WHY SHOULD RHEUMATOLOGISTS COLLECT PATIENT SELF-REPORT QUESTIONNAIRES IN ROUTINE RHEUMATOLOGIC CARE?

Adler, 1967, Rheumatoid arthritis in a Jerusalem population, 1. Epidemiology of the disease. Am J Epidemiol, 85, 365, 10.1093/oxfordjournals.aje.a120698 Allebeck, 1981, Increased mortality among persons with rheumatoid arthritis, but where RA does not appear on death certificate: Eleven year follow-up of an epidemiological study, Scand J Rheumatol, 10, 301, 10.3109/03009748109095320 Amor, 1981, Polyarthrites rhumatoïdes évoluant depuis plus de 10 ans (1966–1978): Analyse de l’évolution et des traitements de 100 cas, Ann Med Interne (Paris), 132, 168 Arnett, 1988, The American Rheumatism Association 1987 revised criteria for the classification of rheumatoid arthritis, Arthritis Rheum, 31, 315, 10.1002/art.1780310302 Austin HA, 1986, Therapy of lupus nephritis: Controlled trial of prednisone and cytotoxic drugs, N Engl J Med, 314, 614, 10.1056/NEJM198603063141004 Bacon PA, Moots RJ, Exley E, et al: Assessment of vasculitis—report of the vital workshop. Clin Exp Rheumatol 1995, in press Baum, 1985, Laboratory findings in rheumatoid arthritis, 643 Bellamy, 1991 Bensen, 1990, Remodeling the pyramid: The therapeutic target of RA, J Rheumatol, 17, 987 Boers, 1991, Long-acting drug combinations in rheumatoid arthritis: A formal overview, J Rheumatol, 18, 316 Bombardier, 1986, Auranofin therapy and quality of life in patients with rheumatoid arthritis: Results of a multicenter trial, Am J Med, 81, 565, 10.1016/0002-9343(86)90539-5 Brook, 1977, Radiographic changes in early rheumatoid disease, Ann Rheum Dis, 36, 71, 10.1136/ard.36.1.71 Brooks, 1988, Use of self-report activities of daily living questionnaires in osteoarthritis, Arthritis Care Res, 1, 23, 10.1002/art.1790010107 Bunch, 1981, Prednisone and azathioprine for polymyositis: Long-term followup, Arthritis Rheum, 24, 45, 10.1002/art.1780240107 Bunch, 1980, Azathioprine with prednisone for polymyositis: A controlled, clinical trial, Ann Intern Med, 92, 365, 10.7326/0003-4819-92-3-365 Burch, 1963, A comparison of the prevalence of rheumatoid arthritis (R.A.) and rheumatoid factor (R.F.) in Indian tribes living in Montana mountains and in Arizona desert (abstract), Arthritis Rheum, 6, 765 Cade, 1973, Comparison of azathioprine, prednisone, and heparin alone or combined in treating lupus nephritis, Nephron, 10, 37, 10.1159/000180176 Callahan, 1988, Further analysis of learned helplessness in rheumatoid arthritis using a “Rheumatology Attitudes Index.”, J Rheumatol, 15, 418 Callahan, 1990, The P-VAS/D-ADL ratio: A clue from a self-report questionnaire to distinguish rheumatoid arthritis from noninflammatory diffuse musculoskeletal pain, Arthritis Rheum, 33, 1317, 10.1002/art.1780330903 Callahan, 1989, Self-report questionnaires in five rheumatic diseases: Comparisons of health status constructs and associations with formal education level, Arthritis Care Res, 2, 122, 10.1002/anr.1790020406 Callahan, 1992, Identification of work disability in rheumatoid arthritis: Physical, radiographic and laboratory values do not add explanatory power to demographic and functional variables, J Clin Epidemiol, 45, 127, 10.1016/0895-4356(92)90005-8 Chalmers, 1972, Controlled studies in clinical cancer research, N Engl J Med, 287, 75, 