Transition from hospital to home following pediatric solid organ transplant: Qualitative findings of parent experience

Pediatric Transplantation - Tập 18 Số 5 - Trang 527-537 - 2014
Stacee M. Lerret1,2,3,4, Marianne Weiss5, Gail Stendahl1, Shelley Chapman1, Katie Neighbors6, Katie Amsden6, Joan Lokar6, Ashley Voit6, Jerome Menendez7, Estella M. Alonso6
1Children’s Hospital of Wisconsin, Milwaukee, WI, USA
2Medical College of Wisconsin, Children's Hospital of Wisconsin, Milwaukee, WI, USA.
3Stacee M. Lerret, PhD, RN, CPNP-AC/PC, Medical College of Wisconsin, Division of Pediatric Gastroenterology, Hepatology and Nutrition, Children's Hospital of Wisconsin, 9000 West Wisconsin Avenue, MS B610, Milwaukee, WI 53226, USA
4Tel.: +1 414 266 3944
5Marquette University, Milwaukee, WI, USA
6Ann & Robert H. Lurie Children's Hospital of Chicago Chicago IL USA
7Levine Children's Hospital, Charlotte, NC, USA

Tóm tắt

AbstractTransplant providers are challenged to determine appropriate interventions for patients and families due to limited published research regarding the context of the post‐discharge experience from the perspective of parents of transplanted children. The purpose of this study is to describe the parent perspective of the transition from hospital to home following their child's solid organ transplant. Within a mixed‐methods design, 37 parents of pediatric heart, kidney, and liver transplant recipients from three pediatric hospitals responded to qualitative interview questions on the day of hospital discharge and three wk following hospital discharge. Insight to the discharge preparation process revealed necessary education components. Post‐discharge themes were identified for coping, knowledge, and adherence. The parents' responses provide awareness as to specific stressors and concerns parents are faced with when their child is discharged from the hospital after solid organ transplant and opportunities for ways the transplant team can provide support.

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Pediatric Transplantation

Tập 18 Số 5

527-537

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