Transition in Patients with Congenital Heart Disease in Germany: Results of a Nationwide Patient Survey

Schwedler, 2011, Frequency and spectrum of congenital heart defects among live births in Germany. A study of the competence network for congenital heart defects, Clin Res Cardiol, 100, 1111, 10.1007/s00392-011-0355-7

Diller, 2011, Congenital heart defects in adulthood, Dtsch Arztebl Int, 108, 452, 10.3238/arztebl.2011.0452

Moons, 2010, Temporal trends in survival to adulthood among patients born with congenital heart disease from 1970 to 1992 in Belgium, Circulation, 122, 2264, 10.1161/CIRCULATIONAHA.110.946343

Marelli, 2007, Congenital heart disease in the general population: changing prevalence and age distribution, Circulation, 115, 163, 10.1161/CIRCULATIONAHA.106.627224

Kovacs, 2011, The whole adult congenital heart disease patient, Prog Cardiovasc Dis, 53, 247, 10.1016/j.pcad.2010.11.001

Sable, 2011, Best practices in managing transition to adulthood for adolescents with congenital heart disease: the transition process and medical and psychosocial issues: a scientific statement from the American Heart Association, Circulation, 123, 1454, 10.1161/CIR.0b013e3182107c56

Baumgartner, 2014, Recommendations for organization of care for adults with congenital heart disease and for training in the subspecialty of ’grown-up congenital heart disease’ in Europe: a position paper of the working group on grown-up congenital heart disease of the European Society of Cardiology, Eur Heart J, 35, 686, 10.1093/eurheartj/eht572

Cross, 2006, Transitional medicine: will emergency medicine physicians be ready for the growing population of adults with congenital heart disease?, Pediatr Emerg Care, 22, 775, 10.1097/01.pec.0000245178.13418.4f

Lopez, 2015, Understanding age-based transition needs: perspectives from adolescents and adults with congenital heart disease, Congenit Heart Dis, 10, 561, 10.1111/chd.12283

Blum, 1993, Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the society for adolescent medicine, J Adolesc Health, 14, 570, 10.1016/1054-139X(93)90143-D

Canobbio, 2001, Health care issues facing adolescents with congenital heart disease, J Pediatr Nurs, 16, 363, 10.1053/jpdn.2001.26570

Hudsmith, 2007, Transition of care from paediatric to adult services in cardiology, Arch Dis Child, 92, 927, 10.1136/adc.2006.103812

Baumgartner, 2010, ESC Guidelines for the management of grown-up congenital heart disease (new version 2010), Eur Heart J, 31, 2915, 10.1093/eurheartj/ehq249

Warnes, 2001, Task force 1: the changing profile of congenital heart disease in adult life, J Am Coll Cardiol, 37, 1170, 10.1016/S0735-1097(01)01272-4

Moons, 2010, Structure and activities of adult congenital heart disease programmes in Europe, Eur Heart J, 31, 1305, 10.1093/eurheartj/ehp551

Webb, 2001, Care of the adult with congenital heart disease: introduction, J Am Coll Cardiol, 37, 1166, 10.1016/S0735-1097(01)01280-3

Deanfield, 2003, Management of grown up congenital heart disease, Eur Heart J, 24, 1035, 10.1016/S0195-668X(03)00131-3

Kaemmerer, 2011, Recommendations for improving the quality of the interdisciplinary medical care of grown-ups with congenital heart disease (GUCH), Int J Cardiol, 150, 59, 10.1016/j.ijcard.2010.02.031

Hess, 2011, Recommendations for adult and paediatric cardiologists on obtaining additional qualification in “adults with congenital heart disease” (ACHD), Int J Cardiol, 149, 186, 10.1016/j.ijcard.2010.01.007

Warnes, 2008, ACC/AHA 2008 guidelines for the management of adults with congenital heart disease: a report of the American College of Cardiology/American Heart Association task force on practice guidelines (writing committee to develop guidelines on the management of adults with congenital heart disease), Circulation, 118, e714, 10.1161/CIRCULATIONAHA.108.190690

Silversides, 2010, Canadian Cardiovascular Society 2009 consensus conference on the management of adults with congenital heart disease: executive summary, Can J Cardiol, 26, 143, 10.1016/S0828-282X(10)70355-X

Schmaltz, 2008, Medical guideline for the treatment of adults with congenital heart abnormalities of the German-Austrian-Swiss Cardiology Specialty Society, Clin Res Cardiol, 97, 194, 10.1007/s00392-008-0639-8

Kaemmerer, 2006, Empfehlungen zur Qualitatsverbesserung der interdisziplinaren Versorgung von Erwachsenen mit angeborenen Herzfehlern (EMAH), Clin Res Cardiol, 95, 76, 10.1007/s00392-006-2003-1

Hess, 2007, Empfehlungen für Erwachsenen- und Kinderkardiologen zum Erwerb der Zusatz-Qualifikation “Erwachsene mit angeborenen Herzfehlern” (EMAH), Clin Res Cardiol Suppl, 2, 19, 10.1007/s11789-006-0026-9

(Muster-)Weiterbildungsordnung 2003 in der Fassung vom2013

JGG – nichtamtliches Inhaltsverzeichnis2016

SGB 8 – Sozialgesetzbuch (SGB) – Achtes Buch (VIII) – Kinder – und Jugendhilfe – (Artikel 1 des Gesetzes v. 26. Juni 1990, BGBl. I S. 1163)2016

Helm, 2015, Representativeness of the German national register for congenital heart defects: a clinically oriented analysis, Cardiol Young, 26, 921, 10.1017/S1047951115001547

2015, EFS Survey

Bonferroni, 1936, Teoria statistica delle classi e calcolo delle probabilita

2013, IBM SPSS Statistics for Windows

Wacker, 2005, Outcome of operated and unoperated adults with congenital cardiac disease lost to follow-up for more than five years, Am J Cardiol, 95, 776, 10.1016/j.amjcard.2004.11.036

Mackie, 2009, Children and adults with congenital heart disease lost to follow-up: who and when?, Circulation, 120, 302, 10.1161/CIRCULATIONAHA.108.839464