Những gì cần thiết để nuôi dưỡng trẻ em mắc chứng tự kỷ ở một tiểu bang nông thôn

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders: DSM-V. Washington, DC: American Psychiatric Publishing. American Psychological Association (2017). Ethical principles of psychologists and code of conduct. Retrieved from: https://www.apa.org/ethics/code/ethics-code-2017.pdf Antezana, L., Scarpa, A., Valdespino, A., Albright, J., & Richey, J. A. (2017). Rural trends in diagnosis and services for autism spectrum disorder. Frontiers in Psychology, 8, 590. https://doi.org/10.3389/fpsyg.2017.00590. Baio, J. (2012). Prevalence of autism spectrum disorders: autism and developmental disabilities monitoring network, 14 sites, United States, 2008. Morbidity and Mortality Weekly Report Surveillance Summaries, 61. Doi: https://www.jstor.org/stable/24806043?seq=1&cid=pdf-reference#references_tab_contents Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., . . . White, T. (2018). Prevalence of autism spectrum disorder among children aged 8 years—autism and developmental disabilities monitoring network, 11 sites, United States, 2014. Morbidity and Mortality Weekly Report Surveillance Summaries, 67, 1. doi:https://doi.org/10.15585/mmwr.ss6706a1. Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa. Caicedo, C. (2014). Families with special needs children: family health, functioning, and care burden. Journal of the American Psychiatric Nurses Association, 20, 398–407. https://doi.org/10.1177/1078390314561326. Cantwell, J., Muldoon, O. T., & Gallagher, S. (2014). Social support and mastery influence the association between stress and poor physical health in parents caring for children with developmental disabilities. Research in Developmental Disabilities, 35, 2215–2223. https://doi.org/10.1016/j.ridd.2014.05.012. Center for Disease Control and Prevention. (2016). Rural health policy briefs. Retrieved from https://www.cdc.gov/ruralhealth/docs/Rural_Childrens_Mental_Brief.pdf Christensen, D. L., Bilder, D. A., Zahorodny, W., Pettygrove, S., Durkin, M. S., Fitzgerald, R. T., et al. (2016). Prevalence and characteristics of autism spectrum disorder among 4-year-old children in the autism and developmental disabilities monitoring network. Journal of Developmental & Behavioral Pediatrics, 37, 1–8. https://doi.org/10.1097/DBP.0000000000000235. Daniels, A. M., & Mandell, D. S. (2014). Explaining differences in age at autism spectrum disorder diagnosis: a critical review. Autism, 18, 583–597. https://doi.org/10.1177/1362361313480277. Durkin, M. S., Elsabbagh, M., Barbaro, J., Gladstone, M., Happe, F., Hoekstra, R. A., et al. (2015). Autism screening and diagnosis in low resource settings: challenges and opportunities to enhance research and services worldwide. Autism Research, 8, 473–476. https://doi.org/10.1002/aur.1575. Dykens, E. M., Fisher, M. H., Taylor, J. L., Lambert, W., & Miodrag, N. (2014). Reducing distress in mothers of children with autism and other disabilities: a randomized trial. Pediatrics, 134, e454–e463. https://doi.org/10.1542/peds.2013-3164. Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and well-being in mothers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 40, 1274–1284. https://doi.org/10.1007/s10803-010-0986-y. Elder, J. H., Brasher, S., & Alexander, B. (2016). Identifying the barriers to early diagnosis and treatment in underserved individuals with autism spectrum disorders (ASD) and their families: a qualitative study. Issues in Mental Health Nursing, 37, 412–420. https://doi.org/10.3109/01612840.2016.1153174. Findler, L., Jacoby, A. K., & Gabis, L. (2016). Subjective happiness among mothers of children with disabilities: the role of stress, attachment, guilt and social support. Research in Developmental Disabilities, 55, 44–54. https://doi.org/10.1016/j.ridd.2016.03.006. Fountain, C., Winter, A. S., & Bearman, P. S. (2012). Six developmental trajectories characterize children with autism. Pediatrics, 129, e1112–e1120. https://doi.org/10.1542/peds.2011-1601. Gallagher, S., Lee, H., & Carroll, D. (2015). The association between spirituality and depression in parents caring for children with developmental disabilities. Journal of Religion and Health, 54, 358–370. https://doi.org/10.1007/s10943-014-9839-x. Gallagher, S., & Whiteley, J. (2013). The association between stress and physical health in parents caring for children with intellectual disabilities is moderated by children’s challenging behaviours. Journal of Health Psychology, 18, 1220–1231. https://doi.org/10.1177/1359105312464672. Gibson, D. D. (2007). Racial disparities in the age of diagnosis of autism spectrum disorder: examining factors that may contribute to delayed diagnosis in African-American children. Praxis, 7, 34. Gray, D. E. (2006). Coping over time: the parents of children with autism. Journal of Intellectual Disability Research, 50, 970–976. https://doi.org/10.1111/j.1365-2788.2006.00933.x. Hammond, S. A. (2013). The thin book of appreciative inquiry. Bend: Thin Book Publishing Co.. Health Resources and Services Administration. (2016). 