Chẩn đoán sớm bệnh suy giảm trí tuệ trong thực hành của bác sĩ gia đình

Bijblijven - Tập 25 - Trang 13-24 - 2009
J. De Lepeleire, H. Gorissen, M. Vermandere, B. Schoenmakers

Tóm tắt

Sự hoài nghi về lợi ích và sự cần thiết của việc phát hiện sớm bệnh suy giảm trí tuệ là không chính đáng. Không chỉ bệnh nhân, mà còn đặc biệt là người chăm sóc cũng rất được hưởng lợi từ chẩn đoán kịp thời. Bác sĩ gia đình không cần phải sử dụng đến sàng lọc hay chẩn đoán sớm, nhưng nên cảnh giác trước những tín hiệu nghi ngờ đầu tiên. Ngoài ba giai đoạn trong quy trình chẩn đoán – bao gồm sự lựa chọn, chẩn đoán phân biệt và chẩn đoán chăm sóc – thì chẩn đoán tình hình của người chăm sóc cũng là một giai đoạn quan trọng thứ tư. Liên quan đến điều đó, hiện tại bác sĩ gia đình thiếu rõ ràng về hướng dẫn để tiếp cận tình huống chăm sóc xung quanh một bệnh nhân mắc bệnh suy giảm trí tuệ một cách chấp nhận được. Thiếu những hướng dẫn này, họ cảm thấy không phải là người cung cấp hỗ trợ phù hợp nhất cho người chăm sóc, mặc dù người chăm sóc xem họ như vậy. Trong mọi trường hợp, điều quan trọng là phải tư vấn cho người chăm sóc một cách riêng biệt, tức là không có sự hiện diện của bệnh nhân mắc suy giảm trí tuệ.

