed February 3 2021.
Mayo Clinic. Mild cognitive impairment (MCI): Diagnosis. Available at:https://www.mayoclinic.org/diseases‐conditions/mild‐cognitive‐impairment/diagnosis‐treatment/drc‐20354583. Accessed February 3 2022.
Teunissen CE, 2021, Blood‐based biomarkers for Alzheimer's disease: Towards clinical implementation, Lancet Neurol
National plan to address Alzheimer's disease: 2021 update. Available at:https://aspe.hhs.gov/reports/national‐plan‐2021‐update. Accessed February 3 2022.
Ad Council. Alzheimer's awareness. Available at:https://www.adcouncil.org/campaign/alzheimers‐awareness. Accessed February 3 2022.
Hopeful Together. About the campaign. Available at:https://hopefultogether.adcouncilkit.org/campaign/. Accessed February 3 2022.
Centers for Medicare & Medicaid Services. Cognitive Assessment & Care Plans. Available at:https://www.cms.gov/cognitive. Accessed February 3 2022.
Sabbagh MN, 2020, Early detection of mild cognitive impairment (MCI) in primary care, J Prev Alzheimers Dis, 7, 165
ACT on Alzheimer's. Screening and Diagnosing Diverse Populations. Available at:https://www.actonalz.org/screening‐diverse‐populations. Accessed February 3 2022.
Department of Health & Human Services Centers for Medicare & Medicaid Services. LTSS Research: Cognitive Assessment Tools. December 15 2017. Available at:https://www.cms.gov/Outreach‐and‐Education/American‐Indian‐Alaska‐Native/AIAN/LTSS‐TA‐Center/pdf/Best‐Practices‐Dementia‐Cognitive‐Assessment‐Tools.pdf. Accessed February 3 2022.
Alzheimer's Association. 2017 Alzheimer's disease facts and figures. Available at:https://www.alz.org/media/images/2017‐facts‐and‐figures.pdf. Accessed February 3 2022.
Alzheimer's Association. 2021 Alzheimer's Association Research Fellowship (AARF): Innovative approaches to diagnosis of AD for non‐specialty practice. Available at:https://www.alz.org/research/for_researchers/grants/funded‐studies‐details?FundedStudyID=2504. Accessed February 3 2022.
Clinicaltrials.gov. Discovery of novel biomarkers that will lead to the early detection of Alzheimer's disease (BVB). Available at:https://clinicaltrials.gov/ct2/show/NCT03136679. Accessed February 3 2022.
Clinicaltrials.gov. Rocky Mountain Alzheimer's Disease Center Longitudinal Biomarker and Clinical Phenotyping Study. Available at:https://clinicaltrials.gov/ct2/show/NCT02612376. Accessed February 3 2022.
Clinicaltrials.gov. Multi‐center development of a novel diagnostic test for Alzheimer's disease (DTAD). Available at:https://clinicaltrials.gov/ct2/show/NCT03560960. Accessed February 3 2022.
Rhoads K, 2021, UW Project ECHO‐Dementia: Implementation of a virtual clinic and telementoring program to improve dementia diagnosis and treatment in rural and under‐resourced primary care settings, Alzheimers Dement, 17, e051217, 10.1002/alz.051217
University of Washington Medicine Memory & Brain Wellness Center. Project ECHO® dementia. Available at:http://depts.washington.edu/mbwc/resources/echo. Accessed February 3 2022.
Oxford AE, 2020, Clinical trials in Alzheimer's disease: A hurdle in the path of remedy, Int J Alzheimers Dis, 2020, 5380346
National Institute on Aging. Together We Make the Difference: National Strategy for Recruitment and Participation in Alzheimer's and Related Dementias Clinical Research. October 2018. Available at:https://www.nia.nih.gov/sites/default/files/2018‐10/alzheimers‐disease‐recruitment‐strategy‐final.pdf. Accessed February 3. 2022.
U.S. Department of Labor. Changes in Basic Minimum Wages in Non‐Farm Employment Under State Law: Selected Years 1968 to 2021. Available at:https://www.dol.gov/agencies/whd/state/minimum‐wage/history. Accessed December 18 2021.