10.1056/NEJM197207132870205 Cobb, 1953, Length of life and cause of death in rheumatoid arthritis, N Engl J Med, 249, 553, 10.1056/NEJM195310012491402 Corrigan, 1974, Benign rheumatoid arthritis of the aged, Br Med J, 1, 444, 10.1136/bmj.1.5905.444 Cosh, 1982, A 20-year follow-up of 100 patients with rheumatoid arthritis (RA), Ann Rheum Dis, 41, 317 Donadio, 1974, Further observations on the treatment of lupus nephritis with prednisone and combined prednisone and azathioprine, Arthritis Rheum, 17, 573, 10.1002/art.1780170511 Emery, 1994, The optimal management of early rheumatoid disease: The key to preventing disability, Br J Rheumatol, 33, 765, 10.1093/rheumatology/33.8.765 Engel, 1977, The need for a new medical model: A challenge for biomedicine, Science, 196, 129, 10.1126/science.847460 Feinstein, 1983, An additional basic science for clinical medicine: II, The limitations of randomized trials. Ann Intern Med, 99, 544 Felson, 1984, Evidence for the superiority of immunosuppressive drugs and prednisone over prednisone alone in lupus nephritis: Results of a pooled analysis, N Engl J Med, 311, 1528, 10.1056/NEJM198412133112402 Felson, 1993, The American College of Rheumatology Preliminary Core Set of Disease Activity Measures for Rheumatoid Arthritis Clinical Trials, Arthritis Rheum, 36, 729, 10.1002/art.1780360601 Felson, 1990, The comparative efficacy and toxicity of second-line drugs in rheumatoid arthritis: Results of two metaanalyses, Arthritis Rheum, 33, 1449, 10.1002/art.1780331001 Friedman, 1984 Fries, 1990, Reevaluating the therapeutic approach to rheumatoid arthritis: The “sawtooth” strategy, J Rheumatol, 17, 12 Fries, 1990, A toxicity index for comparison of side effects among different drugs, Arthritis Rheum, 33, 121, 10.1002/art.1780330117 Fuchs, 1988, Radiographic and joint count findings of the hand in rheumatoid arthritis: Related and unrelated findings, Arthritis Rheum, 31, 44, 10.1002/art.1780310107 Fuchs, 1989, Evidence of significant radiographic damage in rheumatoid arthritis within the first 2 years of disease, J Rheumatol, 16, 585 Fuchs, 1992, Radiographic damage in rheumatoid arthritis: Description by nonlinear models (editorial), J Rheumatol, 19, 1655 Gladman, 1994, Sensitivity to change of 3 systemic lupus erythematosus disease activity indices: International validation, J Rheumatol, 21, 1468 Gordon, 1973, The extra-articular features of rheumatoid arthritis: A systematic analysis of 127 cases, Am J Med, 54, 445, 10.1016/0002-9343(73)90040-5 Gotzsche, 1990, Sensitivity of effect variables in rheumatoid arthritis: A meta-analysis of 130 placebo controlled NSAID trials, J Clin Epidemiol, 43, 1313, 10.1016/0895-4356(90)90097-9 Grantors, 1989, Yersinia antigens in synovial-fluid cells from patients with reactive arthritis, N Engl J Med, 320, 216, 10.1056/NEJM198901263200404 Hahn, 1975, Azathioprine plus prednisone compared with prednisone alone in the treatment of systemic lupus erythematosus: Report of a prospective controlled trial in 24 patients, Ann Intern Med, 83, 597, 10.7326/0003-4819-83-5-597 Hansen, 1987, Combination of methylprednisolone pulse therapy and remission inducing drugs in rheumatoid arthritis, Ann Rheum Dis, 46, 290, 10.1136/ard.46.4.290 Hawley, 1992, Sensitivity to change of the Health Assessment Questionnaire (HAQ) and other clinical