Using mixed‐methods research to study the quality of life of coeliac women

Journal of Clinical Nursing - Tập 26 Số 7-8 - Trang 1119-1130 - 2017
Julián Rodríguez‐Almagro1, A.M. Hernández2, M. Carmen Solano Ruiz3, José Siles González3
1Emergency Department, Hospital General Universitario de Ciudad Real, Ciudad Real, Spain
2Nurse Midwife Teaching Unit Hospital General Mancha‐Centro Alcázar de San Juan Ciudad Real Spain
3Nursing Department, School of Health Sciences, Universidad de Alicante, Alicante, Spain

Tóm tắt

Aims and objectivesTo research the quality of life of Spanish women with coeliac disease.BackgroundWomen with coeliac disease express lower quality of life than men with coeliac disease.DesignExplanatory sequential approach using mixed methods and with a gender perspective.MethodsThe research was carried out between May and July 2015. In its quantitative stage, it aimed to determine the health‐related quality of life in a representative sample (n = 1097) of Spanish adult women with coeliac disease using a specific questionnaire named Coeliac Disease‐Quality of Life. In its qualitative phase, it aimed to describe the life experiences of a woman with coeliac disease in a qualitative manner by means of interviews (n = 19) with a semistructured script. Quantitative data were analysed using spss version 20 and presented in descriptive statistics. Qualitative data were analysed using the directed content analysis.ResultsThe quantitative process gave us the values on the four aspects studied: dysphoria, disease limitations, health problems and inadequate treatment. These aspects allowed us to create a qualitative process, based on which we generated an interview, from which four larger categories emerged. These categories were feelings at diagnosis, limitations in day‐to‐day life, social perceptions of the disease and personal meanings of coeliac disease. Thus, both phases of our project are totally connected. There was a high level of congruence between quantitative scores and narratives.ConclusionThis study shows us the strong points of mixed‐methods strategy in health sciences. The mixed‐methods strategy gave us a wider view of the experience of women living with coeliac disease. In our case, a strength and not a limitation is having performed the quality of life study in women with coeliac disease using a mixed methodology, approaching the experience of being a woman with coeliac disease in Spain in two different but complementary ways. The quantitative and qualitative data allowed us to interpret the experiences of our participants.

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Tài liệu tham khảo

Anon(2014)Instituto Nacional de Estadistica.Madrid. Available at:www.ine.es(accessed 1 May 2015).

10.1097/TIN.0b013e3182625b05

10.4135/9781848607941

Casellas F, 2013, Transcultural adaptation and validation of the Celiac Disease Quality of Life (CD‐QOL) Survey, a specific questionnaire to measure quality of life in patients with celiac disease, Spanish Journal of Digestive Diseases: Official Organ of the Spanish Society of Digestive Pathology, 105, 585

Casellas F, 2015, Benefit on health‐related quality of life of adherence to gluten‐free diet in adult patients with celiac disease, Revista espanola de enfermedades digestivas: organo oficial de la Sociedad Espanola de Patologia Digestiva, 107, 196

10.3109/07853890.2010.514285

Cornejo Cancino M, 2011, Methodological rigor and quality: a challenge to qualitative social research, Psicoperspectivas. Individual and Society, 10

Creswell J, 2007, Designing and Conducting Mixed Methods Research

10.1037/e566732013-001

10.1111/j.1365-2036.2009.04220.x

10.1163/156916297X00103

Giorgi A, 2009, The Descriptive Phenomenological Method in Psychology: A Modified Husserlian Approach

10.1080/003655202753387338

10.1046/j.1471-6712.2003.00228.x

10.1111/j.1365-2702.2012.04279.x

10.1111/j.1471-6712.2004.00287.x

10.1177/1558689806298224

10.1016/j.jada.2003.08.027

10.1016/0147‐1767(85)90062‐8

10.1136/gutjnl-2011-301346

10.1016/S0140-6736(96)70237-4

10.1111/j.1365-2036.2010.04543.x

10.4135/9781849203241.n1

10.3109/07853890.2010.505931

ÖhlenJ(2010)Review: Janice M. Morse & Linda Niehaus (2009). Mixed Method Design: Principles and Procedures. Forum Qualitative Sozialforschung / Forum: Qualitative Social Research

Vol 12 No 1 (2011): The KWALON Experiment: Discussions on Qualitative Data Analysis Software by Developers and Users. Available at:http://www.qualitative-research.net/index.php/fqs/article/view/1523/3089

Polit D, 2000, Investigation scientific in health sciences

Rea L, 2012, Designing and Conducting Survey Research: A Comprehensive Guide

10.1111/j.1365-2702.2011.03953.x

10.1111/jocn.13123

Rodriguez Almagro J, 2016, Health‐related quality of life and determinant factors in celiac disease. A population‐based analysis of adult patients in Spain, Revista Espanola de Enfermedades Digestivas : Organo Oficial de La Sociedad Espanola de Patologia Digestiva, 108, 181

10.1097/SGA.0b013e3181a85e7b

10.1053/j.gastro.2009.09.008

10.1111/j.1365-277X.2005.00591.x

10.1111/j.1471-6712.2008.00628.x

10.1177/2345678906292430

10.1016/j.gaceta.2008.12.001

10.1136/gut.52.7.960

WGO, 2013, Enfermedad Celiaca

10.1111/j.1365-277X.2006.00659.x