Young Adults’ Perspectives on Advance Care Planning

American Journal of Hospice and Palliative Medicine - Tập 35 Số 4 - Trang 627-634 - 2018
Jennifer Tripken1, Cathy S. Elrod2
1Department of Health and Human Performance, Marymount University, Arlington, VA, USA
2Department of Physical Therapy, Marymount University, Arlington, VA, USA

Tóm tắt

Objective: To describe the knowledge, attitudes, beliefs, and behaviors of young adults regarding advance care planning (ACP). Methods: A cross-sectional sample of young adults (N = 310) from a single metropolitan university during September to November 2016 completed an online survey about their knowledge, attitudes, beliefs, and behaviors regarding ACP. Descriptive statistics and correlation tests were conducted. Results: Young adults lacked familiarity and knowledge regarding ACP. Those who were most familiar with ACP terminology were more likely to be older, female, enrolled in a graduate program, and employed full time. Although the majority of respondents had positive attitudes and beliefs about ACP, only one-third had talked with their family/loved ones about their wishes for end-of-life care. Discussion: Our study findings suggest a strong need to inform and engage young adults in ACP and end-of-life care discussions. As young adults are likely to become a caregiver for an aging family member, they can have an important role in initiating and facilitating conversations with loved ones and be instrumental in ACP for older adults.

Từ khóa


Tài liệu tham khảo

10.1016/j.pec.2016.05.009

10.1016/j.pec.2011.07.008

10.1177/0269216314526272

10.1136/bmj.c1345

10.1001/archfami.9.10.1181

Give peace of mind: advance care planning. Center for Disease Control and Prevention. http://www.cdc.gov/aging/advancecareplanning/. Updated January 31, 2017. Accessed July 20, 2017.

10.7326/0003-4819-154-2-201101180-00012

10.1056/NEJMsa0907901

10.7326/0003-4819-154-5-201103010-00008

10.1016/j.jpainsymman.2011.08.003

10.5694/mja13.10158

10.1016/j.jpainsymman.2014.12.007

10.1016/j.healthpol.2010.01.004

Covinsky KE, Fuller JD, Yaffe K, Communications and decision-making in seriously ill patients: findings of the SUPPORT Project. The study to understand prognoses and preferences for outcomes and risks of treatments. J Am Geriatr Soc. 2000;48(suppl 5):S187–S193. https://repository.library.georgetown.edu/handle/10822/935148. Accessed July 27, 2017.

IOM (Institute of Medicine), 2015, Dying in America: Improving Quality and Honoring Individual Preferences near the End of Life

Caregiving in the U.S. 2015. National Alliance for Caregiving. http://www.caregiving.org/caregiving2015/. Accessed July 27, 2017.

10.1177/1049909116679140

10.1186/s12889-015-1575-y

10.1177/0030222815598912

Guengerich T, Management A. Caregiving and end of life issues: a survey of AARP members in Florida. AARP. http://www.aarp.org/relationships/grief-loss/info-02-2009/fl_eol_08.html. Accessed July 20, 2017.

Pew Research Center. Views on end-of-life medical treatments. Pew Res Cent Relig Public Life Proj. http://www.pewforum.org/2013/11/21/views-on-end-of-life-medical-treatments/. Accessed July 27, 2017.

Center to Advance Palliative Care. 2011 Public opinion research on palliative care: a report based on public opinion strategies. https://media.capc.org/filer_public/3c/96/3c96a114-0c15-42da-a07f-11893cca7bf7/2011-public-opinion-research-on-palliative-care_237.pdf. Accessed July 27, 2017.

Final chapter: Californians’ attitudes and experiences with death and dying. California Health Care Foundation. http://www.chcf.org/publications/2012/02/final-chapter-death-dying. Accessed July 20, 2017.

10.1016/j.amepre.2013.09.008

10.1093/geronb/gbs103

10.1177/0269216314531313

10.2190/W644-8645-6685-358V

10.1080/07481189008252341

Eshbaugh E, 2013, Individ Differ Res, 11, 22

10.1016/j.pec.2015.08.017