and health status measures in rheumatoid arthritis: Results of short term clinical trials and observational studies versus long term observational studies, Arthritis Care Res, 5, 130, 10.1002/art.1790050304 Healey, 1988, The relation of polymyalgia rheumatica to rheumatoid arthritis, J Rheumatol, 15, 750 Hochberg, 1993, Predicting prognosis of patients with rheumatoid arthritis: Is there a crystal ball?, J Rheumatol, 20, 1265 Hochberg, 1992, The American College of Rheumatology 1991 revised criteria for the classification of global functional status in rheumatoid arthritis, Arthritis Rheum, 35, 498, 10.1002/art.1780350502 Hoffmeister, 1972, Methotrexate in rheumatoid arthritis (abstract), Arthritis Rheum, 15, S114 Hoffmeister, 1983, Methotrexate therapy in rheumatoid arthritis: 15 years experience, Am J Med, 75, 69, 10.1016/0002-9343(83)90477-1 Hoffmeister, 1989, The early years, uncontrolled studies, 37 Huskisson, 1987, Combination chemotherapy in rheumatoid arthritis [editorial], Br J Rheumatol, 26, 243, 10.1093/rheumatology/26.4.243 Iannuzzi, 1983, Does drug therapy slow radiographic deterioration in rheumatoid arthritis?, N Engl J Med, 309, 1023, 10.1056/NEJM198310273091704 Ingelfinger, 1972, The randomized clinical trial, N Engl J Med, 287, 100, 10.1056/NEJM197207132870211 Kaplan, 1972, Survival as related to treatment, 360 Kaye, 1990, Problems with the Steinbrocker staging system for radiographic assessment of the rheumatoid hand and wrist, Invest Radiol, 25, 536, 10.1097/00004424-199005000-00011 Keat, 1983, Reiter's syndrome and reactive arthritis in perspective, N Engl J Med, 309, 1606, 10.1056/NEJM198312293092604 Kelley, 1981 Kelley, 1989 Kelley, 1985 Kremer, 1992, Long-term prospective study of the use of methotrexate in the treatment of rheumatoid arthritis: Update after a mean of 90 months, Arthritis Rheum, 35, 138, 10.1002/art.1780350203 Kushner, 1989, Does aggressive therapy of rheumatoid arthritis affect outcome (editorial), J Rheumatol, 16, 1 Lichtenstein, 1991, Rheumatoid arthritis identified in population based cross sectional studies: Low prevalence of rheumatoid factor, J Rheumatol, 18, 989 Madhok, 1988, Cyclosporine A in rheumatoid arthritis: Results at 30 months, Transplant Proc, 20, 248 Masi, 1983, Articular patterns in the early course of rheumatoid arthritis, Am J Med, 75, 16, 10.1016/0002-9343(83)90471-0 McCarty, 1985, 675 McCarty, 1985, 676 McCarty, 1989 McCarty, 1990, Suppress rheumatoid inflammation early and leave the pyramid to the Egyptians, J Rheumatol, 17, 1115 Meenan, 1987, The status of patient status measures, J Rheumatol, 14, 411 Meenan, 1981, The impact of chronic disease: A sociomedical profile of rheumatoid arthritis, Arthritis Rheum, 24, 544, 10.1002/art.1780240315 Mikkelsen, 1969, A four year follow-up of suspected rheumatoid arthritis: The Tecumseh, MI, Community Health Study, Arthritis Rheum, 12, 87, 10.1002/art.1780120205 Mikkelsen, 1967, Estimates of the prevalence of rheumatic diseases in the population of Tecumseh, MI, 1959–60, J Chronic Dis, 20, 351, 10.1016/0021-9681(67)90009-4 Mitchell, 1986, Survival, prognosis, and causes of death in rheumatoid arthritis, Arthritis Rheum, 29, 706, 10.1002/art.1780290602 Mitchell, 1988, The importance of age, education, and comorbidity in the substantial earnings losses of individuals