Transition from hospital to home: Parents’ perception of their preparation and readiness for discharge with their preterm infant

Journal of Clinical Nursing - Tập 27 Số 1-2 - Trang 269-277 - 2018
Laurene Aydon1,2,3, Yvonne Hauck2,4, Jamee Murdoch2,3, Daphne Siu3, Mary Sharp1,3
1Centre for Research and Neonatal Education School of Child and Paediatric Health University of Western Australia Perth WA Australia
2Department Nursing and Midwifery Education and Research Women and Newborn Health Service Subiaco WA Australia
3Neonatal Clinical Care Unit King Edward Memorial Hospital and Princess Margaret Hospital Women and Newborn Health Service Subiaco WA Australia
4School of Nursing, Midwifery and Paramedicine, Curtin University, Perth, WA, Australia

Tóm tắt

Aims and objectivesTo explore the experiences of parents with babies born between 28–32 weeks’ gestation during transition through the neonatal intensive care unit and discharge to home.BackgroundFollowing birth of a preterm baby, parents undergo a momentous journey through the neonatal intensive care unit prior to their arrival home. The complexity of the journey varies on the degree of prematurity and problems faced by each baby. The neonatal intensive care unit environment has many stressors and facilitating education to assist parents to feel ready for discharge can be challenging for all health professionals.DesignQualitative descriptive design.MethodsThe project included two phases, pre‐ and postdischarge, to capture the experiences of 20 couples (40 parents), whilst their baby was a neonatal intensive care unit inpatient and then after discharge. Face‐to‐face interviews, an online survey and telephone interviews were employed to gather parent's experiences. Constant comparative analysis was used to identify commonalities between experiences. Recruitment and data collection occurred from October 2014–February 2015.Results/FindingsOverlapping themes from both phases revealed three overarching concepts: effective parent staff communication; feeling informed and involved; and being prepared to go home.ConclusionOur findings can be used to develop strategies to improve the neonatal intensive care unit stay and discharge experience for parents. Proposed strategies would be to improve information transfer, promote parental contact with the multidisciplinary team, encourage input from fathers to identify their needs and facilitate parental involvement according to individual needs within families.Relevance to clinical practiceProviding information to parents during their time in hospital, in a consistent and timely manner is an essential component of their preparation when transitioning to home.

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Tài liệu tham khảo

10.1016/j.jnn.2015.07.006

10.1542/peds.2007-1005

Blomqvist Y., 2011, Kangaroo mother care helps fathers of preterm infants gain confidence in the paternal role, Journal of Advanced Nursing, 68, 1988, 10.1111/j.1365-2648.2011.05886.x

Burger S., 2015, Parents’ experiences of neonatal care: Findings from neonatal survey 2014, Patient Experience Journal, 7, 45

Busse M., 2013, Parents’ responses to stress in the neonatal intensive care unit, Critical Care Nurse, 33, 10.4037/ccn2013715

10.1016/j.adnc.2004.01.005

10.1038/jp.2014.75

10.1097/JPN.0b013e31827fb415

Feeley N., 2012, Fathers’ perceptions of the barriers and facilitators to their involvement with their newborn hospitalised in the neonatal intensive care unit, Journal of Clinical Nursing, 22, 521

Gardner G., 2002, Parent support programmes in neonatal intensive care: Researching the issues, Neonatal, Paediatric and Child Health Nursing, 5, 20

10.1038/jp.2012.32

Goldstein L., 2012, Family support and education, Physical and Occupational Therapy in Paediatrics, 33, 139, 10.3109/01942638.2012.754393

10.1053/j.semperi.2010.10.004

10.1097/00005237-200607000-00012

10.1093/pch/19.1.31

10.1038/sj.jp.7211409

10.1891/0730-0832.31.4.207

10.1097/ANC.0b013e3181e946f0

Magnussen D., 1982, Handbook of stress, theoretical clinical aspects, 231

10.1111/apa.12058

10.1542/peds.2005-2580

National Health and Medical Research Council (NHMRC)(2007).National statement on ethical conduct in human research. Retrieved fromhttp://www.nhmrc.gov.auApril 2014.

Polit D., 2010, Essentials of nursing research: Appraising evidence for nursing practice

10.1111/j.1751-486X.2011.01676.x

Schneider Z., 2016, Nursing and midwifery research: Methods and appraisal for evidence‐based practice

10.1111/j.1552-6909.2012.01393.x

10.1038/jp.2009.58

10.1016/j.jnn.2015.04.006

Streubert J., 2011, Qualitative research in nursing: Advancing the humanistic imperative

Tracy N., 2000, Parents of premature infants: Their emotional world

Tuner M., 2013, The emotional experiences and supports for parents with babies in a neonatal nursery, Advances in Neonatal Care, 13, 438, 10.1097/ANC.0000000000000030

10.1111/nicc.12062