2016 Wyoming health center data. Retrieved from: https://bphc.hrsa.gov/uds/datacenter.aspx?year=2012&state=WY Hennessy, J. L., & Hughes, F. (2014). Appreciative inquiry: a research tool for mental health services. Journal of Psychosocial Nursing and Mental Health Services, 52, 34–40; 58–39. doi:https://doi.org/10.3928/02793695-20140127-02 Koegel, L., Matos-Freden, R., Lang, R., & Koegel, R. (2012). Interventions for children with autism spectrum disorders in inclusive school settings. Cognitive and Behavioral Practice, 19, 401–412. https://doi.org/10.1016/j.cbpra.2010.11.003. Kuhaneck, H. M., Burroughs, T., Wright, J., Lemanczyk, T., & Darragh, A. R. (2010). A qualitative study of coping in mothers of children with an autism spectrum disorder. Physical and Occupational Therapy in Pediatrics, 30, 340–350. https://doi.org/10.3109/01942638.2010.481662. Kusch, J. D., Nelson, D. A., Simpson, D., Gerrits, R., & Glass, L. (2013). Using AI to understand key success features in evolving CTSAs. Clinical Translational Science, 6, 314–316. https://doi.org/10.1111/cts.12027. Lee, Y.-J., Park, H. J., & Recchia, S. L. (2015). Embracing each other and growing together: redefining the meaning of caregiving a child with disabilities. Journal of Child and Family Studies, 24, 3662–3675. https://doi.org/10.1007/s10826-015-0175-x. Lovaas, O. I. (1987). Behavioral treatment and normal educational and intellectual functioning in young autistic children. Journal of Consulting and Clinical Psychology, 55, 3–9. https://doi.org/10.1037/0022-006X.55.1.3. Lovaas, O. I., & Smith, T. (2003). Early and intensive behavioral intervention for autism. Evidence-based Psychotherapies for Children and Adolescents, 325–340. doi: https://doi.org/10.1016/j.rasd.2008.08.008. Magaña, S., Lopez, K., Aguinaga, A., & Morton, H. (2013). Access to diagnosis and treatment services among Latino children with autism spectrum disorders. Intellectual and Developmental Disabilities, 51, 141–153. https://doi.org/10.1352/1934-9556-51.3.141. Mandell, D. S., Listerud, J., Levy, S. E., & Pinto-Martin, J. A. (2002). Race differences in the age at diagnosis among Medicaid-eligible children with autism. Journal of the American Academy of Child & Adolescent Psychiatry, 41, 1447–1453. https://doi.org/10.1097/00004583-200212000-00016. McIntyre, L. L., & Brown, M. (2016). Examining the utilisation and usefulness of social support for mothers with young children with autism spectrum disorder. Journal of Intellectual & Developmental Disability, 1–9. doi: https://doi.org/10.3109/13668250.2016.1262534. Mello, M. P., Urbano, R. C., Goldman, S. E., & Hodapp, R. M. (2016). Services for children with autism spectrum disorder: comparing rural and non-rural communities. Education and Training in Autism and Developmental Disabilities, 51, 355. https://scholar.google.com/scholar?q=Mello%2C%20M.%20P.%2C%20Goldman%2C%20S.%2C%20Urbano%2C%20R.%20C.%2C%20%26%20Hodapp%2C%20R.%20M.%20%282016%29.%20Services%20for%20children%20with%20autism%20communities.%20Education%20and%20Training%20in%20Autism%20and%20Developmental%20Disabilities%2C%20in%20press. Accessed 10 March 2018. Miodrag, N., Burke, M., Tanner-Smith, E., & Hodapp, R. (2015). Adverse health in parents of children with disabilities and chronic health conditions: a meta analysis using the parenting stress index’s health sub domain. Journal of Intellectual Disability Research, 59, 257–271. https://doi.org/10.1111/jir.12135. Mohd Roffeei, S. H., Abdullah, N., & Basar, S. K. (2015). Seeking social support on Facebook for children with autism spectrum disorders (ASDs). International Journal of Medical Informatics, 84, 375–385. https://doi.org/10.1016/j.ijmedinf.2015.01.015. Moody, E. J., Reyes, N., Ledbetter, C., Wiggins, L., DiGuiseppi, C., Alexander, A., et al. (2017). Screening for autism with the SRS and SCQ: variations across demographic, developmental and behavioral factors in