with symmetric polyarthritis, Arthritis Rheum, 31, 348, 10.1002/art.1780310306 Monson, 1976, Mortality among arthritics, J Chronic Dis, 29, 459, 10.1016/0021-9681(76)90086-2 Mutru, 1985, Ten year mortality and causes of death in patients with rheumatoid arthritis, Br Med J, 290, 1811, 10.1136/bmj.290.6484.1797 O'Brien, 1988, Statistical considerations for performing multiple tests in a single experiment, 6. Testing accumulating data repeatedly over time. Mayo Clin Proc, 63, 1245 O'Sullivan, 1972, The prevalence of rheumatoid arthritis: Follow-up evaluation of the effect of criteria on rates in Sudbury, Massachusetts, Ann Intern Med, 76, 573, 10.7326/0003-4819-76-4-573 Paulus, 1990, The use of combinations of disease-modifying antirheumatic agents in rheumatoid arthritis, Arthritis Rheum, 33, 113, 10.1002/art.1780330116 Paulus, 1990, Analysis of improvement in individual rheumatoid arthritis patients treated with disease-modifying antirheumatic drugs, based on the findings in patients treated with placebo, Arthritis Rheum, 33, 477, 10.1002/art.1780330403 Pincus, 1988, Rheumatoid arthritis: Disappointing long-term outcomes despite successful short-term clinical trials (editorial), J Clin Epidemiol, 41, 1037, 10.1016/0895-4356(88)90072-8 Pincus, 1988, Is mortality increased in rheumatoid arthritis?, J Musculoskel Med, 5, 27 Pincus, 1992, The paradox of effective therapies but poor long-term outcomes in rheumatoid arthritis, Semin Arthritis Rheum, 21, 2, 10.1016/0049-0172(92)90008-2 Pincus, 1991, Reliability of grip strength, walking time and button test performed according to a standard protocol, J Rheumatol, 18, 997 Pincus, 1994, Prediction of long-term mortality in patients with rheumatoid arthritis according to simple questionnaire and joint count measures, Ann Intern Med, 120, 26, 10.7326/0003-4819-120-1-199401010-00005 Pincus, 1986, Taking mortality in rheumatoid arthritis seriously: Predictive markers, socioeconomic status and comorbidity, J Rheumatol, 13, 841 Pincus, 1989, Reassessment of twelve traditional paradigms concerning the diagnosis, prevalence, morbidity and mortality of rheumatoid arthritis, Scand J Rheumatol (suppl), 79, 67, 10.3109/03009748909092614 Pincus, 1990, Remodeling the pyramid or remodeling the paradigms concerning rheumatoid arthritis: Lessons from Hodgkin's Disease and coronary artery disease, J Rheumatol, 17, 1582 Pincus, 1992, Early mortality in RA predicted by poor clinical status, Bull Rheum Dis, 41, 1 Pincus, 1992, Rheumatology Function Tests: Grip strength, walking time, button test and questionnaires document and predict long-term morbidity and mortality in rheumatoid arthritis, J Rheumatol, 19, 1051 Pincus, 1993, What is the natural history of rheumatoid arthritis?, Rheum Dis Clin North Am, 19, 123, 10.1016/S0889-857X(21)00171-X Pincus, 1989, Self-report questionnaire scores in rheumatoid arthritis compared with traditional physical, radiographic, and laboratory measures, Ann Intern Med, 110, 259, 10.7326/0003-4819-110-4-259 Pincus, 1984, Severe functional declines, work disability, and increased mortality in seventy-five rheumatoid arthritis patients studied over nine years, Arthritis Rheum, 27, 864, 10.1002/art.1780270805 Pincus, 1987, Questionnaire, walking time and button test measures of functional capacity as predictive markers for