Journal of Patient-Reported Outcomes
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Correction to: do patients consider computer-adaptive measures more appropriate than static questionnaires?
Journal of Patient-Reported Outcomes - Tập 3 - Trang 1-1 - 2019
Following publication of the original article [1], the authors reported three of their given name have been erroneously tagged as their family names. The correct names are: give name Caroline family name Martini, give name Irene family name Virgolini, give name Bernhard family name Holzner.
Patient-reported outcomes in breast cancer FDA drug labels and review documents
Journal of Patient-Reported Outcomes - - 2021
Patient-reported outcomes (PROs) can provide valuable information about drug benefit-risk tradeoffs from the patient perspective and are particularly important to patients with breast cancer due to its symptoms and adverse events from breast cancer treatments. The United States Food and Drug Administration (U.S. FDA) has acknowledged PROs as important approval endpoints used in clinical trials of ......
Listening to the elephant in the room: response-shift effects in clinical trials research
Journal of Patient-Reported Outcomes - Tập 6 - Trang 1-14 - 2022
While a substantial body of work postulates that adaptation (response-shift effects) may serve to hide intervention benefits, much of the research was conducted in observational studies, not randomized-controlled trials. This scoping review identified all clinical trials that addressed response shift phenomena, and characterized how response-shift effects impacted trial findings. A scoping review ......
An emerging framework for fully incorporating public involvement (PI) into patient-reported outcome measures (PROMs)
Journal of Patient-Reported Outcomes - Tập 4 - Trang 1-10 - 2020
Patient-reported outcome measures (PROMs) are widely used in the United Kingdom (UK) and internationally to report and monitor patients’ subjective assessments of their symptoms and functional status and also their quality of life. Whilst the importance of involving the public in PROM development to increase the quality of the developed PROM has been highlighted this practice is not widespread. Th......
Patient reported outcomes – experiences with implementation in a University Health Care setting
Journal of Patient-Reported Outcomes - Tập 2 - Trang 1-7 - 2018
Patient-reported outcomes (PROs) have traditionally been implemented through a manual process of paper and pencil with little standardization throughout a Healthcare System. Each practice has asked patients specific questions to understand the patient’s health as it pertains to their specialty. These data were rarely shared and there has not been a comparison of patient’s health across different s......
Qualitative research with patients and caregivers of patients with PIK3CA related overgrowth spectrum: content validity of clinical outcome assessments
Journal of Patient-Reported Outcomes - Tập 6 - Trang 1-11 - 2022
PIK3CA-Related Overgrowth Spectrum (PROS) are rare syndromes caused by a mutation in the PIK3CA gene, including fibroadipose hyperplasia or overgrowth; congenital lipomatous overgrowth, vascular malformations, epidermal nevi, scoliosis/skeletal and spinal (CLOVES); megalencephaly-capillary malformation (MCAP or M-CM); fibro-adipose vascular anomaly (FAVA); Klippel-Trenaunay syndrome (KT; also know......
Development of consensus-based considerations for use of adult proxy reporting: an ISOQOL task force initiative
Journal of Patient-Reported Outcomes - Tập 7 - Trang 1-16 - 2023
Many large-scale population-based surveys, research studies, and clinical care allow for inclusion of proxy reporting as a strategy to collect outcomes when patients are unavailable or unable to provide reliable self-report. Prior work identified an absence of methodological guidelines regarding proxy reporting in adult populations, including who can serve as a proxy, and considerations for data c......
Psychometric performance of the Chichewa versions of the EQ-5D-Y-3L and EQ-5D-Y-5L among healthy and sick children and adolescents in Malawi
Journal of Patient-Reported Outcomes - Tập 7 - Trang 1-14 - 2023
The EuroQol Group has developed an extended version of the EQ-5D-Y-3L with five response levels for each of its five dimensions (EQ-5D-Y-5L). The psychometric performance has been reported in several studies for the EQ-5D-Y-3L but not for the EQ-5D-Y-5L. This study aimed to psychometrically evaluate the EQ-5D-Y-3L and EQ-5D-Y-5L Chichewa (Malawi) versions. The EQ-5D-Y-3L, EQ-5D-Y-5L and PedsQL™ 4.......
Patient factors affecting decision regret in the medical treatment process of gynecological diseases
Journal of Patient-Reported Outcomes - Tập 3 - Trang 1-11 - 2019
To ensure that patients continue treatment, it is essential that the patient is satisfied with the decision-making process of the treatment. One way to address this is to assess the healthcare quality using the concept of regret, which can measure “Being convinced in decision-making.” This study aimed to elucidate patient factors affecting regret using the Japanese version of the Decision Regret S......
Describing the emotional exhaustion, depersonalization, and low personal accomplishment symptoms associated with Maslach Burnout Inventory subscale scores in US physicians: an item response theory analysis
Journal of Patient-Reported Outcomes - Tập 4 - Trang 1-14 - 2020
Current US health policy discussions regarding physician burnout have largely been informed by studies employing the Maslach Burnout Inventory (MBI); yet, there is little in the literature focused on interpreting MBI scores. We described the burnout symptoms and precision associated with MBI scores in US physicians. Using item response theory (IRT) analyses of secondary, cross-sectional survey dat......
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