preschool children. Journal of Autism and Developmental Disorders, 47, 3550–3561. https://doi.org/10.1007/s10803-017-3255-5. Mottron, L. (2017). Should we change targets and methods of early intervention in autism, in favor of a strengths-based education? European Child & Adolescent Psychiatry, 26, 815–825. https://doi.org/10.1007/s00787-017-0955-5. Neff, K. D., & Faso, D. J. (2015). Self-compassion and well-being in parents of children with autism. Mindfulness, 6, 938–947. https://doi.org/10.1007/s12671-014-0359-2. Norman, N., Bennett, C., Cowart, S., Felzien, M., Flores, M., Flores, R., et al. (2013). Boot camp translation: a method for building a community of solution. Journal of the American Board of Family Medicine, 26, 254–263. https://doi.org/10.3122/jabfm.2013.03.120253. Parikh, C., Kurzius-Spencer, M., Mastergeorge, A. M., & Pettygrove, S. (2018). Characterizing health disparities in the age of autism diagnosis in a study of 8-year-old children. Journal of Autism and Developmental Disorders, 1–12. https://doi.org/10.1007/s10803-018-3500-6. Patten, E., Baranek, G. T., Watson, L. R., & Schultz, B. (2013). Child and family characteristics influencing intervention choices in autism spectrum disorders. Focus on Autism and other Developmental Disabilities, 1–9. https://doi.org/10.1177/1088357612468028. Patton, M. Q. (2015). Qualitative research and evaluation methods: integrating theory and practice (Vol. 4). Thousand Oaks: Sage Publications Inc.. Paul, M. H. (2017). Rural-urban disparities in the diagnosis and treatment of children with autism spectrum disorders (ASD) (doctoral dissertation). The Ohio State University. Retrived from https://etd.ohiolink.edu/!etd.send_file?accession=osu149250986729511&disposition=inline Paynter, J., Davies, M., & Beamish, W. (2018). Recognising the “forgotten man”: fathers’ experiences in caring for a young child with autism spectrum disorder. Journal of Intellectual & Developmental Disability, 43, 112–124. https://doi.org/10.3109/13668250.2017.1293235. Pepperell, T. A., Paynter, J., & Gilmore, L. (2016). Social support and coping, strategies of parents raising a child with autism spectrum disorder. Early Child Development and Care, 1–13. https://doi.org/10.1080/03004430.2016.1261338. Reed, J. (2006). Appreciative inquiry: research for change. Thousand Oaks: Sage Publications, Inc.. Reichow, B., Barton, E. E., Bo,,yd, B. A., & Hume, K. (2012). Early intensive behavioral intervention (EIBI) for young children with autism spectrum disorders (ASD). The Cochrane Library. https://doi.org/10.1002/14651858.CD009260.pub2. Reinke, J. S., & Solheim, C. A. (2015). Online social support experiences of mothers of children with autism spectrum disorder. Journal of Child and Family Studies, 24, 2364–2373. https://doi.org/10.1007/s10826-014-0039-9. Robinson, C. A., York, K., Rothenberg, A., & Bissell, L. J. (2015). Parenting a child with Asperger’s syndrome: a balancing act. Journal of Child and Family Studies, 24, 2310–2321. https://doi.org/10.1007/s10826-014-0034-1. Rogers, S., & Dawson, G. (2010). Early start Denver model for young children with autism: promoting language, learning, and engagement. New York: The Guilford Press Siu, A. L., Force, U. S. P. S. T., Bibbins-Domingo, K., Grossman, D. C., Baumann, L. C., Davidson, K. W., et al. (2016). Screening for autism spectrum disorder in young children: US preventive services task force recommendation statement. Journal of American Medical Association, 315, 691–696. https://doi.org/10.1001/jama.2016.0018. Skinner, A. C., & Slifkin, R. T. (2007). Rural/urban differences in barriers to and burden of care for children with special health care needs. Journal of Rural Health, 23, 150–157. https://doi.org/10.1111/j.1748-0361.2007.00082.x. Thomas, K. C., Ellis, A. R., McLaurin, C., Daniels, J., & Morrissey, J. P. (2007). Access to care for autism-related services. Journal of Autism Developmental Disorders, 37, 1902–1912. https://doi.org/10.1007/s10803-006-0323-7. Williams, L. W., Matson, J. L., Beighley, J. S., & Konst, M. (2015). Ethnic disparities in early autism assessment: a large scale screening study of infants and toddlers. Journal of Developmental and Physical Disabilities, 27, 141–148. https://doi.org/10.1007/s10882-014-9406-0. Zhang, W. Q., & Baranek, G. (2016). The impact of insurance coverage types on access to and utilization of health services for U.S. children with autism. Psychiatric Services, 67, 908–911. https://doi.org/10.1176/appi.ps.201500206.