Từ khóa


Tài liệu tham khảo

Wind A. Mogelijkheden om dementie in een vroeg stadium te herkennen. Huisarts Wet. 1997;40:589-92. Downs M. The role of general practice and the primary care team in dementia diagnosis and management. Int J Geriatr Psychiatry. 1996;11:937-42. Eccles M, Clarke J., Livingstone M. North of England evidence based guidelines development project: Guideline for the primary care management of dementia. BMJ. 1998;317:802-8. National Institute for Clinical Excellence. Dementia: The NICE-SCIE guideline on supporting people with dementia and their carers in health and social care. London: The British Psychological Society and the Royal College of Psychiatrists, 2006. Scottish Intercollegiate Guideline Network. Management of patients with dementia: A national clinical guideline. Edinburgh: SIGN; 2006. Nederlandse Vereniging voor Klinische Geriatrie/Kwaliteitsinstituut voor de Gezondheidszorg CBO. Richtlijn Diagnostiek en medicamenteuze behandeling van dementie. Alphen a/d Rijn: Van Zuiden Communications; 2005. De Lepeleire J. De diagnose van dementie. Het aandeel van de huisarts. Leuven: Katholieke Universiteit Leuven; 2000. De Lepeleire J, Heyrman J. Diagnosis and management of dementia in primary care at an early stage: The need for a new concept and an adapted procedure. Theor Med. 1999;20:215-28. Petersen R, Stevens J, Ganglui M, Tangolos E, Cummings J, DeKosky S. Practice parameter: Early detection of dementia: Mild Cognitive impairment (an evidence-based review). Neurology. 2001;56:1133-42. Cooper B., Bickel H., Schaufele M. The ability of general practitioners to detect dementia and cognitive impairment in their elderly patients: A study in Mannheim. Int J Geriatr Psychiatry. 1992;7:591-8. Petit H, Bakchine S, Duboiw B, Laurent B, Montagne B, Touchon J, et al. Convergences d’un groupe pluridisciplinaire d’experts français sur les modalités du diagnostic et du traitement médicamenteux de la maladie d’alzheimer au stade démentiel. Rev Neurol. 1998;154(5):432-8. Marin La Meslée R. Vérité au-delà du Quiévrain? La Revue du Praticien. 1999;13:690-1. De Lepeleire J. Drempels in het zorgpad van de gerontopsychiatrische patiënt. Tijdschr Geneeskd. 2008;64:181-5. Vernooij-Dassen M, De Lepeleire J, Iliffe S, Moniz-Cook E, Franco M, Zanetti O, et al. Obstacles and facilitators in diagnosing and managing early dementia in EU member states. Report EU Quality of Life and Management of Resources Programme, DIADEM project; 2003. Proposal number QLRT/2001/00296. Iliffe S, De Lepeleire J, Van Hout H, Kenny G, Lewis A, Vernooij-Dassen M. Understanding obstacles to the recognition of and response to dementia in different European countries: A modified focus group approach using multinational, multi-disciplinary expert groups. Aging Ment Health. 2005;9(1):1-6. De Lepeleire J, Buntinx F, Aertgeerts B. Disclosing the diagnosis of dementia: The performance of Flemish general practitioners. Int Psychogeriatr 2004;16:421-8. De Lepeleire J, Aertgeerts B, Umbach I, Pattyn P, Tamsin F, Nestor L, et al. The diagnostic value of IADL evaluation in the detection of dementia in general practice. Aging Ment Health. 2004;8:52-7. Vernooij-Dassen MJ, Moniz-Cook ED, Woods RT, De Lepeleire J, Leuschner A, Zanetti O, et al. Factors affecting timely recognition and diagnosis of dementia across Europe: from awareness to stigma. Int J Geriatr Psychiatry. 2005;20(4):377-86. De Lepeleire J, Wind AW, Iliffe S, Moniz-Cook ED, Wilcock J, Gonzalez VM, et al. The primary care diagnosis of dementia in Europe: An analysis using multidisciplinary, multinational expert groups. Aging Ment Health. 2008;12(5):568-76. De Lepeleire J, Heyrman J, Baro F, Buntinx F. A combination of tests for the diagnosis of dementia has a significant diagnostic value. J Clin Epidemiol. 2005;58(3):217-25. Gorissen H. Diagnostiek van dementie in de huisartsenpraktijk: Van signaal tot ziektediagnose. Katholieke Universiteit Leuven; 2009. Beck C, Cody M, Souder E, Zhang M, Small G. Dementia diagnostic guidelines: Methodologies, results, and implementation costs. J Am Geriatr Soc. 2000;48:1195-203. De Lepeleire J, Heyrman J. Diagnose van dementie door huisartsen: Toelichting bij een consensus, deel I. Tijdschr Geneeskd. 1997;53(21):1461-7. De Lepeleire J, Heyrman J. Diagnose van dementie door huisartsen: Toelichting bij een consensus, deel II. Tijdschr Geneeskd. 1997;53(22):1524-30. De Lepeleire J, Heyrman J, Vanwelde C, Degryse J. Diagnostic de démence en médecine générale: Mise au point d’un consensus. La Revue du Praticien. 1999;13(446):119-23. Crevel H van, Heeren TJ. Herziening consensus ‘Diagnostiek bij het dementiesyndroom’. Ned Tijdschr Geneeskd. 1998;142(25):1459-63. Kwaliteitsinstituut voor de Gezondheidszorg CBO. Consensus richtlijn dementie. Utrecht: CBO; 1997. Knopman D, DeKosky S, Cummings J, Chui H, Corey-Bloom J, Relkin N, et al. Practice parameter: Diagnosis of dementia (an evidence-based review). Neurology. 2001;56:1143-53. Gezondheidsraad. Dementie. Den Haag: Gezondheidsraad; 2002. Ministerie Vlaamse Gemeenschap. Naar een vernieuwd Vlaams ouderenbeleid. Brussel: Ministerie Vlaamse Gemeenschap; 2001. Wind A, Gussekloo J, Vernooij-Dassen M, Bouma M, Boomsma L, Boukes F. NHG-Standaard Dementie (tweede herziening). Huisarts Wet. 2003;46:754-68. Singapore Ministry of Health. Dementia. Singapore: Singapore Ministry of Health; 2007. Agence Nationale d’Accréditation et d’Évaluation en Santé. Recommendations pratiques pour le diagnostic de la maladie d’Alzheimer. Paris: ANAES; 2000. New Zeeland Guidelines Group. Guidelines for the support and management of people with dementia. Wellington: Ministry of Health; 1997. De Lepeleire J, Ylieff M, Stessens J, Buntinx F, Paquay L. The validity of the Frail instrument in general practice. Archves of Public Health. 2004;62:185-96. Shulman KI. Clock-drawing: Is it the ideal cognitive screening test? Int J Geriatr Psychiatry. 2000;15(6):548-61. Burg M van der, Bouwen A, Stessens J, Ylieff M, Fontaine O, De Lepeleire J, et al. Scoring Clock test for dementia screening: A comparison of two scoring methods. Int J Geriatr Psychiatry. 2004;19:685-9. De Lepeleire J, Heyrman J, Baro F, Buntinx F. A combination of tests for the diagnosis of dementia had a significant diagnostic value. J Clin Epidemiol. 2005;58(3):217-25. Moniz-Cook E, Vernooij-Dassen M, Woods R, Verhey F, Chattat R, Vugt M de, et al. A European consensus on outcome measures for psychosocial intervention research in dementia care. Aging Ment Health. 2008;12(1):14-29. Wijeratne C. Review: pathways to morbidity in carers of dementia sufferers. Int Psychogeriatr. 1997;9(1):69-79. Pinquart M, Sorensen S. Associations of caregiver stressors and uplifts with subjective well-being and depressive mood: A meta-analytic comparison. Aging Ment Health. 2004;8(5):438-49. Thompson C, Briggs M. Support for carers of people with Alzheimer’s type dementia. Cochrane Database Syst Rev. 2000;(2):CD000454. Schoenmakers B, Buntinx F, Devroey D, Van Casteren V, DeLepeleire J. The process of definitive institutionalization of community dwelling demented vs non demented elderly: Data obtained from a network of sentinel general practitioners. Int J Geriatr Psychiatry. 2009;24(5):523-31. Brodaty H, Green A. Who cares for the carer? The often forgotten patient. Aust Fam Physician. 2002;31(9):833-6. Schoenmakers B, Buntinx F, DeLepeleire J. What is the role of the general practitioner towards the family caregiver of a community-dwelling demented relative? A systematic literature review. Scand J Prim Health Care. 2009;27(1):31-40. Vermandere M. Zorgdiagnose bij thuiswonende dementerenden: Een nieuw concept? Leuven: Katholieke Universiteit Leuven; 2009.