mortality in rheumatoid arthritis, J Rheumatol, 14, 240 Pincus, 1992, Long-term drug therapy for rheumatoid arthritis in seven rheumatology private practices: II, Second-line drugs and prednisone. J Rheumatol, 19, 1885 Pincus, 1992, Long-term drug therapy for rheumatoid arthritis in seven rheumatology private practices: I, Nonsteroidal anti-inflammatory drugs. J Rheumatol, 19, 1874 Pincus, 1983, Assessment of patient satisfaction in activities of daily living using a modified Stanford health assessment questionnaire, Arthritis Rheum, 26, 1346, 10.1002/art.1780261107 Pincus, 1991, Treatment of rheumatoid arthritis: Challenges to traditional paradigms, Ann Intern Med, 115, 825, 10.7326/0003-4819-115-10-825 Pincus, 1994, Updating a reassessment of traditional paradigms concerning rheumatoid arthritis, 1 Proudfit, 1978, Natural history of obstructive coronary artery disease: Ten-year study of 601 nonsurgical cases, Prog Cardiovasc Dis, 21, 53, 10.1016/S0033-0620(78)80004-8 Ragan, 1962, The clinical features of rheumatoid arthritis: Prognostic indices, JAMA, 181, 663, 10.1001/jama.1962.03050340001001 Rasker, 1981, Cause and age at death in a prospective study of 100 patients with rheumatoid arthritis, Ann Rheum Dis, 40, 115, 10.1136/ard.40.2.115 Reilly, 1990, Mortality and survival in rheumatoid arthritis: A 25 year prospective study of 100 patients, Ann Rheum Dis, 49, 363, 10.1136/ard.49.6.363 Richter, 1980, Analysis of treatment termination with gold and antimalarial compounds in rheumatoid arthritis, J Rheumatol, 7, 153 Ropes, 1958, 1958 revision of diagnostic criteria for rheumatoid arthritis, Bull Rheum Dis, 9, 175 Scherbel, 1989, Methotrexate: Past and future, 3 Schwarzer, 1990, Combination therapy in rheumatoid arthritis, Baillieres Clin Rheum, 4, 663, 10.1016/S0950-3579(05)80012-3 Scott, 1985, Methods of x-ray assessment in rheumatoid arthritis: A re-evaluation, Br J Rheumatol, 24, 31, 10.1093/rheumatology/24.1.31 Scott, 1984, Progression of radiological changes in rheumatoid arthritis, Ann Rheum Dis, 43, 8, 10.1136/ard.43.1.8 Scott, 1987, Long-term outcome of treating rheumatoid arthritis: Results after 20 years, Lancet, 1, 1108, 10.1016/S0140-6736(87)91672-2 Sergent, 1994, It's the patient, stupid, Arthritis Rheum, 37, 449, 10.1002/art.1780370402 Sharp, 1983, Radiographic evaluation of the course of articular disease, Clin Rheum Dis, 9, 541, 10.1016/S0307-742X(21)00643-3 Sharp, 1977, Comparison of two dosage schedules of gold salts in the treatment of rheumatoid arthritis: Relationship of serum gold levels to therapeutic response, Arthritis Rheum, 20, 1179, 10.1002/art.1780200604 Sherrer, 1986, The development of disability in rheumatoid arthritis, Arthritis Rheum, 29, 494, 10.1002/art.1780290406 Situnayake, 1987, Long term treatment of rheumatoid arthritis with sulphasalazine, gold, or penicillamine: A comparison using life-table methods, Ann Rheum Dis, 46, 177, 10.1136/ard.46.3.177 Steinsson, 1982, Low dose methotrexate in rheumatoid arthritis, J Rheumatol, 9, 860 Sztejnbok, 1971, Azathioprine in the treatment of systemic lupus erythematosus, Arthritis Rheum, 14, 639, 10.1002/art.1780140511 Thompson, 1985, Practical results of treatment with disease-modifying antirheumatoid drugs, Br J Rheumatol, 24, 167, 10.1093/rheumatology/24.2.167 Thould, 1966, Assessment of radiological changes in the hands and feet in rheumatoid arthritis: Their correlation with prognosis, Ann Rheum Dis, 25, 220, 10.1136/ard.25.3.220 Tugwell, 1993, OMERACT Committee, Proceedings of the OMERACT Conferences on outcome measures in rheumatoid arthritis clinical trials, Maastrict, Netherlands. J Rheumatol, 20, 527 Tugwell, 1994, Long-acting drug combinations in rheumatoid arthritis: Updated overview, 357 Valkenberg, 1966, Rheumatoid factors in a rural population, Ann Rheum Dis, 25, 497, 10.1136/ard.25.6.497 van Riel, 1994, Provisional guidelines for measuring disease activity in clinical trials on rheumatoid arthritis (editorial), Br J Rheumatol, 31, 793, 10.1093/rheumatology/31.12.793 van Zeben, 1993, Factors predicting outcome of rheumatoid arthritis: Results of a followup study, J Rheumatol, 20, 1288 Vandenbroucke, 1984, Survival and cause of death in rheumatoid arthritis: A 25-year prospective followup, J Rheumatol, 11, 158 Vanderbilt Medical Center: Vanderbilt Health Plan (VHP) Provider Guidelines. 1994 Vollertsen, 1986, Rheumatoid vasculitis: Survival and associated risk factors, Medicine (Baltimore), 65, 365, 10.1097/00005792-198611000-00002 Weinblatt, 1990, Low-dose methotrexate compared with auranofin in adult rheumatoid arthritis: A thirty-six-week, double-blind trial, Arthritis Rheum, 33, 330, 10.1002/art.1780330305 Weinblatt, 1992, Long-term prospective study of methotrexate in the treatment of rheumatoid arthritis: 84-month update, Arthritis Rheum, 35, 129, 10.1002/art.1780350202 Wilke, 1980, Methotrexate in the treatment of rheumatoid arthritis, Cleve Clin Q, 47, 305, 10.3949/ccjm.47.4.305 Williams, 1992, Comparison of auranofin, methotrexate, and the combination of both in the treatment of rheumatoid arthritis: A controlled clinical trial, Arthritis Rheum, 35, 259, 10.1002/art.1780350304 Willkens, 1982, Methotrexate: A perspective of its use in the treatment of rheumatic diseases, J Lab Clin Med, 100, 314 Wilske, 1993, Inverting the therapeutic pyramid: Observations and recommendations on new directions in rheumatoid arthritis based on the author's experience, Semin Arthritis Rheum (suppl 1), 23, 11, 10.1016/S0049-0172(10)80003-4 Wilske, 1989, Remodeling the pyramid—a concept whose time has come, J Rheumatol, 16, 565 Wolfe, 1991, The effect of age on methotrexate efficacy and toxicity, J Rheumatol, 18, 973 Wolfe, 1991, The assessment and prediction of functional disability in rheumatoid arthritis, J Rheumatol, 18, 1298 Wolfe, 1991, Analysis of methotrexate treatment effect in a longitudinal observational study: Utility of cluster analysis, J Rheumatol, 18, 672 Wolfe, 1985, Remission in rheumatoid arthritis, J Rheumatol, 12, 245 Wolfe, 1990, Termination of slow acting antirheumatic therapy in rheumatoid arthritis: A 14-year prospective evaluation of 1017 consecutive starts, J Rheumatol, 17, 994 Wolfe, 1991, Standard self-report questionnaires in routine clinical and research practice—an opportunity for patients and rheumatologists, J Rheumatol, 18, 643 Wolfe, 1993, The prognosis of rheumatoid arthritis and undifferentiated polyarthritis in the clinic: A study of 1141 patients, J Rheumatol, 20, 2005 Yelin, 1980, Work disability in rheumatoid arthritis: Effects of disease, social, and work factors, Ann Intern Med, 93, 551, 10.7326/0003-4819-93-4-551